Johnjk04

My bad, it’s: “ Everything’s Gonna Be Alright”.

Someone better come on and tell, what is so ironic about this song and artist.

Christina D., maybe you can help me.
Who was the artist that performed the song “ Everything is Going to be All Right”?

Ladies, no reason to get down and out.

In 2012, I had melanoma in pretty much every organ, brain and spinal cord.

I had two craniotomy, with the surgeon removing twenty eight pieces of anything that resembled cancer.

Never got the count, which were benign or malignancy. Also had three Gamma Knifes for some more brain tumors. I did have some bleeding in the brain.

I received  the Ipi / Nivo treatment for two years. Nine years later, all has been wonderful.

Put yourself with the best melanoma doctors and all should end up well.

Way to go Adam !!!

Christinad, yes it does feel nice. Had my brain MRI and CT scan last week. My oncologist is on a two month vacation (isn’t that crazy?). The office asked if I’d like to see a different oncologist, I told them I’d wait for two months (isn’t that crazy?).

Christinad, your last scan day and oncologist visit will come as well. Just carry faith, hope and patience along with your journey.  Dr. Allison and Dr. Honjo, both made brilliant discoveries in immunotherapy. Their are plenty of scientists working now to make even more advanced revelations.

May the peace of our Lord, Jesus Christ, keep you company. Christinad, you’ll be in my prayers !!

Christinad, I became NED, seven months into the trial.

I received sixteen treatments of Ipi / Nivo over the course of two years.

According to the trial’s protocol, I am not a full nor even partial responder. I had two brain tumors, six months into the trial.

So keep your faith and hope. This immunotherapy is one helluva treatment.

My trial was at Yale – New Haven (excellent, superb). I’ve moved to northern Arizona and the cancer care here is straight up lousy.

Just glad that it’s my last set of scans and also last oncology visit.

Christinad, I know that you’re going through a tough time now. It will get better.

Jan. 2012, I had melanoma in the brain, both lungs, liver, kidney, gall bladder, left adrenal gland and spinal cord.

Two craniotomy, three Gamma Knife (brain) and the first clinical trial of ipilimumab and nivolumab did me well.

I have been NED a for nine years now.

Be patient, the immunotherapy takes it’s sweet time. Wishing you the absolute best.

Chris’ wife, I apologize if I come over as too cold or hard. I do hold myself to the same standards. During my sixteen treatments of Ippi / Nivo, I suffered plenty of adverse side effects.
During the lowest point on my melanoma journey, my marvelous , eighteen year old son died by suicide.
Melanoma at it’s absolute  worse, will never ever come close to the pain I felt at Kyle’s death. Once again, wishing the best for Chris and you.

 

 

Chris’ wife, let’s hope that this reaction is a mute point in the future.

There are people that are no longer active on this sight, they were dealt a worse hand of cards than immunotherapy side effects.

Best wishes Chris and his wife, I’ll see both of you in my prayers !!

During my second craniotomy, I developed a blood clot in my ankle. It was stabilized with an IVC filter. The clot was so large that it completely shut down my inferior vena cava. Took many years to have alternate veins develop.

January 2012 – melanoma in brain, both lungs, liver, kidney, gall bladder, left adrenal gland and spinal cord.

August 2012 – NED    Still riding the train. I’m very fortunate. No complaints.

MK, I wish for the same results for you. You will be spending some time in my prayers.

Here comes a blast from the past. In January 2012, I was accepted into the first Ippi/Nivo clinical trial. There were 53 of us from Yale – New Haven and Sloan Kettering. Our trial consisted of 16 doses of Ippi/ Nivo. October 2013, I lost function of my pituitary, adrenal and thyroid glands. Will be a lifer with prednisone and levothyroxine. MK, I wish you the absolute best. Doctor Allison and Doctor Honjo are my real life heroes.

Tim, I almost want to congratulate you for the outcome you’ve chosen. Dr. Sznol will give you excellent care. You are sitting in the catbird seat. Wishing you the absolute best. Goooo TIL ‘s !!!!!!

Tim, this is the reason that I was so pleased to be treated by Dr. Sznol at Smilow. They are completely dedicated to you at this clinic. Many community hospitals will keep you in their care, when they know that your life expectancy would greatly improve at a melanoma treatment center. Sometimes it’s all about the revenue stream. An ovation of gratitude to Dr. Sznol for putting you in the best possible treatment center. Tim, wishing you good fortune in the days ahead.

Wil, too bad that you’ve been picked to join us. The scalp doesn’t hold too many nerves. I had two craniotomy, one left me with 24 staples to close, never had any pain after surgery. I was given a prescription of oxytocin and never took one. The tracer injection on your surgery day will be a bit painful, but won’t last more than fifteen seconds. Wishing you the best, I’ll keep you in my prayers.