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Hi Mary,

I've had two appointments out of ten for WBR…so far, so good.  I go every day this week, plus M-W next week.  My ears get a funny feeling now and then, but I've been told it it normal.  Making plans to get my haircut this week and purchase a wig or two since it will all be gone in about two weeks anyway.  I've been advised the radiation side effects will really hit after the two-week course is up….fatigue, nauseua, etc.  It would be nice if I could be using this time to feel better than I do, but the fact is that I still have mets doing their things all over my body.

I meet with med onc on 11/14 to finalize the rest of the treatment plan.  Once WBR is complete, I still need to undergo gamma knife to finish off the little brain buggers that were too big just for WBR to handle.  Not sure if this will delay chemo or run concurrent.  I am BRAF negative.

Leg is the same….funny, once you start having to worry about tumors in your brain and the rest of the body how easy it is almosts forget I had surgery less than 2 months ago.

Thanks for checking in on me….I hope you are doing well.

All the best,

Jacki

Hi Mary,

I've had two appointments out of ten for WBR…so far, so good.  I go every day this week, plus M-W next week.  My ears get a funny feeling now and then, but I've been told it it normal.  Making plans to get my haircut this week and purchase a wig or two since it will all be gone in about two weeks anyway.  I've been advised the radiation side effects will really hit after the two-week course is up….fatigue, nauseua, etc.  It would be nice if I could be using this time to feel better than I do, but the fact is that I still have mets doing their things all over my body.

I meet with med onc on 11/14 to finalize the rest of the treatment plan.  Once WBR is complete, I still need to undergo gamma knife to finish off the little brain buggers that were too big just for WBR to handle.  Not sure if this will delay chemo or run concurrent.  I am BRAF negative.

Leg is the same….funny, once you start having to worry about tumors in your brain and the rest of the body how easy it is almosts forget I had surgery less than 2 months ago.

Thanks for checking in on me….I hope you are doing well.

All the best,

Jacki

Hi Mary,

I've had two appointments out of ten for WBR…so far, so good.  I go every day this week, plus M-W next week.  My ears get a funny feeling now and then, but I've been told it it normal.  Making plans to get my haircut this week and purchase a wig or two since it will all be gone in about two weeks anyway.  I've been advised the radiation side effects will really hit after the two-week course is up….fatigue, nauseua, etc.  It would be nice if I could be using this time to feel better than I do, but the fact is that I still have mets doing their things all over my body.

I meet with med onc on 11/14 to finalize the rest of the treatment plan.  Once WBR is complete, I still need to undergo gamma knife to finish off the little brain buggers that were too big just for WBR to handle.  Not sure if this will delay chemo or run concurrent.  I am BRAF negative.

Leg is the same….funny, once you start having to worry about tumors in your brain and the rest of the body how easy it is almosts forget I had surgery less than 2 months ago.

Thanks for checking in on me….I hope you are doing well.

All the best,

Jacki

When being the needle in the haystack sounds appealing, you pretty much expect limited experience among doctors, even nationally.  I would expect the "best" to be calling to "rest of the best" regardless.  Thanks for the well-wishes…I need everything I can get!

When being the needle in the haystack sounds appealing, you pretty much expect limited experience among doctors, even nationally.  I would expect the "best" to be calling to "rest of the best" regardless.  Thanks for the well-wishes…I need everything I can get!

When being the needle in the haystack sounds appealing, you pretty much expect limited experience among doctors, even nationally.  I would expect the "best" to be calling to "rest of the best" regardless.  Thanks for the well-wishes…I need everything I can get!

Totally agree with you, Dave!  I picked this team after much consideration…which did include a teensy bit of geography influence in the beginning.  😉  I don't regret my choices at all!  Oh, and they put me with Dr. S cuz of my age.  He usually treats "young adults" with melanoma….I was pretty excited just to make the cut at 40.  lol

Totally agree with you, Dave!  I picked this team after much consideration…which did include a teensy bit of geography influence in the beginning.  😉  I don't regret my choices at all!  Oh, and they put me with Dr. S cuz of my age.  He usually treats "young adults" with melanoma….I was pretty excited just to make the cut at 40.  lol

Totally agree with you, Dave!  I picked this team after much consideration…which did include a teensy bit of geography influence in the beginning.  😉  I don't regret my choices at all!  Oh, and they put me with Dr. S cuz of my age.  He usually treats "young adults" with melanoma….I was pretty excited just to make the cut at 40.  lol

Thanks, Michelle.  I appreciate your words and your take on what is going on with Don.  And I am SOOO excited he is improving.  I will keep him in my prayers for wellness and for your peace as you continue to fight beside him!

Thanks, Michelle.  I appreciate your words and your take on what is going on with Don.  And I am SOOO excited he is improving.  I will keep him in my prayers for wellness and for your peace as you continue to fight beside him!

Thanks, Michelle.  I appreciate your words and your take on what is going on with Don.  And I am SOOO excited he is improving.  I will keep him in my prayers for wellness and for your peace as you continue to fight beside him!