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Bugandi
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Bugandi

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      • September 12, 2010 at 4:25 am
      Bugandi
      Participant

        Hi,

        I have been through this radiation twice, in 2 different areas.  Once was head and neck, 5 treatments over 15 days in 2007, and then again 3 months ago on the groin area,.  I did this both times at Mayo Clinic in Minnesota.  I have been told by the radiation oncologists there that this has been shown to be more effective than conventional radiation.  At any rate, I'll be happy to answer any questions I can for you.

        Thanks

        Bryan

        • September 12, 2010 at 4:25 am
        Bugandi
        Participant

          Hi,

          I have been through this radiation twice, in 2 different areas.  Once was head and neck, 5 treatments over 15 days in 2007, and then again 3 months ago on the groin area,.  I did this both times at Mayo Clinic in Minnesota.  I have been told by the radiation oncologists there that this has been shown to be more effective than conventional radiation.  At any rate, I'll be happy to answer any questions I can for you.

          Thanks

          Bryan

          • September 12, 2010 at 4:19 am
          Bugandi
          Participant

            Hi,

            I was diagnosed with Conjunctival melanoma in 2005.  Not sure which for of occular melanoma you have.   At any rate, I went through 2 surgerys where the tumor was removed from the conjunctiva, and in 2007, the tumor returned behind my left eye.  I had surery at mayo clinic in minnesota, where I lost my left eye because the tumor was so large, and the margins needed didn't allow me to keep my eyelids either.  My eye was sewn shut.  I then went through some intense radiation followed by a regimen of leukine treatments.  At first it was a little difficult to cope, but have come a long way in the last 3 years.  I did have a recurrence recently in my groin.  Luckily, I still have perfect vision in my right eye.  Anyway, I will be happy to try to answer any questions for you, whatever they may be. 

            Bryan

            • September 12, 2010 at 4:19 am
            Bugandi
            Participant

              Hi,

              I was diagnosed with Conjunctival melanoma in 2005.  Not sure which for of occular melanoma you have.   At any rate, I went through 2 surgerys where the tumor was removed from the conjunctiva, and in 2007, the tumor returned behind my left eye.  I had surery at mayo clinic in minnesota, where I lost my left eye because the tumor was so large, and the margins needed didn't allow me to keep my eyelids either.  My eye was sewn shut.  I then went through some intense radiation followed by a regimen of leukine treatments.  At first it was a little difficult to cope, but have come a long way in the last 3 years.  I did have a recurrence recently in my groin.  Luckily, I still have perfect vision in my right eye.  Anyway, I will be happy to try to answer any questions for you, whatever they may be. 

              Bryan

              • March 8, 2011 at 10:44 pm
              Bugandi
              Participant

                Hi Dawn, the first 3-4 weeks were good.  Towards the end of week 4 is when my side effects started, and were at the worst at week 6.  they are better now, but I started taking pain meds at week 6 too.  Hope that helps.  will be discussing with doctor on Thursday as well.

                B

                • March 8, 2011 at 10:44 pm
                Bugandi
                Participant

                  Hi Dawn, the first 3-4 weeks were good.  Towards the end of week 4 is when my side effects started, and were at the worst at week 6.  they are better now, but I started taking pain meds at week 6 too.  Hope that helps.  will be discussing with doctor on Thursday as well.

                  B

                  • October 3, 2010 at 9:01 pm
                  Bugandi
                  Participant

                    Thanks for your reply Paul,

                    I'm sorry, I don't know what VATs is.  I guess I am just a little freaked out right now, as I have been told that no open chest surgery is easy.  I have had 4 surgeries so far, and I guess I would say no surgery at all is easy.  At any rate, I will know more in 2 weeks as to what we are going to do.  I will try to figure out what VATs is too, maybe discuss it with the doctor.

                    thanks

                    Bryan

                    • October 3, 2010 at 9:01 pm
                    Bugandi
                    Participant

                      Thanks for your reply Paul,

                      I'm sorry, I don't know what VATs is.  I guess I am just a little freaked out right now, as I have been told that no open chest surgery is easy.  I have had 4 surgeries so far, and I guess I would say no surgery at all is easy.  At any rate, I will know more in 2 weeks as to what we are going to do.  I will try to figure out what VATs is too, maybe discuss it with the doctor.

                      thanks

                      Bryan

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