dsfarms13108

hi i just want you to know that although everything about melanoma is scary -there are people out there that have been there and learned as they went -lean on us -we are here for you -call us -ask us -the drs will tell you some stuff but the people that have lived it can tell you more about what you feel like or what to say to calm you down or answer weirds question s -also theses people have done things  trials and such that worked for them so the common rioute may not be wh at you need you may need a personalized route -ive gone the gammet with my odditites with the way drugs did or didnt work on me -i ve been stage 4 melanoma sight nonspecific since nov  2012  and have heard it all -ive been operated on left ovary removal -ive gotten lumps growing all over my trunk -ive now got two tumors in my brain and am getting cybr=er knife this week on those and am currently traveling every three weeks to boston mass to dana farber  cancer institute for a pd1 trial since july 2013  -that has been working with a 700 mile round trip every three weeks -itwas working til the brain thing popped up -but again live and learn and get thenm to get a plan and its not quite so scary -i trust the drs i have and they are AWESOME AT DANA FARBER -its aclinical trial thats working for my case -its amatter of what you r ok with -i was on zelboraf for 6 months and didnt do  well on that -side effects -i decided on immunotherapy  as this was the best chance for a long term help -not cure -but chance to keep it at bay longer -i wont say cure because they wont say it to me -so i go day by day and enjoy but im a spiritual person and i have cancer survivors in my family so i believe in a cure !!!!!!!!!!!!!!!!!!! I HAVE A NEW NORMAL BUT I LOVE LIFE AND I WILL BEAT THE BEAST the other thing is when i get down about stuff or worried -I THINK OF BUTTERFLIES AND RAINBOWS YOU CANT STAY UPSET IF YOU DWELL ON THE BEAUTY OF THOSE TWO THING S !!!!!!! PLEASE TRY THIS AND KNOW IM PRAYING FOR YOU WHEREVER YOU ARE IF YOU D LIKE YOU CAN EMAIL ME AND I WILL GIVE YOU MY NUMBER  PHONE -TAAKE CARE  AND LET OTHER PEOPLE HELP -GOD BLESS YOU CAN GETTTHRU THIS

hi i just want you to know that although everything about melanoma is scary -there are people out there that have been there and learned as they went -lean on us -we are here for you -call us -ask us -the drs will tell you some stuff but the people that have lived it can tell you more about what you feel like or what to say to calm you down or answer weirds question s -also theses people have done things  trials and such that worked for them so the common rioute may not be wh at you need you may need a personalized route -ive gone the gammet with my odditites with the way drugs did or didnt work on me -i ve been stage 4 melanoma sight nonspecific since nov  2012  and have heard it all -ive been operated on left ovary removal -ive gotten lumps growing all over my trunk -ive now got two tumors in my brain and am getting cybr=er knife this week on those and am currently traveling every three weeks to boston mass to dana farber  cancer institute for a pd1 trial since july 2013  -that has been working with a 700 mile round trip every three weeks -itwas working til the brain thing popped up -but again live and learn and get thenm to get a plan and its not quite so scary -i trust the drs i have and they are AWESOME AT DANA FARBER -its aclinical trial thats working for my case -its amatter of what you r ok with -i was on zelboraf for 6 months and didnt do  well on that -side effects -i decided on immunotherapy  as this was the best chance for a long term help -not cure -but chance to keep it at bay longer -i wont say cure because they wont say it to me -so i go day by day and enjoy but im a spiritual person and i have cancer survivors in my family so i believe in a cure !!!!!!!!!!!!!!!!!!! I HAVE A NEW NORMAL BUT I LOVE LIFE AND I WILL BEAT THE BEAST the other thing is when i get down about stuff or worried -I THINK OF BUTTERFLIES AND RAINBOWS YOU CANT STAY UPSET IF YOU DWELL ON THE BEAUTY OF THOSE TWO THING S !!!!!!! PLEASE TRY THIS AND KNOW IM PRAYING FOR YOU WHEREVER YOU ARE IF YOU D LIKE YOU CAN EMAIL ME AND I WILL GIVE YOU MY NUMBER  PHONE -TAAKE CARE  AND LET OTHER PEOPLE HELP -GOD BLESS YOU CAN GETTTHRU THIS

hi i just want you to know that although everything about melanoma is scary -there are people out there that have been there and learned as they went -lean on us -we are here for you -call us -ask us -the drs will tell you some stuff but the people that have lived it can tell you more about what you feel like or what to say to calm you down or answer weirds question s -also theses people have done things  trials and such that worked for them so the common rioute may not be wh at you need you may need a personalized route -ive gone the gammet with my odditites with the way drugs did or didnt work on me -i ve been stage 4 melanoma sight nonspecific since nov  2012  and have heard it all -ive been operated on left ovary removal -ive gotten lumps growing all over my trunk -ive now got two tumors in my brain and am getting cybr=er knife this week on those and am currently traveling every three weeks to boston mass to dana farber  cancer institute for a pd1 trial since july 2013  -that has been working with a 700 mile round trip every three weeks -itwas working til the brain thing popped up -but again live and learn and get thenm to get a plan and its not quite so scary -i trust the drs i have and they are AWESOME AT DANA FARBER -its aclinical trial thats working for my case -its amatter of what you r ok with -i was on zelboraf for 6 months and didnt do  well on that -side effects -i decided on immunotherapy  as this was the best chance for a long term help -not cure -but chance to keep it at bay longer -i wont say cure because they wont say it to me -so i go day by day and enjoy but im a spiritual person and i have cancer survivors in my family so i believe in a cure !!!!!!!!!!!!!!!!!!! I HAVE A NEW NORMAL BUT I LOVE LIFE AND I WILL BEAT THE BEAST the other thing is when i get down about stuff or worried -I THINK OF BUTTERFLIES AND RAINBOWS YOU CANT STAY UPSET IF YOU DWELL ON THE BEAUTY OF THOSE TWO THING S !!!!!!! PLEASE TRY THIS AND KNOW IM PRAYING FOR YOU WHEREVER YOU ARE IF YOU D LIKE YOU CAN EMAIL ME AND I WILL GIVE YOU MY NUMBER  PHONE -TAAKE CARE  AND LET OTHER PEOPLE HELP -GOD BLESS YOU CAN GETTTHRU THIS

I HAVE BEEN ON A MERCK PD1 TRIAL SINCE JULY 2013 AT DANA FARBER CANCER INSTITUTE IN BOSTON MASS.I HAVE BEEN A PARTIAL RESPONSE TO THE  PD1 AND HAVE HAD VERY FEW SIDE EFFECTS .THE ONLY REAL SIDE EFFFECTS I HAVE SEEN ARE MY EYELASHES TURNING WHITE AND FLU LIKE SYMPTOMS FOR A DAY AFTER INFUSION -TIRED ACHY A LITTLE . BEFORE THIS TRIAL I WAS TAKING ZELBORAF AND HAD EXTREME SIDE EFFECTS ,SO THESE ARE EASY FOR ME TO DEAL WITH .

I HAVE BEEN ON A MERCK PD1 TRIAL SINCE JULY 2013 AT DANA FARBER CANCER INSTITUTE IN BOSTON MASS.I HAVE BEEN A PARTIAL RESPONSE TO THE  PD1 AND HAVE HAD VERY FEW SIDE EFFECTS .THE ONLY REAL SIDE EFFFECTS I HAVE SEEN ARE MY EYELASHES TURNING WHITE AND FLU LIKE SYMPTOMS FOR A DAY AFTER INFUSION -TIRED ACHY A LITTLE . BEFORE THIS TRIAL I WAS TAKING ZELBORAF AND HAD EXTREME SIDE EFFECTS ,SO THESE ARE EASY FOR ME TO DEAL WITH .

I HAVE BEEN ON A MERCK PD1 TRIAL SINCE JULY 2013 AT DANA FARBER CANCER INSTITUTE IN BOSTON MASS.I HAVE BEEN A PARTIAL RESPONSE TO THE  PD1 AND HAVE HAD VERY FEW SIDE EFFECTS .THE ONLY REAL SIDE EFFFECTS I HAVE SEEN ARE MY EYELASHES TURNING WHITE AND FLU LIKE SYMPTOMS FOR A DAY AFTER INFUSION -TIRED ACHY A LITTLE . BEFORE THIS TRIAL I WAS TAKING ZELBORAF AND HAD EXTREME SIDE EFFECTS ,SO THESE ARE EASY FOR ME TO DEAL WITH .

i had ankle and feet swelling  on pd1  but the drs only had me elevate my feet and see if that helped -ive been on pd1 for 2 yrs in april  2015 -ive had uveitis -inflammation in eyes -but no major joint pain -i had excruciating debilitating joint pain from zelboraf  to the point i was almost wheelchair bound and my shoulders both froze up -but not on pd1 -eventually  after putting feet up when they were swollen and cutting back on salt intake and increasing water consumption  with the occasional advil  for pain   the swelling subsided .i have 2 brain mets too which were spot radiated almost a year ago and have had shrinkage -i also have trouble with migraines but thats something i had before so im on treatment for them . i hope this helps but you should call his dr and run it by them and they probably will have some sort of help for you -also i was told to try compression stocking s for swelling and see if that would help . you are both in my prayers and i hope he gets some relief soon . stay strong

shawn

i had ankle and feet swelling  on pd1  but the drs only had me elevate my feet and see if that helped -ive been on pd1 for 2 yrs in april  2015 -ive had uveitis -inflammation in eyes -but no major joint pain -i had excruciating debilitating joint pain from zelboraf  to the point i was almost wheelchair bound and my shoulders both froze up -but not on pd1 -eventually  after putting feet up when they were swollen and cutting back on salt intake and increasing water consumption  with the occasional advil  for pain   the swelling subsided .i have 2 brain mets too which were spot radiated almost a year ago and have had shrinkage -i also have trouble with migraines but thats something i had before so im on treatment for them . i hope this helps but you should call his dr and run it by them and they probably will have some sort of help for you -also i was told to try compression stocking s for swelling and see if that would help . you are both in my prayers and i hope he gets some relief soon . stay strong

shawn

i had ankle and feet swelling  on pd1  but the drs only had me elevate my feet and see if that helped -ive been on pd1 for 2 yrs in april  2015 -ive had uveitis -inflammation in eyes -but no major joint pain -i had excruciating debilitating joint pain from zelboraf  to the point i was almost wheelchair bound and my shoulders both froze up -but not on pd1 -eventually  after putting feet up when they were swollen and cutting back on salt intake and increasing water consumption  with the occasional advil  for pain   the swelling subsided .i have 2 brain mets too which were spot radiated almost a year ago and have had shrinkage -i also have trouble with migraines but thats something i had before so im on treatment for them . i hope this helps but you should call his dr and run it by them and they probably will have some sort of help for you -also i was told to try compression stocking s for swelling and see if that would help . you are both in my prayers and i hope he gets some relief soon . stay strong

shawn