› Forums › General Melanoma Community › Update on Joslyn in Canada
- This topic has 6 replies, 3 voices, and was last updated 12 years, 11 months ago by
jimjoeb.
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- June 12, 2011 at 6:38 pm
Hi everyone!
Well I'm home from the hospital and have had my first homecare visit. The surgery (left inguinal dissection) went well. My surgeon only took the superficial nodes because there was no macro evidence of cancer. She was also able to save the vein. Thank you, God, for a skilled surgeon!
I feel well but need to remember my energy will have its limitations for a while. I have one drain that I am able to look after myself. The goal is 20 cc per day for two days in a row.
Hi everyone!
Well I'm home from the hospital and have had my first homecare visit. The surgery (left inguinal dissection) went well. My surgeon only took the superficial nodes because there was no macro evidence of cancer. She was also able to save the vein. Thank you, God, for a skilled surgeon!
I feel well but need to remember my energy will have its limitations for a while. I have one drain that I am able to look after myself. The goal is 20 cc per day for two days in a row.
From a pathology point of view, I expect the results by June 17 from two new biopsies by my dermatologist took on June 8. There may be a provisional pathology report around the same time from the surgery and another biopsy taken by the surgeon in a different spot while I was under general anesthetic. I expect the final pathology report from the surgery the week of June 27th.
In the meantime, I'm focusing, or trying to, on recovery from the surgery and in doing all of the right things for lymphedema risk management. My surgeon has referred me to a physiotherapist who specializes in CDT. I hope to meet with that team this week. In the interim, I'm wearing a compression stocking on both legs and keeping the left leg elevated as instructed by the hospital medical team.
So far so good and I am determined to maintain my optimism.
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- June 12, 2011 at 11:34 pm
Glad to hear that you are home. Also good news that your surgeon has referred you to a physiotherapist who specialized in CDT. They will measure your leg as soon as possible and in that way, they will be able to keep an eye on 'swelling'. I hope you don't end up with lymphedema but on the other hand, it can be manageable. I pray you had a successful surgery and that melanoma has been stopped in its tracks. Val, stage IV
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- June 12, 2011 at 11:51 pm
I also hope that your pathology report is good and your melanoma won't be back for a VERY long time.
I had all the superficial nodes removed on the right side and had no lymphedema at all since surgery in February. I sat on a 45 degree angle for 2 weeks which I think helped alot! I was draining 200cc a day in the beginning, so your 20cc in 2 days seems very small compared to mine. My drain was in for 4 weeks and when it came out I was free!
Best of luck to you.
Lisa – Stage 4
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- June 12, 2011 at 11:51 pm
I also hope that your pathology report is good and your melanoma won't be back for a VERY long time.
I had all the superficial nodes removed on the right side and had no lymphedema at all since surgery in February. I sat on a 45 degree angle for 2 weeks which I think helped alot! I was draining 200cc a day in the beginning, so your 20cc in 2 days seems very small compared to mine. My drain was in for 4 weeks and when it came out I was free!
Best of luck to you.
Lisa – Stage 4
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- June 12, 2011 at 11:34 pm
Glad to hear that you are home. Also good news that your surgeon has referred you to a physiotherapist who specialized in CDT. They will measure your leg as soon as possible and in that way, they will be able to keep an eye on 'swelling'. I hope you don't end up with lymphedema but on the other hand, it can be manageable. I pray you had a successful surgery and that melanoma has been stopped in its tracks. Val, stage IV
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- June 13, 2011 at 3:56 pm
Thanks to both of you for your support and my best wishes to you as well!
I was fortunate to get an appointment today for the first assessment with the physio therapist. I want to continue to be active, so anything that I can do do manage the risk will make sense to me. I'll provide an update about the plan.
The drain system is a lot less bulky than I imagined it to be. It's pretty straightforward to empty and measure it twice a day. There already seems to progress in the volume and the colour (less pink). I like to think that it's because I have a strong immune system and perhaps because of the homeopathics that I am taking to complement the medical treatments. Because of some of those homeopathics, I didn't need any of the medication for pain that was prescribed, and there is almost no bruising or swelling.
Now for those pathology reports…….
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- June 13, 2011 at 3:56 pm
Thanks to both of you for your support and my best wishes to you as well!
I was fortunate to get an appointment today for the first assessment with the physio therapist. I want to continue to be active, so anything that I can do do manage the risk will make sense to me. I'll provide an update about the plan.
The drain system is a lot less bulky than I imagined it to be. It's pretty straightforward to empty and measure it twice a day. There already seems to progress in the volume and the colour (less pink). I like to think that it's because I have a strong immune system and perhaps because of the homeopathics that I am taking to complement the medical treatments. Because of some of those homeopathics, I didn't need any of the medication for pain that was prescribed, and there is almost no bruising or swelling.
Now for those pathology reports…….
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