cep3700

Thank you all so much! I really appreciate hearing others perspectives on what to do, expecially people who have been in similar situations. All of these red tape and technical situations were driving me crazy, but I was starting to feel like maybe this is just how things were going to go. After reading your advice I am going to definitely make a nuisance of myself with the hospitals, drs, insurance etc. !!!

Thank you all so much for your encouragement and advice, it really helps. I really appreciate you all taking the time to reply and looking up info for us. I  will post updates on the progress. 

THANK YOU!

Thank you all so much! I really appreciate hearing others perspectives on what to do, expecially people who have been in similar situations. All of these red tape and technical situations were driving me crazy, but I was starting to feel like maybe this is just how things were going to go. After reading your advice I am going to definitely make a nuisance of myself with the hospitals, drs, insurance etc. !!!

Thank you all so much for your encouragement and advice, it really helps. I really appreciate you all taking the time to reply and looking up info for us. I  will post updates on the progress. 

THANK YOU!

Thank you all so much! I really appreciate hearing others perspectives on what to do, expecially people who have been in similar situations. All of these red tape and technical situations were driving me crazy, but I was starting to feel like maybe this is just how things were going to go. After reading your advice I am going to definitely make a nuisance of myself with the hospitals, drs, insurance etc. !!!

Thank you all so much for your encouragement and advice, it really helps. I really appreciate you all taking the time to reply and looking up info for us. I  will post updates on the progress. 

THANK YOU!

Hi everyone, 

My mother is doing much better here at MDA, she is out of the ICU and they have started her on the Dabfranib Mek combo. I am so happy I found this forum because this is where I learned about the combo treatment as an alternative to Zelboraf, which is all I have read about before. I really think the combo was the best choice for my mother. I am so happy that we are at MDA and the care she's been receiving has been so wonderful. 

Thank you all, 

Colleen 

Hi everyone, 

My mother is doing much better here at MDA, she is out of the ICU and they have started her on the Dabfranib Mek combo. I am so happy I found this forum because this is where I learned about the combo treatment as an alternative to Zelboraf, which is all I have read about before. I really think the combo was the best choice for my mother. I am so happy that we are at MDA and the care she's been receiving has been so wonderful. 

Thank you all, 

Colleen 

Hi everyone, 

My mother is doing much better here at MDA, she is out of the ICU and they have started her on the Dabfranib Mek combo. I am so happy I found this forum because this is where I learned about the combo treatment as an alternative to Zelboraf, which is all I have read about before. I really think the combo was the best choice for my mother. I am so happy that we are at MDA and the care she's been receiving has been so wonderful. 

Thank you all, 

Colleen 

Thank you both very much, my mother is now at MDA in the ICU, what our dr's in LA were saying was "normal side effects" from the WBR was actually her brain bleeding. Im so happy I brought her to MDA, it is amazing, and we both feel so much better now that we are here. Thanks everyone.

-Colleen 

Thank you both very much, my mother is now at MDA in the ICU, what our dr's in LA were saying was "normal side effects" from the WBR was actually her brain bleeding. Im so happy I brought her to MDA, it is amazing, and we both feel so much better now that we are here. Thanks everyone.

-Colleen 

Thank you both very much, my mother is now at MDA in the ICU, what our dr's in LA were saying was "normal side effects" from the WBR was actually her brain bleeding. Im so happy I brought her to MDA, it is amazing, and we both feel so much better now that we are here. Thanks everyone.

-Colleen 

Thank you both for your advice, I have a couple more questions; 

We cant stay in baton rouge anymore, the radiation machine keeps breaking and my mother cannot get the radiation that she has already started could  they finish the WBR at md anderson? (she has 5 days left) Does it normally take a long time for the zelboraf to come in? 

Thanks for all of your support

Thank you both for your advice, I have a couple more questions; 

We cant stay in baton rouge anymore, the radiation machine keeps breaking and my mother cannot get the radiation that she has already started could  they finish the WBR at md anderson? (she has 5 days left) Does it normally take a long time for the zelboraf to come in? 

Thanks for all of your support

Thank you both for your advice, I have a couple more questions; 

We cant stay in baton rouge anymore, the radiation machine keeps breaking and my mother cannot get the radiation that she has already started could  they finish the WBR at md anderson? (she has 5 days left) Does it normally take a long time for the zelboraf to come in? 

Thanks for all of your support