The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Urgent Need – Any Insight & Ideas

Forums General Melanoma Community Urgent Need – Any Insight & Ideas

  • Post
    Napa K
    Participant

    Hoping for and welcoming any input on any other potential protocol options for a fellow patient located in Central California.

     

    *Stage IV, mom of two young children, diagnosed Fall '09.

    *Has had surgery (spleen removed) failed PLX4032, high dose IL2 & Ipi ; has had WBR

    *Has advancing brain mets (12 +) growing rapidly and rapid growing sub cue nodules

    *As of yesterday she was given the last option of oral themolizide by her oncologist.

     

    Hoping for and welcoming any input on any other potential protocol options for a fellow patient located in Central California.

     

    *Stage IV, mom of two young children, diagnosed Fall '09.

    *Has had surgery (spleen removed) failed PLX4032, high dose IL2 & Ipi ; has had WBR

    *Has advancing brain mets (12 +) growing rapidly and rapid growing sub cue nodules

    *As of yesterday she was given the last option of oral themolizide by her oncologist.

     

    If you have any info to share, please let us know. And please include lovely Reese and her family in your prayers.

     

    Be well-

    Kari 

    Loading spinner
Viewing 3 reply threads
  • Replies
      Linda/Kentucky
      Participant

      Kari,

      My husband stage IV innumerable liver,lung mets is kind of in the same boat with you.  Failed IL-2 and Ipi.  Our oncologist is not giving us alot of options.  He offered DTIC, Taxol/ Carboplatin, a trial he is doing with Nexavar/ARQ 197 (I know nothing about).  He is getting a genetic profiling done right now and praying he may have the Kit gene??? 

      Anyway good luck finding something for you to try.  It is so very frustrating knowing which bridge to cross.  I am trusting in prayers to lead us. 

       

      Linda/Kentucky

      Loading spinner
      Linda/Kentucky
      Participant

      Kari,

      My husband stage IV innumerable liver,lung mets is kind of in the same boat with you.  Failed IL-2 and Ipi.  Our oncologist is not giving us alot of options.  He offered DTIC, Taxol/ Carboplatin, a trial he is doing with Nexavar/ARQ 197 (I know nothing about).  He is getting a genetic profiling done right now and praying he may have the Kit gene??? 

      Anyway good luck finding something for you to try.  It is so very frustrating knowing which bridge to cross.  I am trusting in prayers to lead us. 

       

      Linda/Kentucky

      Loading spinner
      Sherron
      Participant

      Kari, I have no ideas for your friend, but I can keep Reese and her family in my prayers.  I hope they can find a treatment for her.

      Take Care,

      Sherron, wife to Jim

      Loading spinner
      Sherron
      Participant

      Kari, I have no ideas for your friend, but I can keep Reese and her family in my prayers.  I hope they can find a treatment for her.

      Take Care,

      Sherron, wife to Jim

      Loading spinner
Viewing 3 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.