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Update re combination immunotherapy, and advice?
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Update re combination immunotherapy, and advice?

› Forums › General Melanoma Community › Update re combination immunotherapy, and advice?

  • Post
    • November 29, 2018 at 3:39 am
    Rosiepup
    Participant

      Hi thanks for the support given, Finally  feel able to give you an update:-

      Unfortunately things have not gone very well for me! I received my combination immunotherapy on Monday 12th November and over the week and a half after my immunotherapy Treatment’s I became progressively more breathless, to the point where I couldn’t walk the length of the hall without gasping, the only way I could get relief was to lie down flat! This Culminated in me being admitted to the Hospital after my radiation treatment last Tuesday, 20th Nov, and I’m still in! Initially it was thought it was pneumonitis but CT shows bilateral plural effusions & oedema, I’m receiving diuretics & oxygen treatment.

      The feeling is, it is probably due to the treatment.  However my oncologist is struggling to find any similar cases, especially so soon after the first combo therapy? Does this sound similar to anyone’s experiences or can anyone shed any light on it, I’m really perplexed its gone wrong in this way??

      Any advice, information would be much appreciated!
      Thanks
      Fi

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    • Replies
        • November 29, 2018 at 6:18 am
        Antonio
        Participant

          Hey 

          so sorry to hear that , my father in Italy had exactly the same problem but was his 6th treatment with keytruda 

          the combo immunotherapy radiation made him very dyspnoic and gave him oedema exactly like you. 

          He had also several episodes of atrial fibrillation a problem that has being affecting him most of his life but but not with that frequency. 

          Wonder if you are experiencing the same 

          Hope you will feel better soon . 

          Antonio 

          • November 29, 2018 at 7:38 pm
          MelanomaMike
          Participant

            Hi Rosiepup, im Mike, bless yer heart! stay strong and do what i do when side effects pop up, i just say to myself "Pros & Cons" Pros & Cons"…Ive had me share believe me, but we come out of it…

            • November 29, 2018 at 7:52 pm
            sing123
            Participant

              So sorry to hear this. Hope you're feeling better soon. 

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