Wayne is leaving for MDANDERSON tomorrow…..
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Wayne is leaving for MDANDERSON tomorrow…..

› Forums › General Melanoma Community › Wayne is leaving for MDANDERSON tomorrow…..

  • Post
    • December 6, 2012 at 2:01 am
    Snickers60
    Participant

    And is not feeling well at all.   I cannot go because I am too ill and I'm anxious after reading such disappointing results for folks on

    Zel.     He is still having horrible leg and foot pains.   The strange thing is it hurts the most after he goes to bed.   Shooting pain….terrible,

    terrible, CRYING shooting pains.   While he is up on his feet they seem to be better, but the minute he tries to lie down and get rest, they

    start and are so very bad.   WE DO NOT KNOW WHAT IS CAUSING THEM.

    And is not feeling well at all.   I cannot go because I am too ill and I'm anxious after reading such disappointing results for folks on

    Zel.     He is still having horrible leg and foot pains.   The strange thing is it hurts the most after he goes to bed.   Shooting pain….terrible,

    terrible, CRYING shooting pains.   While he is up on his feet they seem to be better, but the minute he tries to lie down and get rest, they

    start and are so very bad.   WE DO NOT KNOW WHAT IS CAUSING THEM.

    He had the before they did the heart cath and stent 2 weeks ago, so we do not THINK it is related to that.  We know there's a hand/foot

    syndrome with Zel, but this is even different from that.   He is worried he may not be able to take full dosage much longer and IF it is

    the ZEL causing them.

    I'm dreadfully distressed for him to go alone.   We do nothing without each other, but I've just been so sick, I cannot go.  Waiting on knee

    surgery soon.    He will fly in and out in one day which will really be hard on him.   LONG DAY !   Thank you for any prayers you might

    say for him.     GOD BLESS ALL OF YOU WONDERFUL FIERCE FIGHTERS OF THIS MONSTER BEAST ILLNESS !    You are all

    HEROES in my book !     LORD, give us all strength to endure these very hard trials.   

    Nancy and Wayne (3 X Warrior)   <>< 

Viewing 11 reply threads
  • Replies
      • December 6, 2012 at 2:04 am
      Snickers60
      Participant

      My post came out so whacky – SORRY – must be the tears in the way !   :-(((

      • December 6, 2012 at 2:04 am
      Snickers60
      Participant

      My post came out so whacky – SORRY – must be the tears in the way !   :-(((

        • December 6, 2012 at 3:24 am
        awillett1991
        Participant
        I hope for the best of luck for Wayne. I have neuropathy in my legs from prior biochemo and Zel really aggravates it, seems to always kick in at bedtime. Shooting pains up my legs. I had to go on something so i could sleep. Maybe this is what Wayne has as well. I’m sure Dr B will be able to help.
        • December 6, 2012 at 3:24 am
        awillett1991
        Participant
        I hope for the best of luck for Wayne. I have neuropathy in my legs from prior biochemo and Zel really aggravates it, seems to always kick in at bedtime. Shooting pains up my legs. I had to go on something so i could sleep. Maybe this is what Wayne has as well. I’m sure Dr B will be able to help.
        • December 6, 2012 at 3:25 am
        awillett1991
        Participant
        and prayers for you both!!
        • December 6, 2012 at 3:25 am
        awillett1991
        Participant
        and prayers for you both!!
        • December 6, 2012 at 3:25 am
        awillett1991
        Participant
        and prayers for you both!!
        • December 6, 2012 at 3:24 am
        awillett1991
        Participant
        I hope for the best of luck for Wayne. I have neuropathy in my legs from prior biochemo and Zel really aggravates it, seems to always kick in at bedtime. Shooting pains up my legs. I had to go on something so i could sleep. Maybe this is what Wayne has as well. I’m sure Dr B will be able to help.
      • December 6, 2012 at 2:04 am
      Snickers60
      Participant

      My post came out so whacky – SORRY – must be the tears in the way !   :-(((

      • December 6, 2012 at 4:21 am
      aldakota22
      Participant

      Just got back on site and really sad to see  Wayne is hurting.Keep fighting and I will keep praying for both of you.Beat the Beast. Al

      • December 6, 2012 at 4:21 am
      aldakota22
      Participant

      Just got back on site and really sad to see  Wayne is hurting.Keep fighting and I will keep praying for both of you.Beat the Beast. Al

        • December 6, 2012 at 9:12 am
        Snickers60
        Participant

        He has been taking Zanax for rest – but it does not over-ride the pain.   I have only seen Wayne cry about 3-4 times in 27 years.   Devastating to me.  I'm thinking neurotin is on the way, but he has done so well on Zel that I keep thinking maybe if they reduced the dose just 2 pills a day (he's on 4 X AM and PM) that might help, but Dr. B is NOT INTO reducing dosage though I read others are doing well on a reduced dosage.  I hate to see him on even more drugs – but you do what you have to do.   I just wish he no longer had to work.   2 more years to retirement.   I so wish he could, at least, be home to suffer, and not in such a stressful situation at work.   :-((((

        How active are you guys ?   Wayne makes it through work – hits sofa – then bed – and that's it.  Weekends we try to KEEP DATE DAY on Saturday to do something really enjoyable – at least lunch – when WE BOTH CAN, but he's pretty wiped the rest of the time.  

        Thank you for your prayers and pray for all of you.   

        P.S.    HIS HAIR IS COMING BACK……..:-))    Curly as can be.    Looks like a newborn babe.   Coming back on chest some too.    Thank God for small blessings.     That helps his feelings.    

        KEEP THE FAITH !!!!!

        Nancy (devoted wife of 3 X Warrior Wayne)  <><

         

        • December 6, 2012 at 9:12 am
        Snickers60
        Participant

        He has been taking Zanax for rest – but it does not over-ride the pain.   I have only seen Wayne cry about 3-4 times in 27 years.   Devastating to me.  I'm thinking neurotin is on the way, but he has done so well on Zel that I keep thinking maybe if they reduced the dose just 2 pills a day (he's on 4 X AM and PM) that might help, but Dr. B is NOT INTO reducing dosage though I read others are doing well on a reduced dosage.  I hate to see him on even more drugs – but you do what you have to do.   I just wish he no longer had to work.   2 more years to retirement.   I so wish he could, at least, be home to suffer, and not in such a stressful situation at work.   :-((((

        How active are you guys ?   Wayne makes it through work – hits sofa – then bed – and that's it.  Weekends we try to KEEP DATE DAY on Saturday to do something really enjoyable – at least lunch – when WE BOTH CAN, but he's pretty wiped the rest of the time.  

        Thank you for your prayers and pray for all of you.   

        P.S.    HIS HAIR IS COMING BACK……..:-))    Curly as can be.    Looks like a newborn babe.   Coming back on chest some too.    Thank God for small blessings.     That helps his feelings.    

        KEEP THE FAITH !!!!!

        Nancy (devoted wife of 3 X Warrior Wayne)  <><

         

        • December 6, 2012 at 9:12 am
        Snickers60
        Participant

        He has been taking Zanax for rest – but it does not over-ride the pain.   I have only seen Wayne cry about 3-4 times in 27 years.   Devastating to me.  I'm thinking neurotin is on the way, but he has done so well on Zel that I keep thinking maybe if they reduced the dose just 2 pills a day (he's on 4 X AM and PM) that might help, but Dr. B is NOT INTO reducing dosage though I read others are doing well on a reduced dosage.  I hate to see him on even more drugs – but you do what you have to do.   I just wish he no longer had to work.   2 more years to retirement.   I so wish he could, at least, be home to suffer, and not in such a stressful situation at work.   :-((((

        How active are you guys ?   Wayne makes it through work – hits sofa – then bed – and that's it.  Weekends we try to KEEP DATE DAY on Saturday to do something really enjoyable – at least lunch – when WE BOTH CAN, but he's pretty wiped the rest of the time.  

        Thank you for your prayers and pray for all of you.   

        P.S.    HIS HAIR IS COMING BACK……..:-))    Curly as can be.    Looks like a newborn babe.   Coming back on chest some too.    Thank God for small blessings.     That helps his feelings.    

        KEEP THE FAITH !!!!!

        Nancy (devoted wife of 3 X Warrior Wayne)  <><

         

      • December 6, 2012 at 4:21 am
      aldakota22
      Participant

      Just got back on site and really sad to see  Wayne is hurting.Keep fighting and I will keep praying for both of you.Beat the Beast. Al

      • December 6, 2012 at 12:23 pm
      rosa1
      Participant

      So very sorry to hear this.  Hope he gets some relief from the pain after he sees the doctor.  I'll pray for both of you.  Keep the faith!

      Rosa

      • December 6, 2012 at 12:23 pm
      rosa1
      Participant

      So very sorry to hear this.  Hope he gets some relief from the pain after he sees the doctor.  I'll pray for both of you.  Keep the faith!

      Rosa

      • December 6, 2012 at 12:23 pm
      rosa1
      Participant

      So very sorry to hear this.  Hope he gets some relief from the pain after he sees the doctor.  I'll pray for both of you.  Keep the faith!

      Rosa

      • December 6, 2012 at 4:14 pm
      Tina D
      Participant

      Oh Nancy… I am so sorry you were unable to travel with him for this. Prying all goes well at the appt and that he gets encouraging news to bring home to celebrate with you 🙂  I am sure they will take wonderful care of him, but I know you will be so glad to have him back home. We will be anxiously awaiting updates and hoping for good news.

      Tina

      • December 6, 2012 at 4:14 pm
      Tina D
      Participant

      Oh Nancy… I am so sorry you were unable to travel with him for this. Prying all goes well at the appt and that he gets encouraging news to bring home to celebrate with you 🙂  I am sure they will take wonderful care of him, but I know you will be so glad to have him back home. We will be anxiously awaiting updates and hoping for good news.

      Tina

      • December 6, 2012 at 4:14 pm
      Tina D
      Participant

      Oh Nancy… I am so sorry you were unable to travel with him for this. Prying all goes well at the appt and that he gets encouraging news to bring home to celebrate with you 🙂  I am sure they will take wonderful care of him, but I know you will be so glad to have him back home. We will be anxiously awaiting updates and hoping for good news.

      Tina

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