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cgranger

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      cgranger
      Participant

      Tom, I had my first ipi on Nov. 27, along with an immuno-embolization.  I'm happy to say i have had no side effects – just a little tired, but no rash, no digestive issues, no eye blurring.  In a couple of weeks I go for #2 on each – I know how to start the new year!   Good luck to you.  Not a great response rate overall, but I figure it's worth a shot.   Carol

      cgranger
      Participant

      Tom, I had my first ipi on Nov. 27, along with an immuno-embolization.  I'm happy to say i have had no side effects – just a little tired, but no rash, no digestive issues, no eye blurring.  In a couple of weeks I go for #2 on each – I know how to start the new year!   Good luck to you.  Not a great response rate overall, but I figure it's worth a shot.   Carol

      cgranger
      Participant

      Tom, I had my first ipi on Nov. 27, along with an immuno-embolization.  I'm happy to say i have had no side effects – just a little tired, but no rash, no digestive issues, no eye blurring.  In a couple of weeks I go for #2 on each – I know how to start the new year!   Good luck to you.  Not a great response rate overall, but I figure it's worth a shot.   Carol

      cgranger
      Participant

      Elaine, this is too important – just go to the Shields, worry about the business issues later.  They have the most experience.  I, too, was caught in insurance tangles, and it took 18 months to resolve, it's part of the fight.  At least go for a second opinion, and pay out-of-pocket for a consult if necessary.

      cgranger
      Participant

      Elaine, this is too important – just go to the Shields, worry about the business issues later.  They have the most experience.  I, too, was caught in insurance tangles, and it took 18 months to resolve, it's part of the fight.  At least go for a second opinion, and pay out-of-pocket for a consult if necessary.

      cgranger
      Participant

      Elaine, this is too important – just go to the Shields, worry about the business issues later.  They have the most experience.  I, too, was caught in insurance tangles, and it took 18 months to resolve, it's part of the fight.  At least go for a second opinion, and pay out-of-pocket for a consult if necessary.

      cgranger
      Participant

      Further, I think it is outside the scope of an optometrist's practice – they should send patient to an opthalmologist for diagnosis of any suspicious "spot".   I am indebted to my optometrist for noticing my tumor, and later when I talked with him, he said mine was the first he had seen in his entire career, and they only had something like a 4 hour course on ocular melanoma in school.

      cgranger
      Participant

      Further, I think it is outside the scope of an optometrist's practice – they should send patient to an opthalmologist for diagnosis of any suspicious "spot".   I am indebted to my optometrist for noticing my tumor, and later when I talked with him, he said mine was the first he had seen in his entire career, and they only had something like a 4 hour course on ocular melanoma in school.

      cgranger
      Participant

      Further, I think it is outside the scope of an optometrist's practice – they should send patient to an opthalmologist for diagnosis of any suspicious "spot".   I am indebted to my optometrist for noticing my tumor, and later when I talked with him, he said mine was the first he had seen in his entire career, and they only had something like a 4 hour course on ocular melanoma in school.

      cgranger
      Participant

      The past couple of days I've caught myself frequently scratching various places.  So I look at that as a good sign – maybe it's the ipi-itch, and an indication that I'm having some response.

      My infusion#2 is New Years Eve Day.

      Hope you've discovered the Reading Terminal Market – great place to graze, take in the sights and smells, buy candied ginger, listen to piano music.   We got a good priceline deal at Loew's – be sure to check out the elaborate Charles Dickens animated figures on display at Macy's (the old historical Wannamaker dept store on Market near city hall).

       

      cgranger
      Participant

      The past couple of days I've caught myself frequently scratching various places.  So I look at that as a good sign – maybe it's the ipi-itch, and an indication that I'm having some response.

      My infusion#2 is New Years Eve Day.

      Hope you've discovered the Reading Terminal Market – great place to graze, take in the sights and smells, buy candied ginger, listen to piano music.   We got a good priceline deal at Loew's – be sure to check out the elaborate Charles Dickens animated figures on display at Macy's (the old historical Wannamaker dept store on Market near city hall).

       

      cgranger
      Participant

      The past couple of days I've caught myself frequently scratching various places.  So I look at that as a good sign – maybe it's the ipi-itch, and an indication that I'm having some response.

      My infusion#2 is New Years Eve Day.

      Hope you've discovered the Reading Terminal Market – great place to graze, take in the sights and smells, buy candied ginger, listen to piano music.   We got a good priceline deal at Loew's – be sure to check out the elaborate Charles Dickens animated figures on display at Macy's (the old historical Wannamaker dept store on Market near city hall).

       

      cgranger
      Participant

      Hi Esther,

      "Not so bad" and stable sounds pretty good.

      Thinking of you, Carol

       

      BTW, re the PHP: I'm sure you remember Bill Darker – he had a pretty rough time of it with 2 or 3 of those treatments.  And I'm pretty sure Delcath pulled it off the mkt for quite a while.  Good luck with your other plan…

      cgranger
      Participant

      Hi Esther,

      "Not so bad" and stable sounds pretty good.

      Thinking of you, Carol

       

      BTW, re the PHP: I'm sure you remember Bill Darker – he had a pretty rough time of it with 2 or 3 of those treatments.  And I'm pretty sure Delcath pulled it off the mkt for quite a while.  Good luck with your other plan…

      cgranger
      Participant

      Hi Esther,

      "Not so bad" and stable sounds pretty good.

      Thinking of you, Carol

       

      BTW, re the PHP: I'm sure you remember Bill Darker – he had a pretty rough time of it with 2 or 3 of those treatments.  And I'm pretty sure Delcath pulled it off the mkt for quite a while.  Good luck with your other plan…

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