Jon M

Hi,

I choose not to do a CLND. I was diagnosied on June 24 2016 with a 3.5mm ulcerated and a micotic rate of 4. i then had my SLNB on aug 4. they took out one lymph node from my groin, and come back positive with microsopic tracies of melanoma. I also had to have a skin graft on my right calf. I went and got several opinions on wheather or not i should do a CLND and i finaly decieded with not doing it. I tried yervoy in the 10mg dose and was only able to do 1 treatmeant. It attacked my lungs and i was in the hospital for a week and on prednozone for over a month. I just had a pet/ct scan on the 17 of last month and still show no signs of progression. I go again for another pet /ct scan on the 19th of april. so i will contiune every 3 months wtih scans and i go every 6 months for skin checks with my derm. 

Hi my primary was on my right calf and was 3.5mm. I had my SLNB and a skin graft done,and they removed 1 lymph node from my groin and it came back with small microscopic traces. My surgeon then ordered a full body CT scan to see if i had spread else where. It showed the adjacent lymph node was enlarged and a i had a deeper pelvice lymph node that was inlarged. The surgeion then recomended doing a complete lymph node dissection. I thought long and hard about this because it is a very personal choice and you have to come to terms with whatever you choose. I chose not do to the lymph node dissection because the surgeon told me that i had at least a 50% chance of lymphadema for the rest of my life. He also told me that i only had a 25% to 35% chance that doing the surgery would keep me from proggresing. I tried to enroll in a clinacal trial and was deniend. I eventually got hooked up with a oncologist i like i had a PET scan done on Nov 5 and nothing light up not even those lymph nodes and about a month before that i could feel the one and now i cant. My oncologist said it was probably healing from the SLNB. I had my first Yervoy treatment on Nov14 and even tho i only had one treatmeant i had a pulmanary drug toxicty reaction to it, in which i developed pnumona from the treatmeant and was hospitalized for 6 days and now on steriods and doing great. I would choose to do it all over again. I meet with my oncologist today and right now i cant do any other treatmenat becasue I am NED from my last pet scan and Yervoy was the only thing she would give me with being stage 3B. She told me if i was to move to stage 4 then we would try something else but for now just moniter me with Pet scans every 3 months and do my skin checks at the derm. What im trying to say is only you can make these kinds of chocies, and you have to be at peace with whatever you choose. There is no right or wrong answer. I wish you all the best in your journey.

Jon

Hi my primary was on my right calf and was 3.5mm. I had my SLNB and a skin graft done,and they removed 1 lymph node from my groin and it came back with small microscopic traces. My surgeon then ordered a full body CT scan to see if i had spread else where. It showed the adjacent lymph node was enlarged and a i had a deeper pelvice lymph node that was inlarged. The surgeion then recomended doing a complete lymph node dissection. I thought long and hard about this because it is a very personal choice and you have to come to terms with whatever you choose. I chose not do to the lymph node dissection because the surgeon told me that i had at least a 50% chance of lymphadema for the rest of my life. He also told me that i only had a 25% to 35% chance that doing the surgery would keep me from proggresing. I tried to enroll in a clinacal trial and was deniend. I eventually got hooked up with a oncologist i like i had a PET scan done on Nov 5 and nothing light up not even those lymph nodes and about a month before that i could feel the one and now i cant. My oncologist said it was probably healing from the SLNB. I had my first Yervoy treatment on Nov14 and even tho i only had one treatmeant i had a pulmanary drug toxicty reaction to it, in which i developed pnumona from the treatmeant and was hospitalized for 6 days and now on steriods and doing great. I would choose to do it all over again. I meet with my oncologist today and right now i cant do any other treatmenat becasue I am NED from my last pet scan and Yervoy was the only thing she would give me with being stage 3B. She told me if i was to move to stage 4 then we would try something else but for now just moniter me with Pet scans every 3 months and do my skin checks at the derm. What im trying to say is only you can make these kinds of chocies, and you have to be at peace with whatever you choose. There is no right or wrong answer. I wish you all the best in your journey.

Jon

Hi my primary was on my right calf and was 3.5mm. I had my SLNB and a skin graft done,and they removed 1 lymph node from my groin and it came back with small microscopic traces. My surgeon then ordered a full body CT scan to see if i had spread else where. It showed the adjacent lymph node was enlarged and a i had a deeper pelvice lymph node that was inlarged. The surgeion then recomended doing a complete lymph node dissection. I thought long and hard about this because it is a very personal choice and you have to come to terms with whatever you choose. I chose not do to the lymph node dissection because the surgeon told me that i had at least a 50% chance of lymphadema for the rest of my life. He also told me that i only had a 25% to 35% chance that doing the surgery would keep me from proggresing. I tried to enroll in a clinacal trial and was deniend. I eventually got hooked up with a oncologist i like i had a PET scan done on Nov 5 and nothing light up not even those lymph nodes and about a month before that i could feel the one and now i cant. My oncologist said it was probably healing from the SLNB. I had my first Yervoy treatment on Nov14 and even tho i only had one treatmeant i had a pulmanary drug toxicty reaction to it, in which i developed pnumona from the treatmeant and was hospitalized for 6 days and now on steriods and doing great. I would choose to do it all over again. I meet with my oncologist today and right now i cant do any other treatmenat becasue I am NED from my last pet scan and Yervoy was the only thing she would give me with being stage 3B. She told me if i was to move to stage 4 then we would try something else but for now just moniter me with Pet scans every 3 months and do my skin checks at the derm. What im trying to say is only you can make these kinds of chocies, and you have to be at peace with whatever you choose. There is no right or wrong answer. I wish you all the best in your journey.

Jon

What brand of cannabis oil did he use

What brand of cannabis oil did he use

What brand of cannabis oil did he use

Thank you for the info, I dont know how i would obtain it since my state of Indiana makes it illegal. I figured i would look into it tho it cant hurt. Thanks again

Thank you for the info, I dont know how i would obtain it since my state of Indiana makes it illegal. I figured i would look into it tho it cant hurt. Thanks again

Thank you for the info, I dont know how i would obtain it since my state of Indiana makes it illegal. I figured i would look into it tho it cant hurt. Thanks again