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Worsening bilateral iliopsoas bursitis

Forums General Melanoma Community Worsening bilateral iliopsoas bursitis

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      "Worsening bilateral iliopsoas bursitis".  When this is the worst thing on your scan report as a Stage IV patient, life is good.  I'm very grateful, fortunate, blessed, etc.  I've never considered my story to be inspiring, but for those newly-diagnosed and seeking hope–look back at my posts starting in August 2013.  I am pleased to report (and hopefully not jinxing myself) that I've been stable for over 3 years of my now 5-year Stage IV experience–which has involved most FDA-approved treatments, SRS and back-to-back craniotomies.  I'm reminded daily of my melanoma–but through arthritis/joint pain.  As reminders go, I'll take it.  Five years of raising my kids when I wasn't sure if I had 5 months (at diagnosis).  Cancer patient, currently surviving.  Have a great holiday weekend.

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          Congrats, Mat! I’m so happy for you and your family. I still remember you being one of the first folks to reach out to me. You were an inspiration then, too! Keep on keeping on! 



            Mat, thank you so much for the update.  So good to hear that you're doing well and that bursitis is the worst thing on your scan. 😉 I rarely post on here anymore (I read often!) because I'm afraid to jinx our good luck (silly, I know), but it really is so good to hear you are doing so well.  Your story is very similar to my husband's, so it's very encouraging to hear life is fine on your side.  🙂  Here's to continued good scans and living life!! Wishing you and your family a fantastic holiday weekend. 


              Mat – love hearing your update as your story is similar to my husband's.  He was diagnosed Stage IV in 2012 and we, too, thought he had only a few months to live.  He's now 6+ years after diagnosis –  a blessing we never exoected!  He's had more than his fair share of tough days but is also "currently surviving"!  Enjoy the long weekend!



                Great post Mat.  I'll add to the Labor Day Weekend feel good post.  Coming up quick on my 7 year stage III aniversay and just passed my 5 year stage IV anniversary in April.  Similar to your story when I was diagnosed 7 years ago I remember looking at my 1 year old son in his crib as he slept and wondering if he would even have any memory of his Dad.  Now that 1 year old is 8 and I'm making memories with him everyday.  It's been an incredible ride that hopefully has many more years to go.  Enjoy the weekend. 


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