Forum Replies Created
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- August 6, 2014 at 2:14 pm
I did the Ipi/Yervoy last year and the oncologist deemed it a failure. He started me on Braf/MEK in May. I had a scan last week and out of the 15 internal metasteses I had, 11 are "resolved", 1 shrunk more than 1 cm and the other 4 in my brain are still in question as I'm getting a Brain MRI next week. They were too small to show up on the PET scan.
My Doctor seems to think that the Yervoy is actually helping the Braf/MEK as I had some spots disappear very early on with the Braf/MEK. Either way, the Braf/MEK is definitely working and I'm glad to hear that the expected extension of wellness is 25 months, not just 10.
Good luck to your husband!
Dave
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- August 6, 2014 at 2:14 pm
I did the Ipi/Yervoy last year and the oncologist deemed it a failure. He started me on Braf/MEK in May. I had a scan last week and out of the 15 internal metasteses I had, 11 are "resolved", 1 shrunk more than 1 cm and the other 4 in my brain are still in question as I'm getting a Brain MRI next week. They were too small to show up on the PET scan.
My Doctor seems to think that the Yervoy is actually helping the Braf/MEK as I had some spots disappear very early on with the Braf/MEK. Either way, the Braf/MEK is definitely working and I'm glad to hear that the expected extension of wellness is 25 months, not just 10.
Good luck to your husband!
Dave
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- August 6, 2014 at 2:14 pm
I did the Ipi/Yervoy last year and the oncologist deemed it a failure. He started me on Braf/MEK in May. I had a scan last week and out of the 15 internal metasteses I had, 11 are "resolved", 1 shrunk more than 1 cm and the other 4 in my brain are still in question as I'm getting a Brain MRI next week. They were too small to show up on the PET scan.
My Doctor seems to think that the Yervoy is actually helping the Braf/MEK as I had some spots disappear very early on with the Braf/MEK. Either way, the Braf/MEK is definitely working and I'm glad to hear that the expected extension of wellness is 25 months, not just 10.
Good luck to your husband!
Dave
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- June 16, 2014 at 6:23 pm
You have stage IV, not 3 or 2. So from what my oncologists tell me, you're going to have more and more spots pop up inside you, just like I did. Cutting it out is such a temporary fix as is a cyber knife. Radiation on your lungs may be a better alternative. But there are bettter options out there for a Stage IV patient.
I don't recommend Yervoy, because it didn't work for me AND I got every side effect possible.
Ask your Oncologist about getting on B-Raf/MEK. 76% chance it will shrink, stabiliize or cure your Melanoma. I just started taking this again………..due to some issues with taking it to start with and changing doses and such. One of the other good parts is that you will know in 8 weeks whether or not it's working. Then you can go pursue other options.
Make smart choices! I know it's hard to do with all the different opinions and new options.
Good luck to you!
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- June 16, 2014 at 6:23 pm
You have stage IV, not 3 or 2. So from what my oncologists tell me, you're going to have more and more spots pop up inside you, just like I did. Cutting it out is such a temporary fix as is a cyber knife. Radiation on your lungs may be a better alternative. But there are bettter options out there for a Stage IV patient.
I don't recommend Yervoy, because it didn't work for me AND I got every side effect possible.
Ask your Oncologist about getting on B-Raf/MEK. 76% chance it will shrink, stabiliize or cure your Melanoma. I just started taking this again………..due to some issues with taking it to start with and changing doses and such. One of the other good parts is that you will know in 8 weeks whether or not it's working. Then you can go pursue other options.
Make smart choices! I know it's hard to do with all the different opinions and new options.
Good luck to you!
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- June 16, 2014 at 6:23 pm
You have stage IV, not 3 or 2. So from what my oncologists tell me, you're going to have more and more spots pop up inside you, just like I did. Cutting it out is such a temporary fix as is a cyber knife. Radiation on your lungs may be a better alternative. But there are bettter options out there for a Stage IV patient.
I don't recommend Yervoy, because it didn't work for me AND I got every side effect possible.
Ask your Oncologist about getting on B-Raf/MEK. 76% chance it will shrink, stabiliize or cure your Melanoma. I just started taking this again………..due to some issues with taking it to start with and changing doses and such. One of the other good parts is that you will know in 8 weeks whether or not it's working. Then you can go pursue other options.
Make smart choices! I know it's hard to do with all the different opinions and new options.
Good luck to you!
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- May 7, 2014 at 7:18 pm
I finished my fourth dose of Yervoy last November. From my experience and from what I've read of others, nobody typically develops a spring in their step by the 3rd dose. It was at my 3rd treatment where I lost my spring in my step. The first one was fine, second one got rougher and the third was down right painful.
I'm not trying to be the bearer of bad news, but you need to be prepared for the worst. The only consist thing about Yervoy is that EVERYONE has unique reactions, side effects, and results. Call the manufacturer. Sign up for their online support. Get a 2nd Doctor's opinion.
What your doctor told you sounds like he is ill informed about Ipi/Yervoy and you may want to seek others opinions.
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- May 7, 2014 at 7:18 pm
I finished my fourth dose of Yervoy last November. From my experience and from what I've read of others, nobody typically develops a spring in their step by the 3rd dose. It was at my 3rd treatment where I lost my spring in my step. The first one was fine, second one got rougher and the third was down right painful.
I'm not trying to be the bearer of bad news, but you need to be prepared for the worst. The only consist thing about Yervoy is that EVERYONE has unique reactions, side effects, and results. Call the manufacturer. Sign up for their online support. Get a 2nd Doctor's opinion.
What your doctor told you sounds like he is ill informed about Ipi/Yervoy and you may want to seek others opinions.
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- May 7, 2014 at 7:18 pm
I finished my fourth dose of Yervoy last November. From my experience and from what I've read of others, nobody typically develops a spring in their step by the 3rd dose. It was at my 3rd treatment where I lost my spring in my step. The first one was fine, second one got rougher and the third was down right painful.
I'm not trying to be the bearer of bad news, but you need to be prepared for the worst. The only consist thing about Yervoy is that EVERYONE has unique reactions, side effects, and results. Call the manufacturer. Sign up for their online support. Get a 2nd Doctor's opinion.
What your doctor told you sounds like he is ill informed about Ipi/Yervoy and you may want to seek others opinions.
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- April 30, 2014 at 7:39 pm
Geez, that's some uplifting news for people going through the trials and tribulations of battling Melanoma.
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- April 30, 2014 at 7:39 pm
Geez, that's some uplifting news for people going through the trials and tribulations of battling Melanoma.
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- April 30, 2014 at 7:39 pm
Geez, that's some uplifting news for people going through the trials and tribulations of battling Melanoma.
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- May 1, 2014 at 8:07 pm
Thanks for all the help everyone! I really appreciate it.
One question: On the Social Security Disablity website they say you have to be not working to even apply. I am currently still working. Can I still apply and get approved?
Thanks again.
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- May 1, 2014 at 8:07 pm
Thanks for all the help everyone! I really appreciate it.
One question: On the Social Security Disablity website they say you have to be not working to even apply. I am currently still working. Can I still apply and get approved?
Thanks again.
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- May 1, 2014 at 8:07 pm
Thanks for all the help everyone! I really appreciate it.
One question: On the Social Security Disablity website they say you have to be not working to even apply. I am currently still working. Can I still apply and get approved?
Thanks again.
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