Diane F
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Diane F

Forum Replies Created

Viewing 1 reply thread
  • Replies
      • November 17, 2018 at 2:26 pm
      Diane F
      Participant

      Hi Susan 🙂  He was diagnosed with melanoma during a craniotomy to remove tumors.  After two months of symptoms of lower spinal cord impact, an MRI of the spine and a lumbar puncture confirmed it was at leptomeningeal stage.  Drs. should have done puncture right away but he appeared too healthy (still working 5 days a week) to have leptomenigeal melanoma.  Wishing you strength and courage right back…this caregiving stuff is not something I ever anticipated-I mean who does…

      • November 17, 2018 at 2:20 pm
      Diane F
      Participant

      "SCANXIETY" WOW.  perfect word.  wish I knew about this stage before it came out of nowhere and smacked me hard 🙂  certainly explains the new levels of anxiety never before achieved….thank you for the good wishes and same to you…

      • November 17, 2018 at 2:18 pm
      Diane F
      Participant

      I'm so happy for you, Lauren, that you're "no evidence of disease".  That's amazing.  And thanks for the internet hug 🙂  This community is really lovely…

      • November 17, 2018 at 2:15 pm
      Diane F
      Participant

      Thank you so much, Rich, for responding. I guess this is yet another stage in the cancer fight…the anxiety of waiting to find out if all we've been through has been successful or not.  I love your word, "hopeyness".  That's great…I'm filing that away 🙂

      Diane

Viewing 1 reply thread
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics