EkinIstanbul

thank you for the overview! 

thank you for the overview! 

thank you for the overview! 

Hi Christy

I had been on interferon for the last 1 year- first month high dose than used Intron pen injections at home- 3 times x10mu a week. I can say that it is not an easy treatment, Im stage 3 – diagnosed in May 2015 and NED after the surgery.

Interferon diminishes the quality of life..( fatigue, headaches, brain fog, liss of apetite, depression- those are what I experieneced during the treatment) I live in Turkey and we did't have Yervoy before but now it is also approved in Turkey so I switch to Yervoy. As orthers say, please check all the options and decide. 

If you end up with Interferon, I can give you more tips to handle the side effects based on my experience. 

Wishing you all the best and good luck

take care

Ekin

Hi Christy

I had been on interferon for the last 1 year- first month high dose than used Intron pen injections at home- 3 times x10mu a week. I can say that it is not an easy treatment, Im stage 3 – diagnosed in May 2015 and NED after the surgery.

Interferon diminishes the quality of life..( fatigue, headaches, brain fog, liss of apetite, depression- those are what I experieneced during the treatment) I live in Turkey and we did't have Yervoy before but now it is also approved in Turkey so I switch to Yervoy. As orthers say, please check all the options and decide. 

If you end up with Interferon, I can give you more tips to handle the side effects based on my experience. 

Wishing you all the best and good luck

take care

Ekin

Hi Christy

I had been on interferon for the last 1 year- first month high dose than used Intron pen injections at home- 3 times x10mu a week. I can say that it is not an easy treatment, Im stage 3 – diagnosed in May 2015 and NED after the surgery.

Interferon diminishes the quality of life..( fatigue, headaches, brain fog, liss of apetite, depression- those are what I experieneced during the treatment) I live in Turkey and we did't have Yervoy before but now it is also approved in Turkey so I switch to Yervoy. As orthers say, please check all the options and decide. 

If you end up with Interferon, I can give you more tips to handle the side effects based on my experience. 

Wishing you all the best and good luck

take care

Ekin

Hi Jen, have you tried Glucosamine cohondrite with msm? 

Hi Jen, have you tried Glucosamine cohondrite with msm? 

Hi Jen, have you tried Glucosamine cohondrite with msm? 

Hi Jen

I'm a new member in this community- just read your story and we have similar situations- unfortunately! just wanted to say hi and would like to have your comments if you have any- I will start Ipi/ yervoy treatment on Thursday and Im a bit scared. Just finished Interferon for one year- it's been a tough one and just ready for the final 3 months with Yervoy.

I had been diagnosed 1 year ago- stage 3 with 2mm minimal metastas in 1 lenf node. All lenf nodes removed in my left inguinal area. As you mentioned I am not wait and see type so we decided to make Yervoy to avoid recurrence. Fingers crossed – I am very curious and will be reading your posts. Hope I will not have severe side effects. Thanks for sharing and updates. They are very helpful since we don't know what to expect! 

Wishing you all the best and fast recovery with your nausea! take care 

Ekin

Hi Jen

I'm a new member in this community- just read your story and we have similar situations- unfortunately! just wanted to say hi and would like to have your comments if you have any- I will start Ipi/ yervoy treatment on Thursday and Im a bit scared. Just finished Interferon for one year- it's been a tough one and just ready for the final 3 months with Yervoy.

I had been diagnosed 1 year ago- stage 3 with 2mm minimal metastas in 1 lenf node. All lenf nodes removed in my left inguinal area. As you mentioned I am not wait and see type so we decided to make Yervoy to avoid recurrence. Fingers crossed – I am very curious and will be reading your posts. Hope I will not have severe side effects. Thanks for sharing and updates. They are very helpful since we don't know what to expect! 

Wishing you all the best and fast recovery with your nausea! take care 

Ekin

Hi Jen

I'm a new member in this community- just read your story and we have similar situations- unfortunately! just wanted to say hi and would like to have your comments if you have any- I will start Ipi/ yervoy treatment on Thursday and Im a bit scared. Just finished Interferon for one year- it's been a tough one and just ready for the final 3 months with Yervoy.

I had been diagnosed 1 year ago- stage 3 with 2mm minimal metastas in 1 lenf node. All lenf nodes removed in my left inguinal area. As you mentioned I am not wait and see type so we decided to make Yervoy to avoid recurrence. Fingers crossed – I am very curious and will be reading your posts. Hope I will not have severe side effects. Thanks for sharing and updates. They are very helpful since we don't know what to expect! 

Wishing you all the best and fast recovery with your nausea! take care 

Ekin

Sorry to hear that! but great to hear that your treatment is working. I finished Interferon and will start Yervoy 3mg / 4 doses- for protection. (I'm stage3) Fingers crossed. Wishing you all the best. 

Ekin

Sorry to hear that! but great to hear that your treatment is working. I finished Interferon and will start Yervoy 3mg / 4 doses- for protection. (I'm stage3) Fingers crossed. Wishing you all the best. 

Ekin

Sorry to hear that! but great to hear that your treatment is working. I finished Interferon and will start Yervoy 3mg / 4 doses- for protection. (I'm stage3) Fingers crossed. Wishing you all the best. 

Ekin