ALL lllB stage people

Great that you were able to walk and raise money in Relay for Life. Do not let this cancer keep you down.Keep it in the back not the front of of your thoughts.Stay as positive as you can.You will beat this.Keeping you in my prayers.Keep us posted on CT scan. Many of us are now beating this beast.Keep the faith. Keep living & loving.    Al

Great that you were able to walk and raise money in Relay for Life. Do not let this cancer keep you down.Keep it in the back not the front of of your thoughts.Stay as positive as you can.You will beat this.Keeping you in my prayers.Keep us posted on CT scan. Many of us are now beating this beast.Keep the faith. Keep living & loving.    Al

Great that you were able to walk and raise money in Relay for Life. Do not let this cancer keep you down.Keep it in the back not the front of of your thoughts.Stay as positive as you can.You will beat this.Keeping you in my prayers.Keep us posted on CT scan. Many of us are now beating this beast.Keep the faith. Keep living & loving.    Al

Alabama Girl,

I was diagnosed in Jan. 2010 with stage IIIb. The primary was on the bottom of my left foot. My  3rd surgery (to remove the lymph nodes in my left groin) was 25 Feb 2010, and there has been no evidence of disease since that time.

I also have anykylosing spondylitis, a form of arthritis, and during the last surgery they had to rotate my leg into a position that it does not normally go into. So while I have no evidence of cancer, I spent a very long time in a great amount of pain and could not walk, or stand, for more than a few minutes at a time. I finally told the right doctor about it, and did 6 months of various kinds of physical therapy. I am now better off than I was before the cancer experience in regards to my joint issues.

It has been a long 2+ years, and until I started feeling better in the last few months, I was pretty down at times. For awhile, I had to stop coming here and reading posts on the forums because it was just too depressing. Then I started to wonder if maybe, statistically, this is an unbalanced view. I choose to believe that the people who have recovered better, or faster, or with less side effects, or whatever, than I have, are out there living their lives and don't spend as much time here as I do. There certainly isn't anything wrong with spending a lot of time here. The information and support I have found here have helped me to cope and given me hope.

I guess what I'm trying to say is that, yes, a lot of people have died from this ugly disease and a lot more will, but we don't really know about all of the people who have moved on without looking back. I have read on this forum and spoken with people in my personal life about people who have had a higher staging that I do and went for years and even decades before it comes back.

Don't give up hope. It isn't over until it's over.

Valentine

Alabama Girl,

I was diagnosed in Jan. 2010 with stage IIIb. The primary was on the bottom of my left foot. My  3rd surgery (to remove the lymph nodes in my left groin) was 25 Feb 2010, and there has been no evidence of disease since that time.

I also have anykylosing spondylitis, a form of arthritis, and during the last surgery they had to rotate my leg into a position that it does not normally go into. So while I have no evidence of cancer, I spent a very long time in a great amount of pain and could not walk, or stand, for more than a few minutes at a time. I finally told the right doctor about it, and did 6 months of various kinds of physical therapy. I am now better off than I was before the cancer experience in regards to my joint issues.

It has been a long 2+ years, and until I started feeling better in the last few months, I was pretty down at times. For awhile, I had to stop coming here and reading posts on the forums because it was just too depressing. Then I started to wonder if maybe, statistically, this is an unbalanced view. I choose to believe that the people who have recovered better, or faster, or with less side effects, or whatever, than I have, are out there living their lives and don't spend as much time here as I do. There certainly isn't anything wrong with spending a lot of time here. The information and support I have found here have helped me to cope and given me hope.

I guess what I'm trying to say is that, yes, a lot of people have died from this ugly disease and a lot more will, but we don't really know about all of the people who have moved on without looking back. I have read on this forum and spoken with people in my personal life about people who have had a higher staging that I do and went for years and even decades before it comes back.

Don't give up hope. It isn't over until it's over.

Valentine

Alabama Girl,

I was diagnosed in Jan. 2010 with stage IIIb. The primary was on the bottom of my left foot. My  3rd surgery (to remove the lymph nodes in my left groin) was 25 Feb 2010, and there has been no evidence of disease since that time.

I also have anykylosing spondylitis, a form of arthritis, and during the last surgery they had to rotate my leg into a position that it does not normally go into. So while I have no evidence of cancer, I spent a very long time in a great amount of pain and could not walk, or stand, for more than a few minutes at a time. I finally told the right doctor about it, and did 6 months of various kinds of physical therapy. I am now better off than I was before the cancer experience in regards to my joint issues.

It has been a long 2+ years, and until I started feeling better in the last few months, I was pretty down at times. For awhile, I had to stop coming here and reading posts on the forums because it was just too depressing. Then I started to wonder if maybe, statistically, this is an unbalanced view. I choose to believe that the people who have recovered better, or faster, or with less side effects, or whatever, than I have, are out there living their lives and don't spend as much time here as I do. There certainly isn't anything wrong with spending a lot of time here. The information and support I have found here have helped me to cope and given me hope.

I guess what I'm trying to say is that, yes, a lot of people have died from this ugly disease and a lot more will, but we don't really know about all of the people who have moved on without looking back. I have read on this forum and spoken with people in my personal life about people who have had a higher staging that I do and went for years and even decades before it comes back.

Don't give up hope. It isn't over until it's over.

Valentine

Please have some hope!! I have been stage 4 for over 3 years…and of those 3 years I have been NED ( no evidence of disease) for 2 years.  I believe if I had been stage 4 a few years back I would be dead, but now is the time with the new immunotherapies we have hope! I amon MDX 1106 ( Anti PD-1).

Please have some hope!! I have been stage 4 for over 3 years…and of those 3 years I have been NED ( no evidence of disease) for 2 years.  I believe if I had been stage 4 a few years back I would be dead, but now is the time with the new immunotherapies we have hope! I amon MDX 1106 ( Anti PD-1).

Please have some hope!! I have been stage 4 for over 3 years…and of those 3 years I have been NED ( no evidence of disease) for 2 years.  I believe if I had been stage 4 a few years back I would be dead, but now is the time with the new immunotherapies we have hope! I amon MDX 1106 ( Anti PD-1).

Hi Alabama!

I am Stage 3a but since many stage 3ers don't hang around very long …they get better than move on with their lives I figured I'd reply.  I was dx in Jan 2010, last surgery March 2010.  Since that time I have been NED.  No other treatments except a complete lymph node dissection. 

I have had quite a few atypical moles removed and some BC but I had lots of sun damage.  I feel pretty good about my chances of beating this thing.  I think we all go through the doldrums but I just look at so many other people and think how lucky I am to be ONLY STAGE 3. 

Keep up the good work.

Mary

Hi Alabama!

I am Stage 3a but since many stage 3ers don't hang around very long …they get better than move on with their lives I figured I'd reply.  I was dx in Jan 2010, last surgery March 2010.  Since that time I have been NED.  No other treatments except a complete lymph node dissection. 

I have had quite a few atypical moles removed and some BC but I had lots of sun damage.  I feel pretty good about my chances of beating this thing.  I think we all go through the doldrums but I just look at so many other people and think how lucky I am to be ONLY STAGE 3. 

Keep up the good work.

Mary

Hi Alabama!

I am Stage 3a but since many stage 3ers don't hang around very long …they get better than move on with their lives I figured I'd reply.  I was dx in Jan 2010, last surgery March 2010.  Since that time I have been NED.  No other treatments except a complete lymph node dissection. 

I have had quite a few atypical moles removed and some BC but I had lots of sun damage.  I feel pretty good about my chances of beating this thing.  I think we all go through the doldrums but I just look at so many other people and think how lucky I am to be ONLY STAGE 3. 

Keep up the good work.

Mary

I was diagosed in June 2008 with a primary on my left fore arm (3.8 mm), ulcerated and 2 afffected nodes  – had my WLE on Sep 10th, and CLND on Oct 16th , 2008 –   took interferon for 8 months  – NED since then  – almost 4 years now  !!

I do a LOT of Yoga , eat a vegetarian diet and pray everyday.  Also, I completely avoid the mid-day Sun.

I was diagosed in June 2008 with a primary on my left fore arm (3.8 mm), ulcerated and 2 afffected nodes  – had my WLE on Sep 10th, and CLND on Oct 16th , 2008 –   took interferon for 8 months  – NED since then  – almost 4 years now  !!

I do a LOT of Yoga , eat a vegetarian diet and pray everyday.  Also, I completely avoid the mid-day Sun.

I was diagosed in June 2008 with a primary on my left fore arm (3.8 mm), ulcerated and 2 afffected nodes  – had my WLE on Sep 10th, and CLND on Oct 16th , 2008 –   took interferon for 8 months  – NED since then  – almost 4 years now  !!

I do a LOT of Yoga , eat a vegetarian diet and pray everyday.  Also, I completely avoid the mid-day Sun.

I was diagnosed in June 2010 at stage 3B with an unknown primary.  I had a complete LND in July 2010 and started the GSK DERMA vaccine clinical trial in Aug 2010.  I have been NED for 2 years now!!  I am anxious to see the responses you get because I hope lots of stage 3 folks are just living life and not even visiting here often.  I tend to check here regularly because I have learned so much from all the posts.  I do sometimes get down when there are lots of people advancing to stage 4 or having multiple recurrences or worse, but I also think that there is much to be gained by visiting here.  I try to get more exercise and eat a predominantly vegetarian diet.  I also pray daily for us all.

Michelle/3B

I was diagnosed in June 2010 at stage 3B with an unknown primary.  I had a complete LND in July 2010 and started the GSK DERMA vaccine clinical trial in Aug 2010.  I have been NED for 2 years now!!  I am anxious to see the responses you get because I hope lots of stage 3 folks are just living life and not even visiting here often.  I tend to check here regularly because I have learned so much from all the posts.  I do sometimes get down when there are lots of people advancing to stage 4 or having multiple recurrences or worse, but I also think that there is much to be gained by visiting here.  I try to get more exercise and eat a predominantly vegetarian diet.  I also pray daily for us all.

Michelle/3B

I was diagnosed in June 2010 at stage 3B with an unknown primary.  I had a complete LND in July 2010 and started the GSK DERMA vaccine clinical trial in Aug 2010.  I have been NED for 2 years now!!  I am anxious to see the responses you get because I hope lots of stage 3 folks are just living life and not even visiting here often.  I tend to check here regularly because I have learned so much from all the posts.  I do sometimes get down when there are lots of people advancing to stage 4 or having multiple recurrences or worse, but I also think that there is much to be gained by visiting here.  I try to get more exercise and eat a predominantly vegetarian diet.  I also pray daily for us all.

Michelle/3B

Hi all! I was diagnosed stage llla 7 years ago and have been happily living life! Here recently I was diagnosed with stage 3b due to an intransient metastasis. I had wide excision, lymph node disection and chemo/immune combo with stage llla diagnosis! My question to you stage lllb survivors is did you all do adjuvant immunotherapy?! I'm currently trying to decide what to do?! 

Thanks, 

kim 

Hi all! I was diagnosed stage llla 7 years ago and have been happily living life! Here recently I was diagnosed with stage 3b due to an intransient metastasis. I had wide excision, lymph node disection and chemo/immune combo with stage llla diagnosis! My question to you stage lllb survivors is did you all do adjuvant immunotherapy?! I'm currently trying to decide what to do?! 

Thanks, 

kim 

Hi all! I was diagnosed stage llla 7 years ago and have been happily living life! Here recently I was diagnosed with stage 3b due to an intransient metastasis. I had wide excision, lymph node disection and chemo/immune combo with stage llla diagnosis! My question to you stage lllb survivors is did you all do adjuvant immunotherapy?! I'm currently trying to decide what to do?! 

Thanks, 

kim