Yervoy
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Yervoy

› Forums › General Melanoma Community › Yervoy

  • Post
    • March 19, 2015 at 6:12 pm
    Saturn
    Participant

    anyone who has been treated by yervoy or is currently being treated I would

    like to know the side effects you have experenced

     

    thanks

    Sam

Viewing 11 reply threads
  • Replies
      • March 19, 2015 at 7:12 pm
      Janner
      Participant

      There is tons of information about people doing Yervoy or "ipi" or "ippi".  Look at the top of the screen under the MPIP heading and you'll see two tabs – one is Forum and the other is Search.  Type in Yervoy or ipi or ipilimumab and you'll find a lot of information.  That being said, it's different for everyone.  Some have little to no side effects and others have severe.  No way to know where you will be on the spectrum.

      • March 19, 2015 at 7:12 pm
      Janner
      Participant

      There is tons of information about people doing Yervoy or "ipi" or "ippi".  Look at the top of the screen under the MPIP heading and you'll see two tabs – one is Forum and the other is Search.  Type in Yervoy or ipi or ipilimumab and you'll find a lot of information.  That being said, it's different for everyone.  Some have little to no side effects and others have severe.  No way to know where you will be on the spectrum.

      • March 19, 2015 at 7:12 pm
      Janner
      Participant

      There is tons of information about people doing Yervoy or "ipi" or "ippi".  Look at the top of the screen under the MPIP heading and you'll see two tabs – one is Forum and the other is Search.  Type in Yervoy or ipi or ipilimumab and you'll find a lot of information.  That being said, it's different for everyone.  Some have little to no side effects and others have severe.  No way to know where you will be on the spectrum.

      • March 19, 2015 at 8:22 pm
      Gene_S
      Participant

      Hi Sam,

      My husband was in a clinical trial with Yervoy (Ipi) which he started in Mar. 2011.  He has been NED (no evidence of disease) for over 2 years now.

      He had some fatigue, itching, eye brows turned white and then his beard, lost pigmentation in the face down to the collar bone and his body quit producing prednisone so he takes a supplement of 7.5 mg a day to replace it.  If you would like to read his story it is on his profile.

      Good luck with your treatments.

      Judy (loving wife of Gene Stage IV and now NED)

      • March 19, 2015 at 8:22 pm
      Gene_S
      Participant

      Hi Sam,

      My husband was in a clinical trial with Yervoy (Ipi) which he started in Mar. 2011.  He has been NED (no evidence of disease) for over 2 years now.

      He had some fatigue, itching, eye brows turned white and then his beard, lost pigmentation in the face down to the collar bone and his body quit producing prednisone so he takes a supplement of 7.5 mg a day to replace it.  If you would like to read his story it is on his profile.

      Good luck with your treatments.

      Judy (loving wife of Gene Stage IV and now NED)

      • March 19, 2015 at 8:22 pm
      Gene_S
      Participant

      Hi Sam,

      My husband was in a clinical trial with Yervoy (Ipi) which he started in Mar. 2011.  He has been NED (no evidence of disease) for over 2 years now.

      He had some fatigue, itching, eye brows turned white and then his beard, lost pigmentation in the face down to the collar bone and his body quit producing prednisone so he takes a supplement of 7.5 mg a day to replace it.  If you would like to read his story it is on his profile.

      Good luck with your treatments.

      Judy (loving wife of Gene Stage IV and now NED)

      • March 20, 2015 at 4:43 am
      Marianne quinn
      Participant

      Please look at my posts. Lots of info. Good luck

        • March 20, 2015 at 1:11 pm
        liberty04281
        Participant
        I have already received three infusions, the last one I will get next week. So far I didn’t experienced any side effect, and working normally full time.
        • March 20, 2015 at 1:48 pm
        Brendan
        Participant

        Good luck to you. After the third infusion I had an unusually bad headache that turned out to be hypophysitis. Just make sure you tell your doctor anything that seems suspicious. 

         

        • March 20, 2015 at 1:48 pm
        Brendan
        Participant

        Good luck to you. After the third infusion I had an unusually bad headache that turned out to be hypophysitis. Just make sure you tell your doctor anything that seems suspicious. 

         

        • March 20, 2015 at 1:48 pm
        Brendan
        Participant

        Good luck to you. After the third infusion I had an unusually bad headache that turned out to be hypophysitis. Just make sure you tell your doctor anything that seems suspicious. 

         

        • March 20, 2015 at 1:11 pm
        liberty04281
        Participant
        I have already received three infusions, the last one I will get next week. So far I didn’t experienced any side effect, and working normally full time.
        • March 20, 2015 at 1:11 pm
        liberty04281
        Participant
        I have already received three infusions, the last one I will get next week. So far I didn’t experienced any side effect, and working normally full time.
      • March 20, 2015 at 4:43 am
      Marianne quinn
      Participant

      Please look at my posts. Lots of info. Good luck

      • March 20, 2015 at 4:43 am
      Marianne quinn
      Participant

      Please look at my posts. Lots of info. Good luck

      • March 21, 2015 at 2:30 am
      Nell
      Participant

      Sam, I had 3 doses of yervoy…..couldn't have the 4th dose, because of yervoy-induced colitis.  Yervoy did help me, even though I couldn't have the full amount. My tumors did not disappear, but they did get smaller and they are stable right now and have stopped growing. I don't know how long that will last, but I am grateful. Watch out for diarrhea. It can become serious with yervoy, and can lead to dangerous colitis.   Report any diarrhea to your doctor.    Good luck, Nell

      • March 21, 2015 at 2:30 am
      Nell
      Participant

      Sam, I had 3 doses of yervoy…..couldn't have the 4th dose, because of yervoy-induced colitis.  Yervoy did help me, even though I couldn't have the full amount. My tumors did not disappear, but they did get smaller and they are stable right now and have stopped growing. I don't know how long that will last, but I am grateful. Watch out for diarrhea. It can become serious with yervoy, and can lead to dangerous colitis.   Report any diarrhea to your doctor.    Good luck, Nell

      • March 21, 2015 at 2:30 am
      Nell
      Participant

      Sam, I had 3 doses of yervoy…..couldn't have the 4th dose, because of yervoy-induced colitis.  Yervoy did help me, even though I couldn't have the full amount. My tumors did not disappear, but they did get smaller and they are stable right now and have stopped growing. I don't know how long that will last, but I am grateful. Watch out for diarrhea. It can become serious with yervoy, and can lead to dangerous colitis.   Report any diarrhea to your doctor.    Good luck, Nell

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