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Diane F

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      Diane F
      Participant

        Hi Susan 🙂  He was diagnosed with melanoma during a craniotomy to remove tumors.  After two months of symptoms of lower spinal cord impact, an MRI of the spine and a lumbar puncture confirmed it was at leptomeningeal stage.  Drs. should have done puncture right away but he appeared too healthy (still working 5 days a week) to have leptomenigeal melanoma.  Wishing you strength and courage right back…this caregiving stuff is not something I ever anticipated-I mean who does…

        Diane F
        Participant

          "SCANXIETY" WOW.  perfect word.  wish I knew about this stage before it came out of nowhere and smacked me hard 🙂  certainly explains the new levels of anxiety never before achieved….thank you for the good wishes and same to you…

          Diane F
          Participant

            I'm so happy for you, Lauren, that you're "no evidence of disease".  That's amazing.  And thanks for the internet hug 🙂  This community is really lovely…

            Diane F
            Participant

              Thank you so much, Rich, for responding. I guess this is yet another stage in the cancer fight…the anxiety of waiting to find out if all we've been through has been successful or not.  I love your word, "hopeyness".  That's great…I'm filing that away 🙂

              Diane

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