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More vitiligo….yay!!!

Forums General Melanoma Community More vitiligo….yay!!!

  • Post
    Christinad
    Participant
      I noticed my eye lashes and eyebrows turning white a while back. I now have vitiligo on my hands, arms, chest, abdomen and back….whooohoo! Is it noticeable, yes! Do people point out my lashes and brows, yep!! Does it bother me, absolutely not! I’m wearing it proud and praying in my case it’s a good prognostic sign. My Onc says it is, but we know nothing is a guarantee, however, it keeps me strong to keep fighting. Happy Friday to all!
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    • Replies
        Mark_DC
        Participant
          Hi Christina,

          I do think (and hope) it is a good sign!! In my case my hair turned white – but my doctor said that was simply aging (or maybe stress/shock) more than vitiligo. But I think and hope you have the real thing, and this could be good news. It shows something is happening to your skin, the immunotherapy is acting on your skin, so maybe it is working!

          Good luck Mark

           

          Heystan
          Participant
            Congratulations, Christinad. It is absolutely a good sign. To oversimplify, vitiligo is the result of an overactive immune system, and that’s exactly what you need right now. When my doc saw that I had developed vitiligo on my neck, he got very excited, had a big smile on his face and ran for a camera. It’s great news.
            sing123
            Participant
              This is wonderful, Christina! I don’t have any. But my melanoma specialist doc says it is a good sign of a response. Wear it proudly.
              Johnjk04
              Participant
                Christina D., maybe you can help me.
                Who was the artist that performed the song “ Everything is Going to be All Right”?
                Johnjk04
                Participant
                  My bad, it’s: “ Everything’s Gonna Be Alright”.

                  Someone better come on and tell, what is so ironic about this song and artist.

                    Christinad
                    Participant
                      Bob Marley is the artist and he died of melanoma. I did not know that until I looked it up.
                    Bubbles
                    Participant
                      Or…similarly ~ A whiter shade of pale????  Ha!  Yes, weird as it is, vitiligo is a good thing.  Here are lots of research reports to that effect:  https://chaoticallypreciselifeloveandmelanoma.blogspot.com/2020/07/skin-rashes-vitiligo-and-prognosis-when.html

                      When sitting in the CRU (Cutaneous Research Unit) at Moffitt and reported newly appearing white patches to the nurse, she exclaimed, “Oh, my!  That looks like vitiligo!  I bet when Dr. Weber sees them his bow tie will start spinning!”  And it did, almost. Or perhaps it was just the breeze he created when he rushed from the exam room to grab a Wood’s lamp.  Ha!

                      Warmest hopes and wishes.  C

                        Christinad
                        Participant
                          Thank you for sharing the research reports. Very encouraging   A lighter shade of pale applies to me too LOL. Pale and proud 😊. It is awesome you’re a patient of Dr. Webber. I’ve watched some of his videos. Seems like an incredible man. Thank you for paving the way for the rest of us.
                        Christinad
                        Participant
                          Thank you all for your encouragement and support.
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