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jenmooney363

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      jenmooney363
      Participant

        I just finished Yervoy and am getting ready to start Zelboraf.  I also have brain mets and have had whole brain radiation.  For me, the whole brain radiation wasn't very effective, but I did have gamma knife surgery, which is a form of pinpoint radiation, which did help.  Beware the side effects of the Yervoy were different for me with each infusion.  I did have some success with the Yervoy though.  Most of the tumors in my lungs shrunk, some by half.  I did have new lesions that popped up during the Yervoy treatment though. 

        I would strongly reccommend looking into gamma or cyberknife as opposed to whole brain radiation.  The side effects for me were mainly tiredness and hair loss, but it just wasn't effective.

        jenmooney363
        Participant

          I just finished Yervoy and am getting ready to start Zelboraf.  I also have brain mets and have had whole brain radiation.  For me, the whole brain radiation wasn't very effective, but I did have gamma knife surgery, which is a form of pinpoint radiation, which did help.  Beware the side effects of the Yervoy were different for me with each infusion.  I did have some success with the Yervoy though.  Most of the tumors in my lungs shrunk, some by half.  I did have new lesions that popped up during the Yervoy treatment though. 

          I would strongly reccommend looking into gamma or cyberknife as opposed to whole brain radiation.  The side effects for me were mainly tiredness and hair loss, but it just wasn't effective.

          jenmooney363
          Participant

            I just finished Yervoy and am getting ready to start Zelboraf.  I also have brain mets and have had whole brain radiation.  For me, the whole brain radiation wasn't very effective, but I did have gamma knife surgery, which is a form of pinpoint radiation, which did help.  Beware the side effects of the Yervoy were different for me with each infusion.  I did have some success with the Yervoy though.  Most of the tumors in my lungs shrunk, some by half.  I did have new lesions that popped up during the Yervoy treatment though. 

            I would strongly reccommend looking into gamma or cyberknife as opposed to whole brain radiation.  The side effects for me were mainly tiredness and hair loss, but it just wasn't effective.

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