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Waiting for Ipi

Forums General Melanoma Community Waiting for Ipi

  • Post
    mzeigler
    Participant

      My wife completed 4 rounds of ipi and had our first scans.  No new mets!  The largest met did not change and the smaller ones looked

      slightly larger but not much change.  Now we wait 4 weeks and and repeat scans.  She seems fatigued, and has stiffness and aches

      in her joints and muscles.  We can put up with it if it stops the melanoma.  Mean while, doctor is testing for the braf mutation if the ipi does

      not work.   He has access to braf/mek drugs and one called E7080.  The one he uses will depend on the test.

      My wife completed 4 rounds of ipi and had our first scans.  No new mets!  The largest met did not change and the smaller ones looked

      slightly larger but not much change.  Now we wait 4 weeks and and repeat scans.  She seems fatigued, and has stiffness and aches

      in her joints and muscles.  We can put up with it if it stops the melanoma.  Mean while, doctor is testing for the braf mutation if the ipi does

      not work.   He has access to braf/mek drugs and one called E7080.  The one he uses will depend on the test.

      It's been a long haul.

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    • Replies
        nickmac56
        Participant

          that 4 weeks wait is tough, I wish you the best. My wife just had her 16 week scan after Ipi and it didn't work, so we are off to the NCI. So that probably improves your wife's odds of success!

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          nickmac56
          Participant

            that 4 weeks wait is tough, I wish you the best. My wife just had her 16 week scan after Ipi and it didn't work, so we are off to the NCI. So that probably improves your wife's odds of success!

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