Welcome to the New Patient Forum

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Welcome to the New Patient Forum

This topic has 2 replies, 2 voices, and was last updated 3 years, 4 months ago by tedtell1.

Post

- December 18, 2020 at 5:42 pm
- Quote
ljohnston
Keymaster
Dear Patient Forum Members-

As we head into the busy holiday season and New Year, the Melanoma Research Foundation (MRF) is excited to launch this new community resource for patients and caregivers to come together and connect. The new forum was a culmination of patient feedback, updates associated with our new website, and wanting to provide patients an online supportive experience while adapting to the ever-changing world of technology. Melanoma patients and caregivers, representing both skin and rare subtypes, served on a committee to assist in guiding the MRF in developing this new platform. Thanks to their time and commitment we are excited to share with you all the new Patient Forum.

To those who have been a part of this forum from its early stages and through other changes, thank you for your continued support. Change can be exciting and a little daunting. Please know that the team here at the MRF will support you all during this transition and we are here to answer questions and provide any additional support to navigate the forum. As always, we welcome any feedback and suggestions that will help improve the community experience.

I look forward to hearing from this community and supporting you. Please feel free to email me at [email protected].

Sincerely,

Lauren Johnston, MSW

Senior Patient Engagement Officer

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Replies

- - December 18, 2020 at 6:54 pm
  - Quote
  ed williams
  Participant
  Ok, so here we go on first impressions!!! Like button doesn’t tell you who like you, for example I clicked on “clap” above and a number “1” shows up but who would know that it was little old me clapping? :wacko: :wacko: Now these buttons are fun and well worth the investment. What about if there is a new post on a subject that you are interested in, how would we know if anyone has added a comment? One last question, what do we do with the topic tags on the right side of page and last question is how did your group see the tags below working into the big picture on forum use?
- - December 19, 2020 at 10:20 am
  - Quote
  tedtell1
  Participant
  I am with ED, I do like the new emojis. But they are hard to use, and we all are so used to knowing who is commenting/liking our posts, With the emojis we have no way of knowing who is clapping etc., I like the tags, just don’t know how to use them. Overall, once we get used to this, I think it will be okay.
  
  Ted

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The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.