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update to my update about Dad

Forums General Melanoma Community update to my update about Dad

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    snow white

      so I was out of town with my husband on business all last week.  Dad was due to have infusion on Tuesday.  I was told that all was well, it turns out that they did not want me to worry while I was away.  The infusion did not happen on Tuesday, his liver enzymes were to elevated.  He started on steroids and will hopefully get his 3rd infusion the middle of April, which pushes his final infusion to some time in May, he is not a happy camper about this.  From my reading on this board, I know from Deb and others that this is a common occurrence, so I am not to worried.  That is about it for now.  I hope you are all doing well today!

      xo Jen

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          Hi Jen,

          Yes.. One of the common side effects but if you find the right bit on Celeste s blog .. Stopping treatment with combo early due to side effects does not mean the benefits of treatment are stopped…many  are responders in spite of treatment delays, steroids and even treatment being stopped due to the side effects. So hang on in there and see how things turn out.. It maybe thasthast he goes from here to nivo only.. But if IPI had his immune system running hot that he was attacking his liver.. That is hot enough for now and he will have to be a bit patient. Sounds like he is more his normal self now rather than how he sounded at Christmas time.

          Hope all goes well with the treatment.. Am sure he is in good hands.. Just a warning though.- he might get the liver numbers under control and weaned off steroids but sometimes they rebound and go up again unexpectedly,-not something you want but it scan happen this way which is why the docs usually taper the steroids over a month in the hope of avoiding this. It is all different for each patient. Am sure the docs will have him back on the meds as soon as they think it is safe for his liver .

          Thinking of you and your family



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