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Updating melanoma website, need input, help, useful links…
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Updating melanoma website, need input, help, useful links…

› Forums › General Melanoma Community › Updating melanoma website, need input, help, useful links…

  • Post
    • June 27, 2016 at 3:28 am
    Janner
    Participant

      I have ignored my melanomaresources.info website for a long time,  I'm attempting a revamp of the website – moving the domain to melanomaresources.com in the next month or two.  I'm sure I have many broken links and lots of links need to be updated reflecting more current info.

      I am looking for links that have been particularly helpful to you – that may be helpful to others.  My website currently has the categories listed below.  I am willing to add/delete based on input.  And if anyone wants to spend a little time helping me check links and decide which are out to date, I'd appreciate any input!  smiley  I either need to update the site or trash it, and I've decided to give it one more attempt to bring it up to date.  This is only a sideline for me nowadays (and I still have a real job) so INPUT IS WELCOME.

      Categories I'm currently using:

      Organizations
      Newly Diagnosed
      Staging
      Guidelines
      Educational Material
      Photos
      Treatment Options by stage
      Articles
      Patient Perspectives
      Lymphatic System
      Pathology
      Anatomy
      Medical Terminology
      Wound Care
      Cancer Care
      Survivorship
      Psychology of Cancer
      Cancer Myths
      Recurrent Melanoma
      Multiple Primaries
      Unknown Primaries
      Atypical Nevi
      Mole Mapping
      Radiology
      Suncreen
      Clothing
      Melanoma Items
      Pregnancy
      Insurance
      SSDI
      SSI
      Sideline Issues

       

    Viewing 11 reply threads
    • Replies
        • June 27, 2016 at 8:37 am
        Bobman
        Participant

          Hi Janner , 

          Count me in on helping  in any way  you need  to keep  that baby  afloat !  I have too much  idle  time lately , so this is something  I  would  enjoy .  The more comprehensive  information  about  this disease  that's  out there,the better  for everyone .  I'll  start  looking  at it in more detail , and see what's  still  available for starters .  

          Don't  hesitate  to point  me in any direction . ..I'm twiddling  my thumbs  many days  to keep  myself  busy!

          And contributing  in anyway to expand  more  information  to the masses  is something  I can  really  get excited  about . 

           

          Bob

           

           

           

          • June 27, 2016 at 8:37 am
          Bobman
          Participant

            Hi Janner , 

            Count me in on helping  in any way  you need  to keep  that baby  afloat !  I have too much  idle  time lately , so this is something  I  would  enjoy .  The more comprehensive  information  about  this disease  that's  out there,the better  for everyone .  I'll  start  looking  at it in more detail , and see what's  still  available for starters .  

            Don't  hesitate  to point  me in any direction . ..I'm twiddling  my thumbs  many days  to keep  myself  busy!

            And contributing  in anyway to expand  more  information  to the masses  is something  I can  really  get excited  about . 

             

            Bob

             

             

             

            • June 27, 2016 at 8:37 am
            Bobman
            Participant

              Hi Janner , 

              Count me in on helping  in any way  you need  to keep  that baby  afloat !  I have too much  idle  time lately , so this is something  I  would  enjoy .  The more comprehensive  information  about  this disease  that's  out there,the better  for everyone .  I'll  start  looking  at it in more detail , and see what's  still  available for starters .  

              Don't  hesitate  to point  me in any direction . ..I'm twiddling  my thumbs  many days  to keep  myself  busy!

              And contributing  in anyway to expand  more  information  to the masses  is something  I can  really  get excited  about . 

               

              Bob

               

               

               

                • June 27, 2016 at 2:50 pm
                Kimba67
                Participant

                  I will help how ever needed, please know the site is important

                  • June 27, 2016 at 2:50 pm
                  Kimba67
                  Participant

                    I will help how ever needed, please know the site is important

                    • June 27, 2016 at 2:50 pm
                    Kimba67
                    Participant

                      I will help how ever needed, please know the site is important

                    • June 27, 2016 at 7:31 pm
                    Polymath
                    Participant

                      Hi Janner,

                      After a quick scan of your site I came up with two things.

                      Under radiology, there is no reference to using radiation as a treatment option.  Seems there is much to discuss there, especially with the link emerging between radiation therapy and immunotherapy, as well as Gamma/Cyber knife, and WBR treatments.

                      The other, and what I think would be popular area would be video links.  Ed, who responds often to questions seem to be able to point out a pertinent video on most any topic.  I think many people enjoy those tutorials and if they could be arranged by topic, it would be very useful.

                      If these topics were covered, then sorry, my bad.

                      Gary

                       

                        • June 27, 2016 at 8:19 pm
                        Janner
                        Participant

                          Great ideas on the video – may have to rope Ed into helping supply me with some links.  As for the radiation, I'm game.  I just need these links.  That's my problem – hard to remember all and then search.  I have a bunch in my "to be added" bookmarks but I haven't linked to any current treatment info in a while.  My specialty has really been more geared to lower stages.  So anything you have bookmarked, post it here or send to my email.  janrguard-mpip AT yahoo DOT com. 

                          • June 27, 2016 at 8:19 pm
                          Janner
                          Participant

                            Great ideas on the video – may have to rope Ed into helping supply me with some links.  As for the radiation, I'm game.  I just need these links.  That's my problem – hard to remember all and then search.  I have a bunch in my "to be added" bookmarks but I haven't linked to any current treatment info in a while.  My specialty has really been more geared to lower stages.  So anything you have bookmarked, post it here or send to my email.  janrguard-mpip AT yahoo DOT com. 

                            • June 27, 2016 at 8:19 pm
                            Janner
                            Participant

                              Great ideas on the video – may have to rope Ed into helping supply me with some links.  As for the radiation, I'm game.  I just need these links.  That's my problem – hard to remember all and then search.  I have a bunch in my "to be added" bookmarks but I haven't linked to any current treatment info in a while.  My specialty has really been more geared to lower stages.  So anything you have bookmarked, post it here or send to my email.  janrguard-mpip AT yahoo DOT com. 

                              • June 27, 2016 at 9:25 pm
                              jpg
                              Participant

                                I would link to this patient experience video:  http://melanomainternational.org/events-webinar/patient-experience-video/#.V3GZl7grKM8

                                and also the webinars on this site  www.melanomainternational.org  they are by top docs

                                • June 27, 2016 at 9:25 pm
                                jpg
                                Participant

                                  I would link to this patient experience video:  http://melanomainternational.org/events-webinar/patient-experience-video/#.V3GZl7grKM8

                                  and also the webinars on this site  www.melanomainternational.org  they are by top docs

                                  • June 27, 2016 at 9:25 pm
                                  jpg
                                  Participant

                                    I would link to this patient experience video:  http://melanomainternational.org/events-webinar/patient-experience-video/#.V3GZl7grKM8

                                    and also the webinars on this site  www.melanomainternational.org  they are by top docs

                                  • June 27, 2016 at 7:31 pm
                                  Polymath
                                  Participant

                                    Hi Janner,

                                    After a quick scan of your site I came up with two things.

                                    Under radiology, there is no reference to using radiation as a treatment option.  Seems there is much to discuss there, especially with the link emerging between radiation therapy and immunotherapy, as well as Gamma/Cyber knife, and WBR treatments.

                                    The other, and what I think would be popular area would be video links.  Ed, who responds often to questions seem to be able to point out a pertinent video on most any topic.  I think many people enjoy those tutorials and if they could be arranged by topic, it would be very useful.

                                    If these topics were covered, then sorry, my bad.

                                    Gary

                                     

                                    • June 27, 2016 at 7:31 pm
                                    Polymath
                                    Participant

                                      Hi Janner,

                                      After a quick scan of your site I came up with two things.

                                      Under radiology, there is no reference to using radiation as a treatment option.  Seems there is much to discuss there, especially with the link emerging between radiation therapy and immunotherapy, as well as Gamma/Cyber knife, and WBR treatments.

                                      The other, and what I think would be popular area would be video links.  Ed, who responds often to questions seem to be able to point out a pertinent video on most any topic.  I think many people enjoy those tutorials and if they could be arranged by topic, it would be very useful.

                                      If these topics were covered, then sorry, my bad.

                                      Gary

                                       

                                      • June 27, 2016 at 10:54 pm
                                      ed williams
                                      Participant

                                        Hi Janner, if you go to my latest post, just copy the links. Celeste has such a great blog site with links and her thoughts included, it might be usefull to team up with her. Lately I am just trying to be, a copy paste kind of guy, so I don't get the alternative Melanoma treatment folks worked up. Oh bye the way, if no one has told you lately, you really do a great job with all the early stage folks. Best Wishes from Ottawa, Canada!!!Ed

                                        • June 27, 2016 at 10:54 pm
                                        ed williams
                                        Participant

                                          Hi Janner, if you go to my latest post, just copy the links. Celeste has such a great blog site with links and her thoughts included, it might be usefull to team up with her. Lately I am just trying to be, a copy paste kind of guy, so I don't get the alternative Melanoma treatment folks worked up. Oh bye the way, if no one has told you lately, you really do a great job with all the early stage folks. Best Wishes from Ottawa, Canada!!!Ed

                                          • June 27, 2016 at 10:54 pm
                                          ed williams
                                          Participant

                                            Hi Janner, if you go to my latest post, just copy the links. Celeste has such a great blog site with links and her thoughts included, it might be usefull to team up with her. Lately I am just trying to be, a copy paste kind of guy, so I don't get the alternative Melanoma treatment folks worked up. Oh bye the way, if no one has told you lately, you really do a great job with all the early stage folks. Best Wishes from Ottawa, Canada!!!Ed

                                            • June 30, 2016 at 4:23 am
                                            Janner
                                            Participant

                                              If anyone else wants to help, this is what I am looking for.

                                              Take any of the categories I have listed in my orignal post.  Google it.  See if there are any good links that show up.  It's been 5 years since I updated the site and there is lots of good information out there that I'd like to capture.

                                              Post here or email me with any results.

                                              Thanks in advance!

                                              • June 30, 2016 at 4:23 am
                                              Janner
                                              Participant

                                                If anyone else wants to help, this is what I am looking for.

                                                Take any of the categories I have listed in my orignal post.  Google it.  See if there are any good links that show up.  It's been 5 years since I updated the site and there is lots of good information out there that I'd like to capture.

                                                Post here or email me with any results.

                                                Thanks in advance!

                                                • June 30, 2016 at 4:23 am
                                                Janner
                                                Participant

                                                  If anyone else wants to help, this is what I am looking for.

                                                  Take any of the categories I have listed in my orignal post.  Google it.  See if there are any good links that show up.  It's been 5 years since I updated the site and there is lots of good information out there that I'd like to capture.

                                                  Post here or email me with any results.

                                                  Thanks in advance!

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