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cgranger

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      cgranger
      Participant

        Tom, I had my first ipi on Nov. 27, along with an immuno-embolization.  I'm happy to say i have had no side effects – just a little tired, but no rash, no digestive issues, no eye blurring.  In a couple of weeks I go for #2 on each – I know how to start the new year!   Good luck to you.  Not a great response rate overall, but I figure it's worth a shot.   Carol

        cgranger
        Participant

          Tom, I had my first ipi on Nov. 27, along with an immuno-embolization.  I'm happy to say i have had no side effects – just a little tired, but no rash, no digestive issues, no eye blurring.  In a couple of weeks I go for #2 on each – I know how to start the new year!   Good luck to you.  Not a great response rate overall, but I figure it's worth a shot.   Carol

          cgranger
          Participant

            Tom, I had my first ipi on Nov. 27, along with an immuno-embolization.  I'm happy to say i have had no side effects – just a little tired, but no rash, no digestive issues, no eye blurring.  In a couple of weeks I go for #2 on each – I know how to start the new year!   Good luck to you.  Not a great response rate overall, but I figure it's worth a shot.   Carol

            cgranger
            Participant

              Elaine, this is too important – just go to the Shields, worry about the business issues later.  They have the most experience.  I, too, was caught in insurance tangles, and it took 18 months to resolve, it's part of the fight.  At least go for a second opinion, and pay out-of-pocket for a consult if necessary.

              cgranger
              Participant

                Elaine, this is too important – just go to the Shields, worry about the business issues later.  They have the most experience.  I, too, was caught in insurance tangles, and it took 18 months to resolve, it's part of the fight.  At least go for a second opinion, and pay out-of-pocket for a consult if necessary.

                cgranger
                Participant

                  Elaine, this is too important – just go to the Shields, worry about the business issues later.  They have the most experience.  I, too, was caught in insurance tangles, and it took 18 months to resolve, it's part of the fight.  At least go for a second opinion, and pay out-of-pocket for a consult if necessary.

                  cgranger
                  Participant

                    Further, I think it is outside the scope of an optometrist's practice – they should send patient to an opthalmologist for diagnosis of any suspicious "spot".   I am indebted to my optometrist for noticing my tumor, and later when I talked with him, he said mine was the first he had seen in his entire career, and they only had something like a 4 hour course on ocular melanoma in school.

                    cgranger
                    Participant

                      Further, I think it is outside the scope of an optometrist's practice – they should send patient to an opthalmologist for diagnosis of any suspicious "spot".   I am indebted to my optometrist for noticing my tumor, and later when I talked with him, he said mine was the first he had seen in his entire career, and they only had something like a 4 hour course on ocular melanoma in school.

                      cgranger
                      Participant

                        Further, I think it is outside the scope of an optometrist's practice – they should send patient to an opthalmologist for diagnosis of any suspicious "spot".   I am indebted to my optometrist for noticing my tumor, and later when I talked with him, he said mine was the first he had seen in his entire career, and they only had something like a 4 hour course on ocular melanoma in school.

                        cgranger
                        Participant

                          The past couple of days I've caught myself frequently scratching various places.  So I look at that as a good sign – maybe it's the ipi-itch, and an indication that I'm having some response.

                          My infusion#2 is New Years Eve Day.

                          Hope you've discovered the Reading Terminal Market – great place to graze, take in the sights and smells, buy candied ginger, listen to piano music.   We got a good priceline deal at Loew's – be sure to check out the elaborate Charles Dickens animated figures on display at Macy's (the old historical Wannamaker dept store on Market near city hall).

                           

                          cgranger
                          Participant

                            The past couple of days I've caught myself frequently scratching various places.  So I look at that as a good sign – maybe it's the ipi-itch, and an indication that I'm having some response.

                            My infusion#2 is New Years Eve Day.

                            Hope you've discovered the Reading Terminal Market – great place to graze, take in the sights and smells, buy candied ginger, listen to piano music.   We got a good priceline deal at Loew's – be sure to check out the elaborate Charles Dickens animated figures on display at Macy's (the old historical Wannamaker dept store on Market near city hall).

                             

                            cgranger
                            Participant

                              The past couple of days I've caught myself frequently scratching various places.  So I look at that as a good sign – maybe it's the ipi-itch, and an indication that I'm having some response.

                              My infusion#2 is New Years Eve Day.

                              Hope you've discovered the Reading Terminal Market – great place to graze, take in the sights and smells, buy candied ginger, listen to piano music.   We got a good priceline deal at Loew's – be sure to check out the elaborate Charles Dickens animated figures on display at Macy's (the old historical Wannamaker dept store on Market near city hall).

                               

                              cgranger
                              Participant

                                Hi Esther,

                                "Not so bad" and stable sounds pretty good.

                                Thinking of you, Carol

                                 

                                BTW, re the PHP: I'm sure you remember Bill Darker – he had a pretty rough time of it with 2 or 3 of those treatments.  And I'm pretty sure Delcath pulled it off the mkt for quite a while.  Good luck with your other plan…

                                cgranger
                                Participant

                                  Hi Esther,

                                  "Not so bad" and stable sounds pretty good.

                                  Thinking of you, Carol

                                   

                                  BTW, re the PHP: I'm sure you remember Bill Darker – he had a pretty rough time of it with 2 or 3 of those treatments.  And I'm pretty sure Delcath pulled it off the mkt for quite a while.  Good luck with your other plan…

                                  cgranger
                                  Participant

                                    Hi Esther,

                                    "Not so bad" and stable sounds pretty good.

                                    Thinking of you, Carol

                                     

                                    BTW, re the PHP: I'm sure you remember Bill Darker – he had a pretty rough time of it with 2 or 3 of those treatments.  And I'm pretty sure Delcath pulled it off the mkt for quite a while.  Good luck with your other plan…

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