YERVOY didn’t touch bowel…

my friend did bio chem and they never saw it in her intestines…even tho the scanned her inside and out. She kept complanning about pain and finally they decided to go in  because they thought they saw a couple inches of "something"

growth in intestine was larger than expected…melanoma was wide spread

-resected all of ascending and transverse colons…that is 2/3 of large intestines

-procedure called a right hemicolectomy & bowel resection

-tumor size of large grapefruit…some tumor still inside…unresectable…this was in Jan 2011…

She ended up in my sister trial of vaccine trial using peptides and MDX 1006 ( original anti pd -1)…she is doing well and her melanomas continue to shrink. She contiues in the booster phase of the trial getting anti pd 1 IV once every 3 months!

my friend did bio chem and they never saw it in her intestines…even tho the scanned her inside and out. She kept complanning about pain and finally they decided to go in  because they thought they saw a couple inches of "something"

growth in intestine was larger than expected…melanoma was wide spread

-resected all of ascending and transverse colons…that is 2/3 of large intestines

-procedure called a right hemicolectomy & bowel resection

-tumor size of large grapefruit…some tumor still inside…unresectable…this was in Jan 2011…

She ended up in my sister trial of vaccine trial using peptides and MDX 1006 ( original anti pd -1)…she is doing well and her melanomas continue to shrink. She contiues in the booster phase of the trial getting anti pd 1 IV once every 3 months!

my friend did bio chem and they never saw it in her intestines…even tho the scanned her inside and out. She kept complanning about pain and finally they decided to go in  because they thought they saw a couple inches of "something"

growth in intestine was larger than expected…melanoma was wide spread

-resected all of ascending and transverse colons…that is 2/3 of large intestines

-procedure called a right hemicolectomy & bowel resection

-tumor size of large grapefruit…some tumor still inside…unresectable…this was in Jan 2011…

She ended up in my sister trial of vaccine trial using peptides and MDX 1006 ( original anti pd -1)…she is doing well and her melanomas continue to shrink. She contiues in the booster phase of the trial getting anti pd 1 IV once every 3 months!

You are so lucky that they discovered the mets in the intestines.  If you do a search on Rebecca and Bob you will find that he also had mets in intestines. He did have surgery (I think it was about 2 years ago) and has been NED ever since.  He had the surgery done at NIH. 

I had mets 2 different times in the bladder. The first tumor was 7 cm long but was not seen on PET scans or a CT that was done the day before a cystoscopy.  Blood in the urine that did not show up as an infection and then had the cystoscopy. Because of the location they could not do a wide excision – next cysto is next week. I'm now at 6 month intervals.   

I think this is why we call it as No Evidence of Disease. Scans just don't see through the bladder, intestines and the uterus the majority of the time.

Good luck that the Yervoy continues to keep the other tumors continues to work. 

Linda

You are so lucky that they discovered the mets in the intestines.  If you do a search on Rebecca and Bob you will find that he also had mets in intestines. He did have surgery (I think it was about 2 years ago) and has been NED ever since.  He had the surgery done at NIH. 

I had mets 2 different times in the bladder. The first tumor was 7 cm long but was not seen on PET scans or a CT that was done the day before a cystoscopy.  Blood in the urine that did not show up as an infection and then had the cystoscopy. Because of the location they could not do a wide excision – next cysto is next week. I'm now at 6 month intervals.   

I think this is why we call it as No Evidence of Disease. Scans just don't see through the bladder, intestines and the uterus the majority of the time.

Good luck that the Yervoy continues to keep the other tumors continues to work. 

Linda

You are so lucky that they discovered the mets in the intestines.  If you do a search on Rebecca and Bob you will find that he also had mets in intestines. He did have surgery (I think it was about 2 years ago) and has been NED ever since.  He had the surgery done at NIH. 

I had mets 2 different times in the bladder. The first tumor was 7 cm long but was not seen on PET scans or a CT that was done the day before a cystoscopy.  Blood in the urine that did not show up as an infection and then had the cystoscopy. Because of the location they could not do a wide excision – next cysto is next week. I'm now at 6 month intervals.   

I think this is why we call it as No Evidence of Disease. Scans just don't see through the bladder, intestines and the uterus the majority of the time.

Good luck that the Yervoy continues to keep the other tumors continues to work. 

Linda

I lost my husband to mets to the intestines.  He was very sick at the end….and very weak, but had 4 years 3 months great life with no sickness at all.  He did it His Way, and had QUALITY LIFE right up until it spread quickly…one surgery, way too late….Still missing you Jim.  Love you forever.

Take Care and best Wishes,

Sherron, wife to Jim FOREVER (Nov 30, 2010)  Profile is under my name Sherron

I lost my husband to mets to the intestines.  He was very sick at the end….and very weak, but had 4 years 3 months great life with no sickness at all.  He did it His Way, and had QUALITY LIFE right up until it spread quickly…one surgery, way too late….Still missing you Jim.  Love you forever.

Take Care and best Wishes,

Sherron, wife to Jim FOREVER (Nov 30, 2010)  Profile is under my name Sherron

I lost my husband to mets to the intestines.  He was very sick at the end….and very weak, but had 4 years 3 months great life with no sickness at all.  He did it His Way, and had QUALITY LIFE right up until it spread quickly…one surgery, way too late….Still missing you Jim.  Love you forever.

Take Care and best Wishes,

Sherron, wife to Jim FOREVER (Nov 30, 2010)  Profile is under my name Sherron

Kim,

did you look at the news where radiation was followed by ipi?http://vitals.msnbc.msn.com…maybe ask your doc to give you a good jolt of radiation…i know Tim posted what he knew of of Dr Wolchuks findings…hell, it's worth a try anyway…and i am sorry Sherron, but Kim doesn't need to know how you lost your husband to intestinal mets as she is fighting for her life right now even though i know you are heart sick and having terrible time with the loss, but POSITIVE ATTITUDE as MIRACLE…hard to do, but we must as it is component just as important as therapies…four part prong of healing is right thinking, right therapy, right diet and exercise, right purpose

boots

Kim,

did you look at the news where radiation was followed by ipi?http://vitals.msnbc.msn.com…maybe ask your doc to give you a good jolt of radiation…i know Tim posted what he knew of of Dr Wolchuks findings…hell, it's worth a try anyway…and i am sorry Sherron, but Kim doesn't need to know how you lost your husband to intestinal mets as she is fighting for her life right now even though i know you are heart sick and having terrible time with the loss, but POSITIVE ATTITUDE as MIRACLE…hard to do, but we must as it is component just as important as therapies…four part prong of healing is right thinking, right therapy, right diet and exercise, right purpose

boots

Kim,

did you look at the news where radiation was followed by ipi?http://vitals.msnbc.msn.com…maybe ask your doc to give you a good jolt of radiation…i know Tim posted what he knew of of Dr Wolchuks findings…hell, it's worth a try anyway…and i am sorry Sherron, but Kim doesn't need to know how you lost your husband to intestinal mets as she is fighting for her life right now even though i know you are heart sick and having terrible time with the loss, but POSITIVE ATTITUDE as MIRACLE…hard to do, but we must as it is component just as important as therapies…four part prong of healing is right thinking, right therapy, right diet and exercise, right purpose

boots