Annemarie

My husband has also started Yervoy on 18 January 2013, He had a melanoma metastatic tumor in his left lung. 14 years ago he had a melonoma removed behind his right ear and now it has come back. Yervoy is only available on trial in South Africa. He already finished 4 cycles of CVD-chemo.

With the yervoy he is also tired and he has a lot of needles and pins in his feet. I would also like to hear about some positive results with yervoy.

My husband has also started Yervoy on 18 January 2013, He had a melanoma metastatic tumor in his left lung. 14 years ago he had a melonoma removed behind his right ear and now it has come back. Yervoy is only available on trial in South Africa. He already finished 4 cycles of CVD-chemo.

With the yervoy he is also tired and he has a lot of needles and pins in his feet. I would also like to hear about some positive results with yervoy.

My husband has also started Yervoy on 18 January 2013, He had a melanoma metastatic tumor in his left lung. 14 years ago he had a melonoma removed behind his right ear and now it has come back. Yervoy is only available on trial in South Africa. He already finished 4 cycles of CVD-chemo.

With the yervoy he is also tired and he has a lot of needles and pins in his feet. I would also like to hear about some positive results with yervoy.

My husband has also started Yervoy on 18 January 2013, He had a melanoma metastatic tumor in his left lung. 14 years ago he had a melonoma removed behind his right ear and now it has come back. Yervoy is only available on trial in South Africa. He already finished 4 cycles of CVD-chemo.

With the yervoy he is also tired and he has a lot of needles and pins in his feet. I would also like to hear about some positive results with yervoy.

My husband has also started Yervoy on 18 January 2013, He had a melanoma metastatic tumor in his left lung. 14 years ago he had a melonoma removed behind his right ear and now it has come back. Yervoy is only available on trial in South Africa. He already finished 4 cycles of CVD-chemo.

With the yervoy he is also tired and he has a lot of needles and pins in his feet. I would also like to hear about some positive results with yervoy.

My husband has also started Yervoy on 18 January 2013, He had a melanoma metastatic tumor in his left lung. 14 years ago he had a melonoma removed behind his right ear and now it has come back. Yervoy is only available on trial in South Africa. He already finished 4 cycles of CVD-chemo.

With the yervoy he is also tired and he has a lot of needles and pins in his feet. I would also like to hear about some positive results with yervoy.

My husband has started on Yervoy on 18 January 2013 after four cycles of chemo last year. He is complaining a lot about needles and pins and is tired a lot.

With the chemo our experience was that he is tired for the first week and then it get better, but with the Yervoy he is not so tired but it is also not getting better after a week.

Can anyone confirm whether the tiredness will just decrease all the time over the four treatments with yervoy or what should we expect?

My husband has started on Yervoy on 18 January 2013 after four cycles of chemo last year. He is complaining a lot about needles and pins and is tired a lot.

With the chemo our experience was that he is tired for the first week and then it get better, but with the Yervoy he is not so tired but it is also not getting better after a week.

Can anyone confirm whether the tiredness will just decrease all the time over the four treatments with yervoy or what should we expect?

My husband has started on Yervoy on 18 January 2013 after four cycles of chemo last year. He is complaining a lot about needles and pins and is tired a lot.

With the chemo our experience was that he is tired for the first week and then it get better, but with the Yervoy he is not so tired but it is also not getting better after a week.

Can anyone confirm whether the tiredness will just decrease all the time over the four treatments with yervoy or what should we expect?

Morning Josh

Does the itchy legs dissapear when the treatment with Yervoy is finished. I must confess, this treatment is not really a piece of cake for us.

My mother died in 2007 from cancer making my past experience with cancer somewhat negative. My husband had a melanoma removed behind his right ear 14 years ago in 1998. The docter was not worried. However, I read about melanoma and was worried. As there is no blood test confirming whether the melanoma return, I sent my husband to a dermatologist every second year. 

My mother in law got annoyed withe me and keep telling me she does not believe my husband has cancer but I kept sending him for checkups. In 2010 he was complaining about pain behind his left shoulder. We took some X-rays, but it was clear, and no follow up was suggested. 

July 2012 he was getting serious chest pains and was diagnosed with "lung vlies ontsteking" . After two sets of antibiotics another Xray was taken confirming a tumor 10cm x 6 cm in the left lung. We then started with chemo (CVD – Cisplastin – Vinblastine and Dacarbazine in August and finish four cycles of chemo last year. The firt chemo was a piece of cake, but the last one was really terrible. He is farming with peaches in South Africa and all the chemo sessions was in the midst of his harvesting season. He had to get some extra help, but with the last chemo he literally could not move for 3 days. He got 4 hours of chemo on three consecutive days, starting on Wednesday and finishing on Friday and the fatique was the worst from the Saturday until the Monday.

At least, a week down the line his energy levels would pick up. He has not lost any weight yet. Maybe he has not recover enough from the last chemo in November. He started yervoy on 18 January. He is not so tired but his energy levels is not picking up and we must go for the second cycle this coming Friday.

Is the fatigue going to get worse then?

The tumor is next to his main lung vein and it is too dangerous to do an operation. I read that with the Yervoy the tumor sometimes get bigger before it started to decrease in size. But I am worried as there is not much space for this tumor to grow and he is starting to cough up blood again as in the beginning when the disease was diagnosed. About three teaspoons of fresh blood. He told me not to worry but I am worried. Our son is turning 11 and our daughter 13. 

He tested positive for the BRAF-mutation but unfortunately the trials of Zelboraf finised in November in South Africa and this is no longer available in South Africa and our medical aid does not cover immunotherapy.

Sorry, but today I am a bit negative about this cancer.

Annemarie

Morning Josh

Does the itchy legs dissapear when the treatment with Yervoy is finished. I must confess, this treatment is not really a piece of cake for us.

My mother died in 2007 from cancer making my past experience with cancer somewhat negative. My husband had a melanoma removed behind his right ear 14 years ago in 1998. The docter was not worried. However, I read about melanoma and was worried. As there is no blood test confirming whether the melanoma return, I sent my husband to a dermatologist every second year. 

My mother in law got annoyed withe me and keep telling me she does not believe my husband has cancer but I kept sending him for checkups. In 2010 he was complaining about pain behind his left shoulder. We took some X-rays, but it was clear, and no follow up was suggested. 

July 2012 he was getting serious chest pains and was diagnosed with "lung vlies ontsteking" . After two sets of antibiotics another Xray was taken confirming a tumor 10cm x 6 cm in the left lung. We then started with chemo (CVD – Cisplastin – Vinblastine and Dacarbazine in August and finish four cycles of chemo last year. The firt chemo was a piece of cake, but the last one was really terrible. He is farming with peaches in South Africa and all the chemo sessions was in the midst of his harvesting season. He had to get some extra help, but with the last chemo he literally could not move for 3 days. He got 4 hours of chemo on three consecutive days, starting on Wednesday and finishing on Friday and the fatique was the worst from the Saturday until the Monday.

At least, a week down the line his energy levels would pick up. He has not lost any weight yet. Maybe he has not recover enough from the last chemo in November. He started yervoy on 18 January. He is not so tired but his energy levels is not picking up and we must go for the second cycle this coming Friday.

Is the fatigue going to get worse then?

The tumor is next to his main lung vein and it is too dangerous to do an operation. I read that with the Yervoy the tumor sometimes get bigger before it started to decrease in size. But I am worried as there is not much space for this tumor to grow and he is starting to cough up blood again as in the beginning when the disease was diagnosed. About three teaspoons of fresh blood. He told me not to worry but I am worried. Our son is turning 11 and our daughter 13. 

He tested positive for the BRAF-mutation but unfortunately the trials of Zelboraf finised in November in South Africa and this is no longer available in South Africa and our medical aid does not cover immunotherapy.

Sorry, but today I am a bit negative about this cancer.

Annemarie

Morning Josh

Does the itchy legs dissapear when the treatment with Yervoy is finished. I must confess, this treatment is not really a piece of cake for us.

My mother died in 2007 from cancer making my past experience with cancer somewhat negative. My husband had a melanoma removed behind his right ear 14 years ago in 1998. The docter was not worried. However, I read about melanoma and was worried. As there is no blood test confirming whether the melanoma return, I sent my husband to a dermatologist every second year. 

My mother in law got annoyed withe me and keep telling me she does not believe my husband has cancer but I kept sending him for checkups. In 2010 he was complaining about pain behind his left shoulder. We took some X-rays, but it was clear, and no follow up was suggested. 

July 2012 he was getting serious chest pains and was diagnosed with "lung vlies ontsteking" . After two sets of antibiotics another Xray was taken confirming a tumor 10cm x 6 cm in the left lung. We then started with chemo (CVD – Cisplastin – Vinblastine and Dacarbazine in August and finish four cycles of chemo last year. The firt chemo was a piece of cake, but the last one was really terrible. He is farming with peaches in South Africa and all the chemo sessions was in the midst of his harvesting season. He had to get some extra help, but with the last chemo he literally could not move for 3 days. He got 4 hours of chemo on three consecutive days, starting on Wednesday and finishing on Friday and the fatique was the worst from the Saturday until the Monday.

At least, a week down the line his energy levels would pick up. He has not lost any weight yet. Maybe he has not recover enough from the last chemo in November. He started yervoy on 18 January. He is not so tired but his energy levels is not picking up and we must go for the second cycle this coming Friday.

Is the fatigue going to get worse then?

The tumor is next to his main lung vein and it is too dangerous to do an operation. I read that with the Yervoy the tumor sometimes get bigger before it started to decrease in size. But I am worried as there is not much space for this tumor to grow and he is starting to cough up blood again as in the beginning when the disease was diagnosed. About three teaspoons of fresh blood. He told me not to worry but I am worried. Our son is turning 11 and our daughter 13. 

He tested positive for the BRAF-mutation but unfortunately the trials of Zelboraf finised in November in South Africa and this is no longer available in South Africa and our medical aid does not cover immunotherapy.

Sorry, but today I am a bit negative about this cancer.

Annemarie

My husband started yervoy about 2 weeks ago. As Yervoy has not been approved in South Africa yet, he is on a clinical trial. With the chemo he was very tired but after a week or so the energy levels pick up. With yervoy he is not so tired, but I don't see the energy levels picking up. Can anyone advise whether the fatigue get worse further down the treatment line.

Then he complain a lot about needles and pins in his feet and legs. Apparantly it is something to do with the nervous system. Any advise to improve this side effect.

Just to update, my husband had a melonoma removed behing his right ear about 14 years ago and was diagnosed end of July last year with a huge tumor (10cm x 6 cm) in his left lung. He had 4 cycles of CVD -chemo. The tumor had shrunk with about 25% but our oncologist inform us that we will not win the battle with the chemo and now we started the Yervoy.

My husband started yervoy about 2 weeks ago. As Yervoy has not been approved in South Africa yet, he is on a clinical trial. With the chemo he was very tired but after a week or so the energy levels pick up. With yervoy he is not so tired, but I don't see the energy levels picking up. Can anyone advise whether the fatigue get worse further down the treatment line.

Then he complain a lot about needles and pins in his feet and legs. Apparantly it is something to do with the nervous system. Any advise to improve this side effect.

Just to update, my husband had a melonoma removed behing his right ear about 14 years ago and was diagnosed end of July last year with a huge tumor (10cm x 6 cm) in his left lung. He had 4 cycles of CVD -chemo. The tumor had shrunk with about 25% but our oncologist inform us that we will not win the battle with the chemo and now we started the Yervoy.

My husband started yervoy about 2 weeks ago. As Yervoy has not been approved in South Africa yet, he is on a clinical trial. With the chemo he was very tired but after a week or so the energy levels pick up. With yervoy he is not so tired, but I don't see the energy levels picking up. Can anyone advise whether the fatigue get worse further down the treatment line.

Then he complain a lot about needles and pins in his feet and legs. Apparantly it is something to do with the nervous system. Any advise to improve this side effect.

Just to update, my husband had a melonoma removed behing his right ear about 14 years ago and was diagnosed end of July last year with a huge tumor (10cm x 6 cm) in his left lung. He had 4 cycles of CVD -chemo. The tumor had shrunk with about 25% but our oncologist inform us that we will not win the battle with the chemo and now we started the Yervoy.