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bodrum
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bodrum

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      • January 22, 2014 at 7:56 am
      bodrum
      Participant

        Hi Libby,

        I'm having a similar experience.  My first pathalogist found 6 cells in one of my nodes after SNB. We sent it to a new lab and also sent the samples in for BRAF mutation. The new pathalogist is not saying that it's melanoma but she is also saying that she can't say that it's not.  The BRAF was  also negative for the node while my birthmark/melanoma was positive for the BRAF. From what I've read there is no loss of expression for BRAF mutation.

        Maybe your friend can have the melanoma tested for BRAF and then the node tested for BRAF also to be sure it's melanoma?

         

        • January 22, 2014 at 7:56 am
        bodrum
        Participant

          Hi Libby,

          I'm having a similar experience.  My first pathalogist found 6 cells in one of my nodes after SNB. We sent it to a new lab and also sent the samples in for BRAF mutation. The new pathalogist is not saying that it's melanoma but she is also saying that she can't say that it's not.  The BRAF was  also negative for the node while my birthmark/melanoma was positive for the BRAF. From what I've read there is no loss of expression for BRAF mutation.

          Maybe your friend can have the melanoma tested for BRAF and then the node tested for BRAF also to be sure it's melanoma?

           

          • January 22, 2014 at 7:56 am
          bodrum
          Participant

            Hi Libby,

            I'm having a similar experience.  My first pathalogist found 6 cells in one of my nodes after SNB. We sent it to a new lab and also sent the samples in for BRAF mutation. The new pathalogist is not saying that it's melanoma but she is also saying that she can't say that it's not.  The BRAF was  also negative for the node while my birthmark/melanoma was positive for the BRAF. From what I've read there is no loss of expression for BRAF mutation.

            Maybe your friend can have the melanoma tested for BRAF and then the node tested for BRAF also to be sure it's melanoma?

             

            • January 18, 2014 at 5:28 pm
            bodrum
            Participant

              I got lymphedema in the chest area 2 weeks after SND.  It's painful… 

              • January 18, 2014 at 5:28 pm
              bodrum
              Participant

                I got lymphedema in the chest area 2 weeks after SND.  It's painful… 

                • January 18, 2014 at 5:28 pm
                bodrum
                Participant

                  I got lymphedema in the chest area 2 weeks after SND.  It's painful… 

                  • January 21, 2014 at 8:39 am
                  bodrum
                  Participant

                    Hi Jerry,

                    The result for the SLND came out to be BRAF negative… same machine… same test. And yes, they have seen the pathologists report. 

                     

                    • January 21, 2014 at 8:39 am
                    bodrum
                    Participant

                      Hi Jerry,

                      The result for the SLND came out to be BRAF negative… same machine… same test. And yes, they have seen the pathologists report. 

                       

                      • January 21, 2014 at 8:39 am
                      bodrum
                      Participant

                        Hi Jerry,

                        The result for the SLND came out to be BRAF negative… same machine… same test. And yes, they have seen the pathologists report. 

                         

                        • January 7, 2014 at 4:16 pm
                        bodrum
                        Participant

                          We have been searching for a melanoma specialist in my country but haven't found one. 

                          • January 7, 2014 at 4:16 pm
                          bodrum
                          Participant

                            We have been searching for a melanoma specialist in my country but haven't found one. 

                            • January 7, 2014 at 4:16 pm
                            bodrum
                            Participant

                              We have been searching for a melanoma specialist in my country but haven't found one. 

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