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clgardner
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clgardner

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      • August 29, 2021 at 8:58 pm
      clgardner
      Participant
        This is extremely insightful. Thank you for sharing. How long after did it take for your immune system and red blood cell count to go back to normal and resume a good quality of life? Any insight to if it’s working following your recent scans?

        Thanks for giving such a detailed account. Much more informative than other articles I’ve read

        wishing you all the best

        clare

        • August 14, 2021 at 5:17 pm
        clgardner
        Participant
          Thanks Ellen,

          Good luck with the Keytruda. I’ve heard lots of success stories about it and hope yours can be added to that list.

          Going in for a bronchoscopy on Wednesday and the. We’ll go from there once we have the results.

          glad to hear the biopsy recovery went well and is quick!

          clare

          • August 11, 2021 at 5:37 pm
          clgardner
          Participant
            Hi all,

            I absolutely love reading all your personal stories. It fills me with lots of hope.

            Thanks you for sharing

            Clare

            • November 14, 2018 at 4:10 pm
            clgardner
            Participant

              That’s great news, so happy for you both on having the drain removed, and more importantly the NED! My pathology report came back yesterday with the same results, so am extremely happy about this. Can’t wait to have this drain out it’s extremely annoying and limiting! 

              Congrats on the good news

              • November 13, 2018 at 11:28 pm
              clgardner
              Participant

                Thanks Lauren, your posts have been very helpful & it’s good to manage my expectation around timing. Thanks again

                • November 13, 2018 at 6:15 pm
                clgardner
                Participant

                  Hi Marie, sounds like we are in a very similar situation. Thanks for the response. Glad you are down to one drain. Thankfully I only had one drain in after the surgery. Drainage seems to have stabilized at >100ml per day & getting it down to <30ml seems like a long way off!

                  i managed to convince the doctor to only sign me off work for 4 weeks, then I plan on working from home & doing half days for a couple of weeks after that (if I can manage to sit upright at a desk by then!).

                  Good to hear the burning sensation above the knee is normal, I did find it a bit strange. Hoping I can get out of the house even if only for short walks next week. Hope your recovery goes well, and hoping you manage to occupy your time !

                  Clare 

                  • November 13, 2018 at 3:58 am
                  clgardner
                  Participant

                    Great, thanks. Dr. Ross is my surgical oncologist and Dr Aimara is my medical oncologist. Meeting in a week to finalize immunotherapy options. Read your profile, and the first part sounds very similar to mine. Really hope your treatment is going well and working

                    • November 13, 2018 at 1:24 am
                    clgardner
                    Participant

                      Thank you for sharing. So sorry you had a bad experience & it affected your recovery. Good information about activity increasing drainage & delayed removal. I was thinking that the more I could walk around, although higher drainage, it would get it all out quicker. Think I’ll  do more resting.no lymphadema yet, but hard to tell as upper thigh area still swollen from surgery. Thanks again, and hope lymphadema is manageable

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