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Ed Everest
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Ed Everest

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      • June 13, 2013 at 5:57 pm
      Ed Everest
      Participant

        There's a thread started on 9th June 2013 called "Melanomas of the vujlva and vagina" here http://www.melanoma.org/community/mpip-melanoma-patients-information-page/melanomas-vulva-and-vagina which I think anyone diagnosed with melanoma of the vulva or vagina or cervix will find very useful reading. On Facebook there are two very active vulva cancer support and information groups which can be found by putting "vulva cancer" into the Facebook search window.
        Cheers – Ed

        • June 13, 2013 at 5:57 pm
        Ed Everest
        Participant

          There's a thread started on 9th June 2013 called "Melanomas of the vujlva and vagina" here http://www.melanoma.org/community/mpip-melanoma-patients-information-page/melanomas-vulva-and-vagina which I think anyone diagnosed with melanoma of the vulva or vagina or cervix will find very useful reading. On Facebook there are two very active vulva cancer support and information groups which can be found by putting "vulva cancer" into the Facebook search window.
          Cheers – Ed

          • June 13, 2013 at 5:57 pm
          Ed Everest
          Participant

            There's a thread started on 9th June 2013 called "Melanomas of the vujlva and vagina" here http://www.melanoma.org/community/mpip-melanoma-patients-information-page/melanomas-vulva-and-vagina which I think anyone diagnosed with melanoma of the vulva or vagina or cervix will find very useful reading. On Facebook there are two very active vulva cancer support and information groups which can be found by putting "vulva cancer" into the Facebook search window.
            Cheers – Ed

            • June 11, 2013 at 4:47 pm
            Ed Everest
            Participant

              Thanks Cindy and Cooper for commenting on this thread!
              Jerry I will advise the ladies in the vulva group about the existence of this thread and of your knowledge and the information and support you are posting here on mpip. I'll suggest they can search mpip for relevant posts, and if they join mpip they can go to your profile and find all your posts listed there 🙂  
              It's very encouraging to read that you and some other members here are doing well years after a diagnosis of mucosal melanoma. I didn't even know mm existed till a lady posted about it less than a month ago in the vulva group. Thanks again for your detailed post here and your offer of assistance 🙂  Good luck and blessings to you and to everyone with an mm visitation on mpip!

              • June 11, 2013 at 4:47 pm
              Ed Everest
              Participant

                Thanks Cindy and Cooper for commenting on this thread!
                Jerry I will advise the ladies in the vulva group about the existence of this thread and of your knowledge and the information and support you are posting here on mpip. I'll suggest they can search mpip for relevant posts, and if they join mpip they can go to your profile and find all your posts listed there 🙂  
                It's very encouraging to read that you and some other members here are doing well years after a diagnosis of mucosal melanoma. I didn't even know mm existed till a lady posted about it less than a month ago in the vulva group. Thanks again for your detailed post here and your offer of assistance 🙂  Good luck and blessings to you and to everyone with an mm visitation on mpip!

                • June 11, 2013 at 4:47 pm
                Ed Everest
                Participant

                  Thanks Cindy and Cooper for commenting on this thread!
                  Jerry I will advise the ladies in the vulva group about the existence of this thread and of your knowledge and the information and support you are posting here on mpip. I'll suggest they can search mpip for relevant posts, and if they join mpip they can go to your profile and find all your posts listed there 🙂  
                  It's very encouraging to read that you and some other members here are doing well years after a diagnosis of mucosal melanoma. I didn't even know mm existed till a lady posted about it less than a month ago in the vulva group. Thanks again for your detailed post here and your offer of assistance 🙂  Good luck and blessings to you and to everyone with an mm visitation on mpip!

                  • June 13, 2013 at 5:25 pm
                  Ed Everest
                  Participant

                    Thanks Jerry for the info about the Facebook Morning Glories group. I found the group by putting "Morning Glories" into the Facebook search window. Do you think I should put a link to it into my vulva cancer group – is it mostly about mucosal melanoma and do they want more members do you know?  Putting mucosal melanoma into the Facebook search window doesn't turn up any Facebook support groups.
                    Cheers – Ed

                    • June 13, 2013 at 5:25 pm
                    Ed Everest
                    Participant

                      Thanks Jerry for the info about the Facebook Morning Glories group. I found the group by putting "Morning Glories" into the Facebook search window. Do you think I should put a link to it into my vulva cancer group – is it mostly about mucosal melanoma and do they want more members do you know?  Putting mucosal melanoma into the Facebook search window doesn't turn up any Facebook support groups.
                      Cheers – Ed

                      • June 13, 2013 at 5:25 pm
                      Ed Everest
                      Participant

                        Thanks Jerry for the info about the Facebook Morning Glories group. I found the group by putting "Morning Glories" into the Facebook search window. Do you think I should put a link to it into my vulva cancer group – is it mostly about mucosal melanoma and do they want more members do you know?  Putting mucosal melanoma into the Facebook search window doesn't turn up any Facebook support groups.
                        Cheers – Ed

                        • June 10, 2013 at 8:12 pm
                        Ed Everest
                        Participant

                          The only item I've red is the one I've mentioned above, and the abstract to the scientific paper which can be found here http://dx.doi.org/10.1002/path.4204  To read the full paper would require you to part with some hard-earned lucre. I guess it will eventually be published free somewhere on the internet. It does sound like they are following a potentially valuable line of research and we could hope it might lead to new treatment options 🙂 

                          • June 10, 2013 at 8:12 pm
                          Ed Everest
                          Participant

                            The only item I've red is the one I've mentioned above, and the abstract to the scientific paper which can be found here http://dx.doi.org/10.1002/path.4204  To read the full paper would require you to part with some hard-earned lucre. I guess it will eventually be published free somewhere on the internet. It does sound like they are following a potentially valuable line of research and we could hope it might lead to new treatment options 🙂 

                            • June 10, 2013 at 8:12 pm
                            Ed Everest
                            Participant

                              The only item I've red is the one I've mentioned above, and the abstract to the scientific paper which can be found here http://dx.doi.org/10.1002/path.4204  To read the full paper would require you to part with some hard-earned lucre. I guess it will eventually be published free somewhere on the internet. It does sound like they are following a potentially valuable line of research and we could hope it might lead to new treatment options 🙂 

                              • June 10, 2013 at 8:03 pm
                              Ed Everest
                              Participant

                                Golly! Thanks Jerry for your very comprehensive reply and links. Sounds like you're a true mm warrior! I'll study your reply and the links and post a reply in due course – might take me a while 🙂

                                • June 10, 2013 at 8:03 pm
                                Ed Everest
                                Participant

                                  Golly! Thanks Jerry for your very comprehensive reply and links. Sounds like you're a true mm warrior! I'll study your reply and the links and post a reply in due course – might take me a while 🙂

                                  • June 10, 2013 at 8:03 pm
                                  Ed Everest
                                  Participant

                                    Golly! Thanks Jerry for your very comprehensive reply and links. Sounds like you're a true mm warrior! I'll study your reply and the links and post a reply in due course – might take me a while 🙂

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