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WBR and Zelboraf
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WBR and Zelboraf

› Forums › General Melanoma Community › WBR and Zelboraf

  • Post
    • December 13, 2011 at 7:05 am
    laurieformike
    Participant

      My husband started WBR today, while on the Zelboraf, they the Oncology Radiologist and the Oncology doctor both thought it would be okay! So now after reading on here, that it my not be a good idea. Going to call the Zelboraf Patient Support service tomorrow. We kept asking  to be sure they were fine with him staying on it. Oncologist said that not everything has been tested, but felt it was okay to be on it while doing WBR. Now scared for him, he's been through so much with the side affects, the throat swelling, seizer from Cyberknife(swelling),very fatigued all the time.

      My husband started WBR today, while on the Zelboraf, they the Oncology Radiologist and the Oncology doctor both thought it would be okay! So now after reading on here, that it my not be a good idea. Going to call the Zelboraf Patient Support service tomorrow. We kept asking  to be sure they were fine with him staying on it. Oncologist said that not everything has been tested, but felt it was okay to be on it while doing WBR. Now scared for him, he's been through so much with the side affects, the throat swelling, seizer from Cyberknife(swelling),very fatigued all the time. Knowing that that will get worse with WBR.

      I will be checking back in to up date anything new, the next two weeks will be very busy going to Stanford daily.

      Hope you all have a nice Holiday season!

    Viewing 5 reply threads
    • Replies
        • December 14, 2011 at 7:13 pm
        alicia
        Participant

          Hi there, so sorry to hear about your  husband!  My friend just started zelboraf a week ago and is currently doing radiation to neck, lower spine, and hip while doing his treatment.  so far he hasn't experienced any of the zelboraf side affects. If you talk to the zelboraf support service let us know what they say about radiation and zelboraf.  Keeping you all in my prayers.

           

          Much love,

          Alicia Stage 3 w/ mult primaries (+) SNB

            • December 28, 2011 at 12:44 am
            laurieformike
            Participant

              We finally got to speak today, the support service and I, she said that it depends on the doctor weather they want to take off the Zelboraf while on WBR. Well he is doing okay lost hair and very red skin on his ears and head and dry but starting to improve today with the color of skin. But extremely tired. How is your friend doing Alicia?

              • December 28, 2011 at 12:44 am
              laurieformike
              Participant

                We finally got to speak today, the support service and I, she said that it depends on the doctor weather they want to take off the Zelboraf while on WBR. Well he is doing okay lost hair and very red skin on his ears and head and dry but starting to improve today with the color of skin. But extremely tired. How is your friend doing Alicia?

                • December 28, 2011 at 12:44 am
                laurieformike
                Participant

                  We finally got to speak today, the support service and I, she said that it depends on the doctor weather they want to take off the Zelboraf while on WBR. Well he is doing okay lost hair and very red skin on his ears and head and dry but starting to improve today with the color of skin. But extremely tired. How is your friend doing Alicia?

                • December 14, 2011 at 7:13 pm
                alicia
                Participant

                  Hi there, so sorry to hear about your  husband!  My friend just started zelboraf a week ago and is currently doing radiation to neck, lower spine, and hip while doing his treatment.  so far he hasn't experienced any of the zelboraf side affects. If you talk to the zelboraf support service let us know what they say about radiation and zelboraf.  Keeping you all in my prayers.

                   

                  Much love,

                  Alicia Stage 3 w/ mult primaries (+) SNB

                  • December 14, 2011 at 7:13 pm
                  alicia
                  Participant

                    Hi there, so sorry to hear about your  husband!  My friend just started zelboraf a week ago and is currently doing radiation to neck, lower spine, and hip while doing his treatment.  so far he hasn't experienced any of the zelboraf side affects. If you talk to the zelboraf support service let us know what they say about radiation and zelboraf.  Keeping you all in my prayers.

                     

                    Much love,

                    Alicia Stage 3 w/ mult primaries (+) SNB

                    • December 14, 2011 at 7:13 pm
                    alicia
                    Participant

                      Hi there, so sorry to hear about your  husband!  My friend just started zelboraf a week ago and is currently doing radiation to neck, lower spine, and hip while doing his treatment.  so far he hasn't experienced any of the zelboraf side affects. If you talk to the zelboraf support service let us know what they say about radiation and zelboraf.  Keeping you all in my prayers.

                       

                      Much love,

                      Alicia Stage 3 w/ mult primaries (+) SNB

                      • December 14, 2011 at 7:13 pm
                      alicia
                      Participant

                        Hi there, so sorry to hear about your  husband!  My friend just started zelboraf a week ago and is currently doing radiation to neck, lower spine, and hip while doing his treatment.  so far he hasn't experienced any of the zelboraf side affects. If you talk to the zelboraf support service let us know what they say about radiation and zelboraf.  Keeping you all in my prayers.

                         

                        Much love,

                        Alicia Stage 3 w/ mult primaries (+) SNB

                        • December 14, 2011 at 7:13 pm
                        alicia
                        Participant

                          Hi there, so sorry to hear about your  husband!  My friend just started zelboraf a week ago and is currently doing radiation to neck, lower spine, and hip while doing his treatment.  so far he hasn't experienced any of the zelboraf side affects. If you talk to the zelboraf support service let us know what they say about radiation and zelboraf.  Keeping you all in my prayers.

                           

                          Much love,

                          Alicia Stage 3 w/ mult primaries (+) SNB

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