Melanoma Research Foundation | jbronicki | Activity https://forum.melanoma.org/user/jbronicki/activity/ Activity feed for jbronicki. Sun, 05 Apr 2026 08:07:34 -0400 https://buddypress.org/?v= en-US 30 hourly 2 abcdbfe02bce0a2f99c769eec2c2f1f9 jbronicki replied to the topic We Lost a Marvelous Friend in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/we-lost-a-marvelous-friend/#post-280559 Tue, 10 Dec 2024 03:46:26 -0500 Oh my gosh, something made me check the board, I haven’t in a while. When I saw the title, I didn’t want to open it. It’s just devastating news. I can’t process it really, there is no truer patient advocate (and rattie) than Bubbles. She did more good and provided more information to patients then anyone I have encountered, she was fearles…Read more

]]> f29f0b255efbb6a035a62b41ec4cbd17 jbronicki replied to the topic I rang the bell today, folks! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/i-rang-the-bell-today-folks/#post-276244 Thu, 20 Jan 2022 21:24:58 -0500 That is the way to start 2022! So happy for you, that is such incredible news! Congratulations on such a phenomenal response, wishing you only the best. I love that they gave you a certificate, that is awesome 🙂

]]> e21275f534e0116af4fc2474048ccec2 jbronicki replied to the topic Sad news from Joanne Towens. in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/sad-news-from-joanne-towens/#post-276195 Thu, 06 Jan 2022 16:28:27 -0500 Wow, that is such incredibly sad news. I haven’t been on the forum in a while and just checked today, devastating news to hear. I still remember Mark’s story of his incredible work in London on the Thames. He was so humble and so nice. Thank you Ed for posting the link, it was nice to see all the pictures of him and his beautiful family.…Read more

]]> 5c56a92714112a61b661dfde2f7430bf jbronicki replied to the topic Stomach Mets in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/stomach-mets-2/#post-275902 Sun, 31 Oct 2021 01:58:22 -0400 Hi Amanda,

So good to see your post and so proud of you on the clinical trial, you are truly amazing and so glad that response is occurring, but so sorry for all the stomach problems.  That is so rough and we all definitely want you to keep your strength!  I can only offer this as you never know what will actually do the trick for any one p…Read more

]]> 36239edd2efe1dce5fd8c39bce9ada60 jbronicki replied to the topic NED, But in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ned-but/#post-275784 Mon, 04 Oct 2021 12:04:54 -0400 Ditto Ted, keeping fingers crossed as well and I’m thinking about you.  This must be incredibly nerve wracking, it is hard not to worry about this and the waiting is always rough.  Many hugs!

]]> 07b7c944d15d9d52e8a498c769206eb4 jbronicki replied to the topic New- so much to learn - some questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-so-much-to-learn-some-questions/#post-275750 Wed, 29 Sep 2021 16:10:53 -0400 So glad to hear you have a consult with surgical oncology at Memorial Sloan Kettering and I think any surgeon there is going to have the experience you want for your husband.  They will have seen enough melanoma in the head/neck area.  They are one of the top places in the US.

My husband’s surgery was February 2014 so it has been 7 1/2 years.  Bu…Read more

]]> 183ceffb218c4bb7cf75b3f3ce80ac65 jbronicki replied to the topic New- so much to learn - some questions in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/new-so-much-to-learn-some-questions/#post-275741 Mon, 27 Sep 2021 12:37:14 -0400 Hello JD, and so sorry you had to join this group and you are right, you are in the very intense information gathering stage which can be very overwhelming.  Bill is absolutely correct, seeing a good melanoma specialist is key as well as melanoma surgeon.  I would definitely opt for Sloan Kettering even though the distance can be challenging.  Wh…Read more

]]> 03e30587628d29cea823b34664907a07 jbronicki replied to the topic My 1st clinical trial! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/my-1st-clinical-trial/#post-275610 Mon, 06 Sep 2021 20:12:56 -0400 Amanda, always in awe of your absolute amazing personality and determination.  I started reading about STING last night and was having trouble too and then Celeste’s link really helped!

I’m keeping all appendages crossed.

I didn’t think I could have more respect for patients in clinical trials, but now working in a phase 1/2  investigational c…Read more

]]> 8dc64f57e82eb1786f0a2485a555bd82 jbronicki replied to the topic The TIL process in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/the-til-process/#post-275488 Fri, 13 Aug 2021 13:55:28 -0400 Wow, this will be so helpful to future people going through this and I’m absolutely wishing you a great response.  Thank you for taking the time to write this, especially after going through something so intense.

As a lot of us hear from people that face such things, most of the anxiety for people comes from not knowing what is going to happen…Read more

]]> c48218bf7a83bb0efa5451fde37ab7e5 jbronicki replied to the topic So good to find a Melonoma Patient Forum in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/so-good-to-find-a-melonoma-patient-forum/#post-275433 Wed, 04 Aug 2021 02:09:37 -0400 Hi Jeanie,

Sorry you joined this group and I know you are in the initial information gathering stage which is always intense.  Any medical intervention or procedure is a risk (side effects, other outcomes)/reward (accurate staging and best practices moving forward based on accurate information) assessment and this assessment absolutely favors…Read more

]]> ae78fd59a803b6d1a3026816786332cb jbronicki replied to the topic Primary Dermal Melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/primary-dermal-melanoma-6/#post-275290 Sun, 04 Jul 2021 19:21:04 -0400 Correction, his tumor was surgically removed in 2014 right after his punch biopsy, sorry I accidentally said 2021.

]]> bd61827bb69e5589c7f1ab7a3cb13e6a jbronicki replied to the topic Primary Dermal Melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/primary-dermal-melanoma-6/#post-275289 Sun, 04 Jul 2021 19:08:53 -0400 Hi Danilo,

First, sorry for your diagnosis and you have joined our group.  I have looked at a lot of the research on Primary Dermal Melanoma since 2014 since this was a potential brought up with my husband’s pathology of his punch biopsy before he got this “tumor” removed surgically in February 2021.  His was 19mm deep (22 mm wide) with mitotic r…Read more

]]> eaccc0271bf9a1ea8a010363f63ab09e jbronicki replied to the topic Who is NED for 5 or more years? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/who-is-ned-for-5-or-more-years/#post-275278 Sat, 03 Jul 2021 17:18:20 -0400 My husband is 7+ years NED.  Stage 4 with unknown primary

]]> ba17e2f795362b2767c366955140f34c jbronicki replied to the topic Julie in SoCal in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/julie-in-socal-2/#post-275224 Wed, 30 Jun 2021 03:20:08 -0400 Wow, this is such sad news and I’m so sorry to hear this, thinking of Julie and all the people she inspired and connected with, she was clearly so special.  I know I felt connected to her.  Oh man,  this is hard.  Many hugs to her and all those that had the privilege to know her in person.

]]> e00e2225605893ebd750fa60607f7ec8 jbronicki replied to the topic Four down, one to go in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/four-down-one-to-go/#post-275123 Fri, 25 Jun 2021 17:59:43 -0400 Aloha Gary, I agree with JudiAU, there is absolutely nothing better than hearing these updates.  It is true joy!  So happy for you and may the retirement years be more relaxing!

]]> 37220268d90346d26b4045e577325b8a jbronicki replied to the topic Julie in SoCal in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/julie-in-socal-2/#post-275122 Fri, 25 Jun 2021 17:56:30 -0400 I was absolutely wondering the same thing, I’ve been lurking on here and actually tried to search the site the other day in case I missed any updates from Julie.  Celeste, I will send all the vibes and love and prayers and incantations etc that I can to the universe today.  I miss “hearing” her voice on the site.  I automatically think of Julie EV…Read more

]]> 96d1457e0030cfaaa25170e7067a686c jbronicki replied to the topic Mom of Jake - for the old friends here in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/mom-of-jake-for-the-old-friends-here/#post-274878 Mon, 31 May 2021 14:05:28 -0400 Dear Kerri, I am so very sorry. Not even sure what words even mean enough.  Like others on here, I followed Jake’s story and always looked for updates.  The picture of you and Jake says it all, that is pure love.  To be honest, I’ve admired Jake’s ability to live in the moment so much and wish I had half his courage in that regard.  And I can…Read more

]]> 79df88202ef0d9aad482128f0fdcc0c9 jbronicki replied to the topic Mixed Results — looking for my next treatment option in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/mixed-results-looking-for-my-next-treatment-option/#post-274447 Fri, 02 Apr 2021 18:48:52 -0400 Hi Amanda and Celeste,

Many hugs Amanda, you are such a good mom and such a wonderful person who has dealt with this since childhood.  Sorry, I have been off the board for about 6 months as I started a new role.  I just want to reiterate what Celeste said about the genomic testing which is the basis for precision oncology.  I would definitely re…Read more

]]> 94ddd45dd162bc6fb562ef627e6dc5f8 jbronicki replied to the topic Melanoma Mike in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-mike-8/#post-273669 Wed, 23 Dec 2020 02:05:06 -0500 Wow, I actually had to walk away after reading this and come back a few hours later.  All of you above said it all.  Mike was family, Mike was funny and I knew I could say anything to Mike, Mike was a warrior in every sense of the word, Mike lived by the golden rule,  Mike sacrificed for Science, Mike spoke from the heart, I felt like a better pe…Read more

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