MRF-Logo2019-Horizontal-RGB
Yervoy
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Yervoy

› Forums › General Melanoma Community › Yervoy

  • Post
    • March 19, 2015 at 6:12 pm
    Saturn
    Participant

      anyone who has been treated by yervoy or is currently being treated I would

      like to know the side effects you have experenced

       

      thanks

      Sam

    Viewing 11 reply threads
    • Replies
        • March 19, 2015 at 7:12 pm
        Janner
        Participant

          There is tons of information about people doing Yervoy or "ipi" or "ippi".  Look at the top of the screen under the MPIP heading and you'll see two tabs – one is Forum and the other is Search.  Type in Yervoy or ipi or ipilimumab and you'll find a lot of information.  That being said, it's different for everyone.  Some have little to no side effects and others have severe.  No way to know where you will be on the spectrum.

          • March 19, 2015 at 7:12 pm
          Janner
          Participant

            There is tons of information about people doing Yervoy or "ipi" or "ippi".  Look at the top of the screen under the MPIP heading and you'll see two tabs – one is Forum and the other is Search.  Type in Yervoy or ipi or ipilimumab and you'll find a lot of information.  That being said, it's different for everyone.  Some have little to no side effects and others have severe.  No way to know where you will be on the spectrum.

            • March 19, 2015 at 7:12 pm
            Janner
            Participant

              There is tons of information about people doing Yervoy or "ipi" or "ippi".  Look at the top of the screen under the MPIP heading and you'll see two tabs – one is Forum and the other is Search.  Type in Yervoy or ipi or ipilimumab and you'll find a lot of information.  That being said, it's different for everyone.  Some have little to no side effects and others have severe.  No way to know where you will be on the spectrum.

              • March 19, 2015 at 8:22 pm
              Gene_S
              Participant

                Hi Sam,

                My husband was in a clinical trial with Yervoy (Ipi) which he started in Mar. 2011.  He has been NED (no evidence of disease) for over 2 years now.

                He had some fatigue, itching, eye brows turned white and then his beard, lost pigmentation in the face down to the collar bone and his body quit producing prednisone so he takes a supplement of 7.5 mg a day to replace it.  If you would like to read his story it is on his profile.

                Good luck with your treatments.

                Judy (loving wife of Gene Stage IV and now NED)

                • March 19, 2015 at 8:22 pm
                Gene_S
                Participant

                  Hi Sam,

                  My husband was in a clinical trial with Yervoy (Ipi) which he started in Mar. 2011.  He has been NED (no evidence of disease) for over 2 years now.

                  He had some fatigue, itching, eye brows turned white and then his beard, lost pigmentation in the face down to the collar bone and his body quit producing prednisone so he takes a supplement of 7.5 mg a day to replace it.  If you would like to read his story it is on his profile.

                  Good luck with your treatments.

                  Judy (loving wife of Gene Stage IV and now NED)

                  • March 19, 2015 at 8:22 pm
                  Gene_S
                  Participant

                    Hi Sam,

                    My husband was in a clinical trial with Yervoy (Ipi) which he started in Mar. 2011.  He has been NED (no evidence of disease) for over 2 years now.

                    He had some fatigue, itching, eye brows turned white and then his beard, lost pigmentation in the face down to the collar bone and his body quit producing prednisone so he takes a supplement of 7.5 mg a day to replace it.  If you would like to read his story it is on his profile.

                    Good luck with your treatments.

                    Judy (loving wife of Gene Stage IV and now NED)

                    • March 20, 2015 at 4:43 am
                    Marianne quinn
                    Participant

                      Please look at my posts. Lots of info. Good luck

                        • March 20, 2015 at 1:11 pm
                        liberty04281
                        Participant
                          I have already received three infusions, the last one I will get next week. So far I didn’t experienced any side effect, and working normally full time.
                          • March 20, 2015 at 1:11 pm
                          liberty04281
                          Participant
                            I have already received three infusions, the last one I will get next week. So far I didn’t experienced any side effect, and working normally full time.
                            • March 20, 2015 at 1:11 pm
                            liberty04281
                            Participant
                              I have already received three infusions, the last one I will get next week. So far I didn’t experienced any side effect, and working normally full time.
                              • March 20, 2015 at 1:48 pm
                              Brendan
                              Participant

                                Good luck to you. After the third infusion I had an unusually bad headache that turned out to be hypophysitis. Just make sure you tell your doctor anything that seems suspicious. 

                                 

                                • March 20, 2015 at 1:48 pm
                                Brendan
                                Participant

                                  Good luck to you. After the third infusion I had an unusually bad headache that turned out to be hypophysitis. Just make sure you tell your doctor anything that seems suspicious. 

                                   

                                  • March 20, 2015 at 1:48 pm
                                  Brendan
                                  Participant

                                    Good luck to you. After the third infusion I had an unusually bad headache that turned out to be hypophysitis. Just make sure you tell your doctor anything that seems suspicious. 

                                     

                                  • March 20, 2015 at 4:43 am
                                  Marianne quinn
                                  Participant

                                    Please look at my posts. Lots of info. Good luck

                                    • March 20, 2015 at 4:43 am
                                    Marianne quinn
                                    Participant

                                      Please look at my posts. Lots of info. Good luck

                                      • March 21, 2015 at 2:30 am
                                      Nell
                                      Participant

                                        Sam, I had 3 doses of yervoy…..couldn't have the 4th dose, because of yervoy-induced colitis.  Yervoy did help me, even though I couldn't have the full amount. My tumors did not disappear, but they did get smaller and they are stable right now and have stopped growing. I don't know how long that will last, but I am grateful. Watch out for diarrhea. It can become serious with yervoy, and can lead to dangerous colitis.   Report any diarrhea to your doctor.    Good luck, Nell

                                        • March 21, 2015 at 2:30 am
                                        Nell
                                        Participant

                                          Sam, I had 3 doses of yervoy…..couldn't have the 4th dose, because of yervoy-induced colitis.  Yervoy did help me, even though I couldn't have the full amount. My tumors did not disappear, but they did get smaller and they are stable right now and have stopped growing. I don't know how long that will last, but I am grateful. Watch out for diarrhea. It can become serious with yervoy, and can lead to dangerous colitis.   Report any diarrhea to your doctor.    Good luck, Nell

                                          • March 21, 2015 at 2:30 am
                                          Nell
                                          Participant

                                            Sam, I had 3 doses of yervoy…..couldn't have the 4th dose, because of yervoy-induced colitis.  Yervoy did help me, even though I couldn't have the full amount. My tumors did not disappear, but they did get smaller and they are stable right now and have stopped growing. I don't know how long that will last, but I am grateful. Watch out for diarrhea. It can become serious with yervoy, and can lead to dangerous colitis.   Report any diarrhea to your doctor.    Good luck, Nell

                                        Viewing 11 reply threads
                                        • You must be logged in to reply to this topic.
                                        About the MRF Patient Forum

                                        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

                                        Popular Topics