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Yervoy and vitamin d
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Yervoy and vitamin d

› Forums › General Melanoma Community › Yervoy and vitamin d

  • Post
    • October 23, 2011 at 4:32 pm
    patsy123
    Participant
      Has anyone been given advice by their doctor on taking vitamin d supplements while on Yervoy? If so, how much to take? I know there are studies on whether vitamin d is helpful in fighting melanoma, but wasn’t sure about how much to take, if any, when starting Yervoy.

      Has anyone been given advice by their doctor on taking vitamin d supplements while on Yervoy? If so, how much to take? I know there are studies on whether vitamin d is helpful in fighting melanoma, but wasn’t sure about how much to take, if any, when starting Yervoy.

    Viewing 14 reply threads
    • Replies
        • October 24, 2011 at 12:41 pm
        Hereiam
        Participant

          Hi,

          I have heard something about using vitamin C while on yervoy, but never of vitamin D. Well, if the doctor adviced you to use it, then probably he should be the one to limit dosage too.

          Though, I would rather advise you to think of using something more researched and legitimated, like biotherapy treatment (e.g. virotherapy) because it is trusted to be more effective and convincing than vitamin d.

          Take care!

          • October 24, 2011 at 12:41 pm
          Hereiam
          Participant

            Hi,

            I have heard something about using vitamin C while on yervoy, but never of vitamin D. Well, if the doctor adviced you to use it, then probably he should be the one to limit dosage too.

            Though, I would rather advise you to think of using something more researched and legitimated, like biotherapy treatment (e.g. virotherapy) because it is trusted to be more effective and convincing than vitamin d.

            Take care!

            • October 24, 2011 at 12:41 pm
            Hereiam
            Participant

              Hi,

              I have heard something about using vitamin C while on yervoy, but never of vitamin D. Well, if the doctor adviced you to use it, then probably he should be the one to limit dosage too.

              Though, I would rather advise you to think of using something more researched and legitimated, like biotherapy treatment (e.g. virotherapy) because it is trusted to be more effective and convincing than vitamin d.

              Take care!

              • October 24, 2011 at 5:08 pm
              NYKaren
              Participant

                Hi, so sorry I came up anonymous…It's NYKaren!

                  • October 24, 2011 at 11:04 pm
                  NYKaren
                  Participant

                    I was anonymous NOT to the above post–to the one that's now lost in cyber-space.  I guess I'm not meant to post on this subject!  I'll try one more time to find it.

                    • October 24, 2011 at 11:04 pm
                    NYKaren
                    Participant

                      I was anonymous NOT to the above post–to the one that's now lost in cyber-space.  I guess I'm not meant to post on this subject!  I'll try one more time to find it.

                      • October 24, 2011 at 11:04 pm
                      NYKaren
                      Participant

                        I was anonymous NOT to the above post–to the one that's now lost in cyber-space.  I guess I'm not meant to post on this subject!  I'll try one more time to find it.

                      • October 24, 2011 at 5:08 pm
                      NYKaren
                      Participant

                        Hi, so sorry I came up anonymous…It's NYKaren!

                        • October 24, 2011 at 5:08 pm
                        NYKaren
                        Participant

                          Hi, so sorry I came up anonymous…It's NYKaren!

                          • October 24, 2011 at 9:38 pm
                          lhaley
                          Participant

                            Since I've had this progression they have discussed exactly what supplements I'm taking including all over the counter meds.  I'm to call before I think.  However, I also have a deficiency with vitamin D.  A few years ago had to take the mega doses and now my numbers are fine.  Not on Yervoy, but you need to talk to the Dr.   I take vitamin D because of how my body reacts when my numbers are low.  I felt that while they are under control I don't have many of the aches and pains!  I'm not saying it keeps of cancer, it makes me feel better.  So they have me taking a supplement with it but the numbers aren't huge amounts, it's enough to keep my body numbers right.

                            When your on a cancer fighting drug make sure that you just don't create your own problem.   

                            • October 24, 2011 at 9:38 pm
                            lhaley
                            Participant

                              Since I've had this progression they have discussed exactly what supplements I'm taking including all over the counter meds.  I'm to call before I think.  However, I also have a deficiency with vitamin D.  A few years ago had to take the mega doses and now my numbers are fine.  Not on Yervoy, but you need to talk to the Dr.   I take vitamin D because of how my body reacts when my numbers are low.  I felt that while they are under control I don't have many of the aches and pains!  I'm not saying it keeps of cancer, it makes me feel better.  So they have me taking a supplement with it but the numbers aren't huge amounts, it's enough to keep my body numbers right.

                              When your on a cancer fighting drug make sure that you just don't create your own problem.   

                              • October 24, 2011 at 9:38 pm
                              lhaley
                              Participant

                                Since I've had this progression they have discussed exactly what supplements I'm taking including all over the counter meds.  I'm to call before I think.  However, I also have a deficiency with vitamin D.  A few years ago had to take the mega doses and now my numbers are fine.  Not on Yervoy, but you need to talk to the Dr.   I take vitamin D because of how my body reacts when my numbers are low.  I felt that while they are under control I don't have many of the aches and pains!  I'm not saying it keeps of cancer, it makes me feel better.  So they have me taking a supplement with it but the numbers aren't huge amounts, it's enough to keep my body numbers right.

                                When your on a cancer fighting drug make sure that you just don't create your own problem.   

                                • October 24, 2011 at 10:55 pm
                                shellebrownies
                                Participant

                                  I have heard of taking Vitamin D when you have melanoma for two reasons: one, that as a melanoma patient, you are obviously not outside as much taking it in naturally, and two, that there seems to be a link between low Vitamin D numbers and melanoma in some cases.

                                  But I would definitely discuss the addition of Vitamin D or any other supplement with your doctor first to make sure they would interact in a way that would minimize the effect of the Yervoy. : )

                                   

                                  Michelle, wife of Don

                                    • October 25, 2011 at 1:03 am
                                    mombase
                                    Participant

                                      This whole Vitamin D thing is such a mystery! There is definitely a strong link between low Vit D levels and melanoma, and places where the sun does not shine as strongly (i.e., Minnesota, Wisconsin, etc.) have higher incidences of melanoma. But then the opposite effect is true, too. Too much sun can equal melanoma as well. So how do we get a balanced amount of Vitamin D?? (This is all from my very unscientific memory!)

                                      Cristy, Stage IV

                                      • October 25, 2011 at 1:03 am
                                      mombase
                                      Participant

                                        This whole Vitamin D thing is such a mystery! There is definitely a strong link between low Vit D levels and melanoma, and places where the sun does not shine as strongly (i.e., Minnesota, Wisconsin, etc.) have higher incidences of melanoma. But then the opposite effect is true, too. Too much sun can equal melanoma as well. So how do we get a balanced amount of Vitamin D?? (This is all from my very unscientific memory!)

                                        Cristy, Stage IV

                                        • October 25, 2011 at 1:03 am
                                        mombase
                                        Participant

                                          This whole Vitamin D thing is such a mystery! There is definitely a strong link between low Vit D levels and melanoma, and places where the sun does not shine as strongly (i.e., Minnesota, Wisconsin, etc.) have higher incidences of melanoma. But then the opposite effect is true, too. Too much sun can equal melanoma as well. So how do we get a balanced amount of Vitamin D?? (This is all from my very unscientific memory!)

                                          Cristy, Stage IV

                                        • October 24, 2011 at 10:55 pm
                                        shellebrownies
                                        Participant

                                          I have heard of taking Vitamin D when you have melanoma for two reasons: one, that as a melanoma patient, you are obviously not outside as much taking it in naturally, and two, that there seems to be a link between low Vitamin D numbers and melanoma in some cases.

                                          But I would definitely discuss the addition of Vitamin D or any other supplement with your doctor first to make sure they would interact in a way that would minimize the effect of the Yervoy. : )

                                           

                                          Michelle, wife of Don

                                          • October 24, 2011 at 10:55 pm
                                          shellebrownies
                                          Participant

                                            I have heard of taking Vitamin D when you have melanoma for two reasons: one, that as a melanoma patient, you are obviously not outside as much taking it in naturally, and two, that there seems to be a link between low Vitamin D numbers and melanoma in some cases.

                                            But I would definitely discuss the addition of Vitamin D or any other supplement with your doctor first to make sure they would interact in a way that would minimize the effect of the Yervoy. : )

                                             

                                            Michelle, wife of Don

                                            • October 25, 2011 at 2:53 am
                                            Gene_S
                                            Participant

                                              You can hear an Vitamin D-3 expert speech (free) if you sign up for the cancer summit.

                                              see the following link for details.

                                              http://www.renegadehealth.com/cancer/

                                              Best Wishes,

                                              Gene

                                                • October 25, 2011 at 2:57 am
                                                mombase
                                                Participant

                                                  Thank you very much, Gene!

                                                  • October 25, 2011 at 2:57 am
                                                  mombase
                                                  Participant

                                                    Thank you very much, Gene!

                                                    • October 25, 2011 at 2:57 am
                                                    mombase
                                                    Participant

                                                      Thank you very much, Gene!

                                                      • October 26, 2011 at 11:43 pm
                                                      JerryfromFauq
                                                      Participant

                                                        I am listening to the broadcast there.  One must look at this in a very critical light.  Note that they will gladly sell you a copy of the broadcast for $495.00. (It's on for five nights starting 10/25/2011 at 8-10 PM EST,) (After reagisteration it available for 24 hours without payment, then a payment is required to obtain the briefing.  The Gerson therapy is  one of the issues presented.  (all one sided of course.)

                                                        • October 27, 2011 at 1:58 am
                                                        Gene_S
                                                        Participant

                                                          Hello Jerry,

                                                          The cost is only $49.50 and if it saves your life,  I consider it money well spent!

                                                          See: http://www.renegadehealth.com/cancer/index-page.html

                                                          Best wishes,

                                                          Gene

                                                          • October 27, 2011 at 1:58 am
                                                          Gene_S
                                                          Participant

                                                            Hello Jerry,

                                                            The cost is only $49.50 and if it saves your life,  I consider it money well spent!

                                                            See: http://www.renegadehealth.com/cancer/index-page.html

                                                            Best wishes,

                                                            Gene

                                                            • October 27, 2011 at 1:58 am
                                                            Gene_S
                                                            Participant

                                                              Hello Jerry,

                                                              The cost is only $49.50 and if it saves your life,  I consider it money well spent!

                                                              See: http://www.renegadehealth.com/cancer/index-page.html

                                                              Best wishes,

                                                              Gene

                                                              • October 26, 2011 at 11:43 pm
                                                              JerryfromFauq
                                                              Participant

                                                                I am listening to the broadcast there.  One must look at this in a very critical light.  Note that they will gladly sell you a copy of the broadcast for $495.00. (It's on for five nights starting 10/25/2011 at 8-10 PM EST,) (After reagisteration it available for 24 hours without payment, then a payment is required to obtain the briefing.  The Gerson therapy is  one of the issues presented.  (all one sided of course.)

                                                                • October 26, 2011 at 11:43 pm
                                                                JerryfromFauq
                                                                Participant

                                                                  I am listening to the broadcast there.  One must look at this in a very critical light.  Note that they will gladly sell you a copy of the broadcast for $495.00. (It's on for five nights starting 10/25/2011 at 8-10 PM EST,) (After reagisteration it available for 24 hours without payment, then a payment is required to obtain the briefing.  The Gerson therapy is  one of the issues presented.  (all one sided of course.)

                                                                • October 25, 2011 at 2:53 am
                                                                Gene_S
                                                                Participant

                                                                  You can hear an Vitamin D-3 expert speech (free) if you sign up for the cancer summit.

                                                                  see the following link for details.

                                                                  http://www.renegadehealth.com/cancer/

                                                                  Best Wishes,

                                                                  Gene

                                                                  • October 25, 2011 at 2:53 am
                                                                  Gene_S
                                                                  Participant

                                                                    You can hear an Vitamin D-3 expert speech (free) if you sign up for the cancer summit.

                                                                    see the following link for details.

                                                                    http://www.renegadehealth.com/cancer/

                                                                    Best Wishes,

                                                                    Gene

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