Dynasysman

Hi Kimberly.  It took three months to get my pituitary system straightened out after two (yes, only two) doses of IPI last summer.  Mostly, I have been fine, but have occasional bouts of fatigue and depression about as bad as what I experienced immediately after IPI.  talk to your doctor ASAP.  They can help.

And congrats on staying NED!

Hi Kimberly.  It took three months to get my pituitary system straightened out after two (yes, only two) doses of IPI last summer.  Mostly, I have been fine, but have occasional bouts of fatigue and depression about as bad as what I experienced immediately after IPI.  talk to your doctor ASAP.  They can help.

And congrats on staying NED!

Hi Kimberly.  It took three months to get my pituitary system straightened out after two (yes, only two) doses of IPI last summer.  Mostly, I have been fine, but have occasional bouts of fatigue and depression about as bad as what I experienced immediately after IPI.  talk to your doctor ASAP.  They can help.

And congrats on staying NED!

Hi Mandi.  I am Stage 3a diagnosed in November, 2010, NED today.  I do not believe I have ever had a scan with no enlared lymph nodes…just part of life.  My most recent scan was Friday and revealed a coujple of small nodules in my left lung and one enlarged lymph nodes…but the nodules have been there forever and, as I say, I do not ever recall a scan without at least one enlarged lymph node.  Vandy is a good place, so I am sure you husband is getting excellent attention.

Hi Mandi.  I am Stage 3a diagnosed in November, 2010, NED today.  I do not believe I have ever had a scan with no enlared lymph nodes…just part of life.  My most recent scan was Friday and revealed a coujple of small nodules in my left lung and one enlarged lymph nodes…but the nodules have been there forever and, as I say, I do not ever recall a scan without at least one enlarged lymph node.  Vandy is a good place, so I am sure you husband is getting excellent attention.

Hi Mandi.  I am Stage 3a diagnosed in November, 2010, NED today.  I do not believe I have ever had a scan with no enlared lymph nodes…just part of life.  My most recent scan was Friday and revealed a coujple of small nodules in my left lung and one enlarged lymph nodes…but the nodules have been there forever and, as I say, I do not ever recall a scan without at least one enlarged lymph node.  Vandy is a good place, so I am sure you husband is getting excellent attention.

Hang tough, Linda,  a worldful of fellow warriors are sending healing thoughts, prayers, and vibes your way.

I'll be focusing on you being home to cook T'giving every morning and evening.

Best,

Roger

Hang tough, Linda,  a worldful of fellow warriors are sending healing thoughts, prayers, and vibes your way.

I'll be focusing on you being home to cook T'giving every morning and evening.

Best,

Roger

Hang tough, Linda,  a worldful of fellow warriors are sending healing thoughts, prayers, and vibes your way.

I'll be focusing on you being home to cook T'giving every morning and evening.

Best,

Roger

Charlie —

I agree with your contention that "unresectable" is political BS that allows insurance companies to deny coverage to credulous patients and ONCs.  However, we can use the language to our advantage…Say, for example, that you were a Stage 3a or b patient.  Now, perhaps your ONC decides s/he could not be confident that your Stage 3 tumor IS resectable.  S/he can declare it unresectable, start Yervoy, and then take the tumor out.  I know of cases where insurance has covered exactly this situation.

Charlie —

I agree with your contention that "unresectable" is political BS that allows insurance companies to deny coverage to credulous patients and ONCs.  However, we can use the language to our advantage…Say, for example, that you were a Stage 3a or b patient.  Now, perhaps your ONC decides s/he could not be confident that your Stage 3 tumor IS resectable.  S/he can declare it unresectable, start Yervoy, and then take the tumor out.  I know of cases where insurance has covered exactly this situation.

Charlie —

I agree with your contention that "unresectable" is political BS that allows insurance companies to deny coverage to credulous patients and ONCs.  However, we can use the language to our advantage…Say, for example, that you were a Stage 3a or b patient.  Now, perhaps your ONC decides s/he could not be confident that your Stage 3 tumor IS resectable.  S/he can declare it unresectable, start Yervoy, and then take the tumor out.  I know of cases where insurance has covered exactly this situation.

HI there,

I was browsing the board for no particular reason and found your post.  I haven't been here in a while.

My melanoma had an unknown Primary, so staging is a bit different, but I had a lymph node removed from my left posterior neck in November, 2010, and a recurring soft tissue tumor removed in July, 2011.  Since then, all tests have been clean and, except for permanent numbness in my neck and a greater appreciation for everyday life, things appear pretty much as before this happened.

Good luck in your journey.  As someone posted earlier in this thread, many stage 3's are treated and simply move on with their lives.

You can beat this.  Stay positive, take exceptional care of yourself, and feed on the love of family, friends, and stangers.

HI there,

I was browsing the board for no particular reason and found your post.  I haven't been here in a while.

My melanoma had an unknown Primary, so staging is a bit different, but I had a lymph node removed from my left posterior neck in November, 2010, and a recurring soft tissue tumor removed in July, 2011.  Since then, all tests have been clean and, except for permanent numbness in my neck and a greater appreciation for everyday life, things appear pretty much as before this happened.

Good luck in your journey.  As someone posted earlier in this thread, many stage 3's are treated and simply move on with their lives.

You can beat this.  Stay positive, take exceptional care of yourself, and feed on the love of family, friends, and stangers.

HI there,

I was browsing the board for no particular reason and found your post.  I haven't been here in a while.

My melanoma had an unknown Primary, so staging is a bit different, but I had a lymph node removed from my left posterior neck in November, 2010, and a recurring soft tissue tumor removed in July, 2011.  Since then, all tests have been clean and, except for permanent numbness in my neck and a greater appreciation for everyday life, things appear pretty much as before this happened.

Good luck in your journey.  As someone posted earlier in this thread, many stage 3's are treated and simply move on with their lives.

You can beat this.  Stay positive, take exceptional care of yourself, and feed on the love of family, friends, and stangers.