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Terra- This sucks.  I know I to have a 5 year old and a 4year old and unfortunately a wife who recently passed from stage 4 melanoma.  I spent a lot of time trying to figure out what to do, long story short here are the things we did.  A video talking about my wife, who she was, what she liked, how we met and how the kids made her feel.  I would have liked to make more videos but it was very difficult.  Second is we bought buirthday cards for the kids, she simply signed love mom, or mama, we also bought cards for graduation, marriage and a first kid.  This to was extremely difficult but I told my wife how important it was to have something tangiable, and that we were not giving up the fight.  I just wante to make sure we could concentrate on the fight if and when it got bad.  One thing we had but didn't have time to do was a book that records your voice.  I am so sorry, I know how dark, lonely, scary and frustrating this journey is.  If there is anything I can do please ask.

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Terra- This sucks.  I know I to have a 5 year old and a 4year old and unfortunately a wife who recently passed from stage 4 melanoma.  I spent a lot of time trying to figure out what to do, long story short here are the things we did.  A video talking about my wife, who she was, what she liked, how we met and how the kids made her feel.  I would have liked to make more videos but it was very difficult.  Second is we bought buirthday cards for the kids, she simply signed love mom, or mama, we also bought cards for graduation, marriage and a first kid.  This to was extremely difficult but I told my wife how important it was to have something tangiable, and that we were not giving up the fight.  I just wante to make sure we could concentrate on the fight if and when it got bad.  One thing we had but didn't have time to do was a book that records your voice.  I am so sorry, I know how dark, lonely, scary and frustrating this journey is.  If there is anything I can do please ask.

B

Terra- This sucks.  I know I to have a 5 year old and a 4year old and unfortunately a wife who recently passed from stage 4 melanoma.  I spent a lot of time trying to figure out what to do, long story short here are the things we did.  A video talking about my wife, who she was, what she liked, how we met and how the kids made her feel.  I would have liked to make more videos but it was very difficult.  Second is we bought buirthday cards for the kids, she simply signed love mom, or mama, we also bought cards for graduation, marriage and a first kid.  This to was extremely difficult but I told my wife how important it was to have something tangiable, and that we were not giving up the fight.  I just wante to make sure we could concentrate on the fight if and when it got bad.  One thing we had but didn't have time to do was a book that records your voice.  I am so sorry, I know how dark, lonely, scary and frustrating this journey is.  If there is anything I can do please ask.

B

Terra- This sucks.  I know I to have a 5 year old and a 4year old and unfortunately a wife who recently passed from stage 4 melanoma.  I spent a lot of time trying to figure out what to do, long story short here are the things we did.  A video talking about my wife, who she was, what she liked, how we met and how the kids made her feel.  I would have liked to make more videos but it was very difficult.  Second is we bought buirthday cards for the kids, she simply signed love mom, or mama, we also bought cards for graduation, marriage and a first kid.  This to was extremely difficult but I told my wife how important it was to have something tangiable, and that we were not giving up the fight.  I just wante to make sure we could concentrate on the fight if and when it got bad.  One thing we had but didn't have time to do was a book that records your voice.  I am so sorry, I know how dark, lonely, scary and frustrating this journey is.  If there is anything I can do please ask.

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Jill-

I have a young wife who is also stage 4 and has been through numerosu treatments.  Like many have already said what about PLX or IPI.  My wife was on PLX for 6 months, and for that time it at least kept the disease from progressing.  This time allowed her to regain some strength and do some of the things she had been missing.  My wife has also had severe bouts with pain.  She wers a Fentanyl patch and takes morphine for breakthrough pain.  Depending on your doctor ask him or her for stronger pain medication.  If you can control the pain it definitely will help to change the attitude.  Best of luck

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Jill-

I have a young wife who is also stage 4 and has been through numerosu treatments.  Like many have already said what about PLX or IPI.  My wife was on PLX for 6 months, and for that time it at least kept the disease from progressing.  This time allowed her to regain some strength and do some of the things she had been missing.  My wife has also had severe bouts with pain.  She wers a Fentanyl patch and takes morphine for breakthrough pain.  Depending on your doctor ask him or her for stronger pain medication.  If you can control the pain it definitely will help to change the attitude.  Best of luck

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Molly-

It sounds like you had a rude induction to PLX.  My wife was on the trial for 6 months, after the first month she had to have a week off and started back on the drug at 720mg two times a day.  It was definitely more tolerable at the lower dose.  The trial she was in also had monthly visits with a derm. so he gave her some various lotions that seemed to work on the rash.  Unfortunately in my wife's case the lethargy lasted throughout the treatment but she did have some days that were better than others.

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Molly-

It sounds like you had a rude induction to PLX.  My wife was on the trial for 6 months, after the first month she had to have a week off and started back on the drug at 720mg two times a day.  It was definitely more tolerable at the lower dose.  The trial she was in also had monthly visits with a derm. so he gave her some various lotions that seemed to work on the rash.  Unfortunately in my wife's case the lethargy lasted throughout the treatment but she did have some days that were better than others.

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