@allyntaus
Forum Replies Created
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- July 23, 2013 at 11:08 am
Jenny, in my case the approval was about two weeks if I remember correctly.
Unfortunately Dabrafenib only kept working for me for about 10 months. I then spent a short period on a Novartis BRAF/MEK inhibitor trial but that also recently came to an end with some nasty progression of my disease, and I have just started Ipi (Yervoy). I am grateful that Dabrafenib bought me some time though, and got me to this point where Yervoy has just been PBS subsidised -
- July 19, 2013 at 1:51 am
Thanks everyone, I am leaving hospital today, my heart recovery is going well, my tummy is still causing a bit of grief but this could be melanoma related (in which case I will just have to hope the Ipi deals with it) or it could be some generalised irritable bowel issue, anyway I decided against having a scope to investigate it.I am booked for my first infusion of Ipi on Monday, I just hope it works, I know there are people on this board who have had great results with it, and my doctors have assured me that AntiPD1 should still be an available option should Ipi not work.
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- July 19, 2013 at 1:51 am
Thanks everyone, I am leaving hospital today, my heart recovery is going well, my tummy is still causing a bit of grief but this could be melanoma related (in which case I will just have to hope the Ipi deals with it) or it could be some generalised irritable bowel issue, anyway I decided against having a scope to investigate it.I am booked for my first infusion of Ipi on Monday, I just hope it works, I know there are people on this board who have had great results with it, and my doctors have assured me that AntiPD1 should still be an available option should Ipi not work.
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- July 19, 2013 at 1:51 am
Thanks everyone, I am leaving hospital today, my heart recovery is going well, my tummy is still causing a bit of grief but this could be melanoma related (in which case I will just have to hope the Ipi deals with it) or it could be some generalised irritable bowel issue, anyway I decided against having a scope to investigate it.I am booked for my first infusion of Ipi on Monday, I just hope it works, I know there are people on this board who have had great results with it, and my doctors have assured me that AntiPD1 should still be an available option should Ipi not work.
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- July 6, 2013 at 12:24 pm
Denise I can’t answer your questions but I hope with all my might that you do get a great if not complete response, and that may leave Anti PD1 up your sleeve for some other time. I am desperately looking forward to my first dose of Ipi, it is a few weeks away at least yet, have my cardiac met resection to go thru next week first.
All the best and hoping to hear good news from you,
Ally -
- July 6, 2013 at 12:24 pm
Denise I can’t answer your questions but I hope with all my might that you do get a great if not complete response, and that may leave Anti PD1 up your sleeve for some other time. I am desperately looking forward to my first dose of Ipi, it is a few weeks away at least yet, have my cardiac met resection to go thru next week first.
All the best and hoping to hear good news from you,
Ally -
- July 6, 2013 at 12:24 pm
Denise I can’t answer your questions but I hope with all my might that you do get a great if not complete response, and that may leave Anti PD1 up your sleeve for some other time. I am desperately looking forward to my first dose of Ipi, it is a few weeks away at least yet, have my cardiac met resection to go thru next week first.
All the best and hoping to hear good news from you,
Ally -
- July 3, 2013 at 12:49 pm
I met with the cardiac surgeon today, he was very impressive and compassionate, and was quite confident of being able to remove the tumour, the only issue is just whether he can get it all with clear margins which he won’t know until he goes in.The worst case scenario is that in resecting and repairing, he might have to take some of the tissue that provides pace-making function in the heart, but if so he will put in a pacemaker to deal with this.
I am being admitted to hospital on Monday 8th for surgery on the 9th, about a 9 day stay then gentle recovery at home, hopefully well enough to start Ipi within a few weeks. Fingers crossed!
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- July 3, 2013 at 12:49 pm
I met with the cardiac surgeon today, he was very impressive and compassionate, and was quite confident of being able to remove the tumour, the only issue is just whether he can get it all with clear margins which he won’t know until he goes in.The worst case scenario is that in resecting and repairing, he might have to take some of the tissue that provides pace-making function in the heart, but if so he will put in a pacemaker to deal with this.
I am being admitted to hospital on Monday 8th for surgery on the 9th, about a 9 day stay then gentle recovery at home, hopefully well enough to start Ipi within a few weeks. Fingers crossed!
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- July 3, 2013 at 12:49 pm
I met with the cardiac surgeon today, he was very impressive and compassionate, and was quite confident of being able to remove the tumour, the only issue is just whether he can get it all with clear margins which he won’t know until he goes in.The worst case scenario is that in resecting and repairing, he might have to take some of the tissue that provides pace-making function in the heart, but if so he will put in a pacemaker to deal with this.
I am being admitted to hospital on Monday 8th for surgery on the 9th, about a 9 day stay then gentle recovery at home, hopefully well enough to start Ipi within a few weeks. Fingers crossed!
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- July 23, 2013 at 11:08 am
Jenny, in my case the approval was about two weeks if I remember correctly.
Unfortunately Dabrafenib only kept working for me for about 10 months. I then spent a short period on a Novartis BRAF/MEK inhibitor trial but that also recently came to an end with some nasty progression of my disease, and I have just started Ipi (Yervoy). I am grateful that Dabrafenib bought me some time though, and got me to this point where Yervoy has just been PBS subsidised -
- July 23, 2013 at 11:08 am
Jenny, in my case the approval was about two weeks if I remember correctly.
Unfortunately Dabrafenib only kept working for me for about 10 months. I then spent a short period on a Novartis BRAF/MEK inhibitor trial but that also recently came to an end with some nasty progression of my disease, and I have just started Ipi (Yervoy). I am grateful that Dabrafenib bought me some time though, and got me to this point where Yervoy has just been PBS subsidised
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