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IPI side effects 8 months after treatment
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IPI side effects 8 months after treatment

› Forums › General Melanoma Community › IPI side effects 8 months after treatment

  • Post
    • September 7, 2012 at 12:38 pm
    Kimberly Duncan Watts
    Participant
      Hi all! Have a quick question. I completed IPI treatment the first week in January. Side effects continued through March, but ebbed substantially. Yesterday, all these months later, I had effects as if I was in the middle of treatment. Couldn’t keep my eyes open I became so sleepy, then really bad itching, and when I was asleep I even drooled! Is this normal? And does it mean the Mel is rearing it’s ugly head again? I had scans last month and have been NED since March. Thanks for the input! Bless you all and keep fighting!!

      Hi all! Have a quick question. I completed IPI treatment the first week in January. Side effects continued through March, but ebbed substantially. Yesterday, all these months later, I had effects as if I was in the middle of treatment. Couldn’t keep my eyes open I became so sleepy, then really bad itching, and when I was asleep I even drooled! Is this normal? And does it mean the Mel is rearing it’s ugly head again? I had scans last month and have been NED since March. Thanks for the input! Bless you all and keep fighting!!

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    • Replies
        • September 7, 2012 at 1:12 pm
        POW
        Participant

          I recently read an oncology nurse's blog (I'm sorry but I can't remember where) and she said that side effects from ipi could show up many months after treatment. She also said that the sooner such side effects are treated, the better the outcome. So you should probably get a call in to your oncologist immediately.

          • September 7, 2012 at 1:12 pm
          POW
          Participant

            I recently read an oncology nurse's blog (I'm sorry but I can't remember where) and she said that side effects from ipi could show up many months after treatment. She also said that the sooner such side effects are treated, the better the outcome. So you should probably get a call in to your oncologist immediately.

            • September 7, 2012 at 1:12 pm
            POW
            Participant

              I recently read an oncology nurse's blog (I'm sorry but I can't remember where) and she said that side effects from ipi could show up many months after treatment. She also said that the sooner such side effects are treated, the better the outcome. So you should probably get a call in to your oncologist immediately.

              • September 8, 2012 at 12:45 am
              gabsound
              Participant
                Kimberly,

                I’m so glad to see you posting and that you are NED. Other than the itching which wasn’t severe, your side effects are different from what I experienced.

                If you are worried it is always safer to call than not.

                As for the drooling while sleeping , I think that’s a regular occurrence for me at least!

                Julie

                  • September 14, 2012 at 10:16 am
                  Kimberly Duncan Watts
                  Participant
                    Thanks! Julie, I’m glad I’m not the only one dribbling LOL!
                    • September 14, 2012 at 10:16 am
                    Kimberly Duncan Watts
                    Participant
                      Thanks! Julie, I’m glad I’m not the only one dribbling LOL!
                      • September 14, 2012 at 10:16 am
                      Kimberly Duncan Watts
                      Participant
                        Thanks! Julie, I’m glad I’m not the only one dribbling LOL!
                      • September 8, 2012 at 12:45 am
                      gabsound
                      Participant
                        Kimberly,

                        I’m so glad to see you posting and that you are NED. Other than the itching which wasn’t severe, your side effects are different from what I experienced.

                        If you are worried it is always safer to call than not.

                        As for the drooling while sleeping , I think that’s a regular occurrence for me at least!

                        Julie

                        • September 8, 2012 at 12:45 am
                        gabsound
                        Participant
                          Kimberly,

                          I’m so glad to see you posting and that you are NED. Other than the itching which wasn’t severe, your side effects are different from what I experienced.

                          If you are worried it is always safer to call than not.

                          As for the drooling while sleeping , I think that’s a regular occurrence for me at least!

                          Julie

                          • September 19, 2012 at 5:21 am
                          Dynasysman
                          Participant

                            Hi Kimberly.  It took three months to get my pituitary system straightened out after two (yes, only two) doses of IPI last summer.  Mostly, I have been fine, but have occasional bouts of fatigue and depression about as bad as what I experienced immediately after IPI.  talk to your doctor ASAP.  They can help.

                            And congrats on staying NED!

                            • September 19, 2012 at 5:21 am
                            Dynasysman
                            Participant

                              Hi Kimberly.  It took three months to get my pituitary system straightened out after two (yes, only two) doses of IPI last summer.  Mostly, I have been fine, but have occasional bouts of fatigue and depression about as bad as what I experienced immediately after IPI.  talk to your doctor ASAP.  They can help.

                              And congrats on staying NED!

                              • September 19, 2012 at 5:21 am
                              Dynasysman
                              Participant

                                Hi Kimberly.  It took three months to get my pituitary system straightened out after two (yes, only two) doses of IPI last summer.  Mostly, I have been fine, but have occasional bouts of fatigue and depression about as bad as what I experienced immediately after IPI.  talk to your doctor ASAP.  They can help.

                                And congrats on staying NED!

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