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Amy Busby

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      Amy Busby
      Participant

        Houston is one of the lowest cost of living in the US.  MD Anderson is self referral and all the melanoma specialists are good.  They have many clinical trials and a social work department that can help in lots of ways.  I know they have lists of hotels / residences that offer medical discounts to help get you started looking for a place to rent.

        Amy Busby
        Participant

          Houston is one of the lowest cost of living in the US.  MD Anderson is self referral and all the melanoma specialists are good.  They have many clinical trials and a social work department that can help in lots of ways.  I know they have lists of hotels / residences that offer medical discounts to help get you started looking for a place to rent.

          Amy Busby
          Participant

            I am heartbroken, yet again.  I had the pleasure of meeting her on the phone, of hearing her determination.  But also hearing the frustration and fear.  She was in SO much pain.  And yes, she was a single mother.  I wish her daughter well, and will be praying for her.  Also the rest of her family & friends.  I wish that when she called I had been able to offer her more hope, more leads for some treatments.  But like me she was reaching the end of the line.

            Rest in Peace warrior.

            Amy Busby
            Participant

              I am heartbroken, yet again.  I had the pleasure of meeting her on the phone, of hearing her determination.  But also hearing the frustration and fear.  She was in SO much pain.  And yes, she was a single mother.  I wish her daughter well, and will be praying for her.  Also the rest of her family & friends.  I wish that when she called I had been able to offer her more hope, more leads for some treatments.  But like me she was reaching the end of the line.

              Rest in Peace warrior.

              Amy Busby
              Participant

                I am heartbroken, yet again.  I had the pleasure of meeting her on the phone, of hearing her determination.  But also hearing the frustration and fear.  She was in SO much pain.  And yes, she was a single mother.  I wish her daughter well, and will be praying for her.  Also the rest of her family & friends.  I wish that when she called I had been able to offer her more hope, more leads for some treatments.  But like me she was reaching the end of the line.

                Rest in Peace warrior.

                Amy Busby
                Participant

                  I am heartbroken, yet again.  I had the pleasure of meeting her on the phone, of hearing her determination.  But also hearing the frustration and fear.  She was in SO much pain.  And yes, she was a single mother.  I wish her daughter well, and will be praying for her.  Also the rest of her family & friends.  I wish that when she called I had been able to offer her more hope, more leads for some treatments.  But like me she was reaching the end of the line.

                  Rest in Peace warrior.

                  Amy Busby
                  Participant

                    where are you taking it?  what trial?  if you don't mind my asking

                    [email protected]

                    I am waiting for my spot.

                    Amy

                    Amy Busby
                    Participant

                      where are you taking it?  what trial?  if you don't mind my asking

                      [email protected]

                      I am waiting for my spot.

                      Amy

                      Amy Busby
                      Participant

                        As a stage 4 patient my first concern is staying alive, 2nd is staying comfortable so I can enjoy my life.  It's a fine line between knocked out vs. pain free & coherent  But that's the line I worry about not addiction.  If you have constant pain and therefore need the medicine to control the pain you're not dependant on the drugs you're a rational person who understands If A then B reasoning.  Suffering for the sake of suffering is needless and does no one any good.  Now if you're a person who is not in pain and takes drugs to escape reality or get a high off the mind altering benefits then those are the people who are addicts.

                        Your body can become accustomed to drugs and need higher dosages.  Your disease can also prorgess causing higher doses needed.

                        I can't offer recommendations for any regiments it sounds like you've been around the block.  But I think you need to let these notions of addiction and such go.  Meds are neither good nor bad only effective or ineffective.  So ask the pain specialists for guidence on what to take & how much.  If it's not enough then it's not enough.

                        Love,

                        Amy

                        Amy Busby
                        Participant

                          Another option is to use fentynol patches for pain and then rely on the oxy or 5/325s for breakthrough every 4 hours.  That plan is working fairly well for me I have some lee way to go up in the dosage on the patch if necessary – that way it's not too much of an acetomenaphen burden on my liver (already full of melanoma).

                          A

                          Amy Busby
                          Participant

                            Another option is to use fentynol patches for pain and then rely on the oxy or 5/325s for breakthrough every 4 hours.  That plan is working fairly well for me I have some lee way to go up in the dosage on the patch if necessary – that way it's not too much of an acetomenaphen burden on my liver (already full of melanoma).

                            A

                            Amy Busby
                            Participant

                              Another option is to use fentynol patches for pain and then rely on the oxy or 5/325s for breakthrough every 4 hours.  That plan is working fairly well for me I have some lee way to go up in the dosage on the patch if necessary – that way it's not too much of an acetomenaphen burden on my liver (already full of melanoma).

                              A

                              Amy Busby
                              Participant

                                Another option is to use fentynol patches for pain and then rely on the oxy or 5/325s for breakthrough every 4 hours.  That plan is working fairly well for me I have some lee way to go up in the dosage on the patch if necessary – that way it's not too much of an acetomenaphen burden on my liver (already full of melanoma).

                                A

                                Amy Busby
                                Participant

                                  Another option is to use fentynol patches for pain and then rely on the oxy or 5/325s for breakthrough every 4 hours.  That plan is working fairly well for me I have some lee way to go up in the dosage on the patch if necessary – that way it's not too much of an acetomenaphen burden on my liver (already full of melanoma).

                                  A

                                  Amy Busby
                                  Participant

                                    Another option is to use fentynol patches for pain and then rely on the oxy or 5/325s for breakthrough every 4 hours.  That plan is working fairly well for me I have some lee way to go up in the dosage on the patch if necessary – that way it's not too much of an acetomenaphen burden on my liver (already full of melanoma).

                                    A

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