ilikepralinen

I am on Tafinlar Mek Combo since July 2016. ( Dosage has varied)

My Brain Metastase is in stable state (It has not grown / reduced its size)

I get Fever/Chills 3 days in a month. Doctors advised to take Ibuprufen/Paracetamol.

Last year i exericsee too much (Lifting Weights/Cardio). It increased my CK Value in blood test.

Was without both medicines for 2 weeks.

As of now I am on low dosage of Taf Mek Combo.

I have couple of scans this month. They want to increase the dosage.

If you have any issues, kindly talk with your Oncologist.

 

 

Hi,

I also have the same problem. But i am Taking Dabrfenib and Mekinist. Dosage: Dabrafenib 150mg(1-0-1), Mekinst 2mg (1-0-0)

Doctor asked me to stop medicines. Was in hospital, bed rest and was given 3Litre Ringer Acetat Solution each day.  Values had reduced.

Now on Dabrafenib 100mg (1-0-1) and Mekinist 1.5mg (1-0-0).

Hi,

I also have the same problem. Dosage was 150mg(1-0-1), Mekinst 2mg (1-0-0)

Doctor asked me to stop medicines. Was in hospital, bed rest and was given 3Litre Ringer Acetat Solution.  Values had reduced.

Now on Dabrfinib 100mg (1-0-1) and Mekinist 1.5mg (1-0-0).

Blood test every 7 – 10 days

I had fever after 2 months (38 – 39 Degrees with Shivering).

Doctor advised me to take Paracetamol 500mg (1-1-1)..

The fever went away after 3 Days.

Doctor also advised me not to STOP TAF/MEK combo because of fever.

These days i have fever every 2 – 4 Weeks.

I had fever after 2 months (38 – 39 Degrees with Shivering).

Doctor advised me to take Paracetamol 500mg (1-1-1)..

The fever went away after 3 Days.

Doctor also advised me not to STOP TAF/MEK combo because of fever.

These days i have fever every 2 – 4 Weeks.

I had fever after 2 months (38 – 39 Degrees with Shivering).

Doctor advised me to take Paracetamol 500mg (1-1-1)..

The fever went away after 3 Days.

Doctor also advised me not to STOP TAF/MEK combo because of fever.

These days i have fever every 2 – 4 Weeks.

I Live in Germany too.

Did you do it at a Hospital or by a 'Haut Arzt'

They will mostly refer you to an Hospital which is specialized in Oncology.

1.You can ask for a copy of the  biopsy results

2.You can ask in which Stage you are in.

3. Howoften you should get checked up?

I had checkup every 3 months. (My Primary mole was never found)

a. They took my blood.

b. Ultraschall/ Ultrasonic scan at my lymph nodes.

c. General Skin check to see for new suspicious moles.

d. PET – CT / Normal CT Scan / MRI Scans (I asked for a copy of the results from my Oncology)

e. Summary of the results were documented in 'Nachsorge Kalender' (Documentation was in German)

4. If you woult like to connect with other members / talk with a Psychosocial counseler you could look in to the following organizations

https://www.krebshilfe.de/

In Bavaria, the following organizations are available

http://www.bayerische-krebsgesellschaft.de/

https://www.brk-muenchen.de/wir-sind-fuer-sie-da/mit-beratung-und-betreuung/krebsberatung

 

 

I Live in Germany too.

Did you do it at a Hospital or by a 'Haut Arzt'

They will mostly refer you to an Hospital which is specialized in Oncology.

1.You can ask for a copy of the  biopsy results

2.You can ask in which Stage you are in.

3. Howoften you should get checked up?

I had checkup every 3 months. (My Primary mole was never found)

a. They took my blood.

b. Ultraschall/ Ultrasonic scan at my lymph nodes.

c. General Skin check to see for new suspicious moles.

d. PET – CT / Normal CT Scan / MRI Scans (I asked for a copy of the results from my Oncology)

e. Summary of the results were documented in 'Nachsorge Kalender' (Documentation was in German)

4. If you woult like to connect with other members / talk with a Psychosocial counseler you could look in to the following organizations

https://www.krebshilfe.de/

In Bavaria, the following organizations are available

http://www.bayerische-krebsgesellschaft.de/

https://www.brk-muenchen.de/wir-sind-fuer-sie-da/mit-beratung-und-betreuung/krebsberatung

 

 

I Live in Germany too.

Did you do it at a Hospital or by a 'Haut Arzt'

They will mostly refer you to an Hospital which is specialized in Oncology.

1.You can ask for a copy of the  biopsy results

2.You can ask in which Stage you are in.

3. Howoften you should get checked up?

I had checkup every 3 months. (My Primary mole was never found)

a. They took my blood.

b. Ultraschall/ Ultrasonic scan at my lymph nodes.

c. General Skin check to see for new suspicious moles.

d. PET – CT / Normal CT Scan / MRI Scans (I asked for a copy of the results from my Oncology)

e. Summary of the results were documented in 'Nachsorge Kalender' (Documentation was in German)

4. If you woult like to connect with other members / talk with a Psychosocial counseler you could look in to the following organizations

https://www.krebshilfe.de/

In Bavaria, the following organizations are available

http://www.bayerische-krebsgesellschaft.de/

https://www.brk-muenchen.de/wir-sind-fuer-sie-da/mit-beratung-und-betreuung/krebsberatung

 

 

As per my pathologic report, They used my biopsy material ,
Against material s100 in a immunochemical reaction shows a colour change…biopsy msterial against material p53 also shows nucleas of tumour materials could be seen…biopsy material against map2, they could see the structure… against material melanA they were able to see a reaction.

Implies brafv600e mutation…(c1799t>a)

As per my pathologic report, They used my biopsy material ,
Against material s100 in a immunochemical reaction shows a colour change…biopsy msterial against material p53 also shows nucleas of tumour materials could be seen…biopsy material against map2, they could see the structure… against material melanA they were able to see a reaction.

Implies brafv600e mutation…(c1799t>a)

As per my pathologic report, They used my biopsy material ,
Against material s100 in a immunochemical reaction shows a colour change…biopsy msterial against material p53 also shows nucleas of tumour materials could be seen…biopsy material against map2, they could see the structure… against material melanA they were able to see a reaction.

Implies brafv600e mutation…(c1799t>a)

As per my pathologic report, They used my biopsy material ,
Against material s100 in a immunochemical reaction shows a colour change…biopsy msterial against material p53 also shows nucleas of tumour materials could be seen…biopsy material against map2, they could see the structure… against material melanA they were able to see a reaction.

Implies brafv600e mutation…(c1799t>a)

As per my pathologic report, They used my biopsy material ,
Against material s100 in a immunochemical reaction shows a colour change…biopsy msterial against material p53 also shows nucleas of tumour materials could be seen…biopsy material against map2, they could see the structure… against material melanA they were able to see a reaction.

Implies brafv600e mutation…(c1799t>a)