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Update on Jenna…Finally!

Forums General Melanoma Community Update on Jenna…Finally!

  • Post
    Lauren mom to Jenna
    Participant

    I am feeling guilty for not posting sooner, but we have been in the heat of it.  Jenna started to get really sick on the ipi trial, and we were thinking that maybe it was a good thing, but her disease continued to grow and spead.  She had bumps coming up everywhere…neck, chest, back, abdomen, even in the muscles of her arms and legs.  We knew we were losing ground quickly.  We had been pursuing MD Anderson for a MEK combo trial (since she responded so well to the MEK) for several months, and finally they were able to get her a spot in the BRAF/MEK trial…and none too

    I am feeling guilty for not posting sooner, but we have been in the heat of it.  Jenna started to get really sick on the ipi trial, and we were thinking that maybe it was a good thing, but her disease continued to grow and spead.  She had bumps coming up everywhere…neck, chest, back, abdomen, even in the muscles of her arms and legs.  We knew we were losing ground quickly.  We had been pursuing MD Anderson for a MEK combo trial (since she responded so well to the MEK) for several months, and finally they were able to get her a spot in the BRAF/MEK trial…and none too soon.  It was difficult just traveling to get there.  We have been here for 2 weeks now and she started treatment one week ago today…Amazing!…her lumps are melting away, and she is feeling much better.  The CT scan that she had last week prior to starting was devastating.  Pretty much the only place she didn't have disease was her spleen.  She will not be scanned again for 2 months, but as we watch her visible disease fade, and she continues to feel better, we are encouraged to believe that internally she is responding well too. 

    Thank you to all of you who have been praying for, Jenna.  It has carried us through some real lows to a place where we have hope for healing again. 

    We are scheduled to go home tomorrw, and are looking forward to getting some "normalcy". 

    Happy in Houston!

    Lauren (mom to Jenna)

     

     

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  • Replies
      KatyWI
      Participant

      Amazing indeed!  Thanks for a joyous update.  I hope the news keeps getting better.

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      KatyWI
      Participant

      Amazing indeed!  Thanks for a joyous update.  I hope the news keeps getting better.

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      Becky
      Participant

      Lauren

      I have been thinking about you guys and so happy for the positive update. Hang in there!

      Becky

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      Becky
      Participant

      Lauren

      I have been thinking about you guys and so happy for the positive update. Hang in there!

      Becky

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      King
      Participant

      Do not feel guilty for one minute for not posting sooner.  There are only 24 hours in a day!!!  I promise to keep you and Jenna in my prayers.  I'm thrilled that you are able to return home tomorrow.

      Stay Strong
      King

      Stage IV 7/05 Liver mets

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      King
      Participant

      Do not feel guilty for one minute for not posting sooner.  There are only 24 hours in a day!!!  I promise to keep you and Jenna in my prayers.  I'm thrilled that you are able to return home tomorrow.

      Stay Strong
      King

      Stage IV 7/05 Liver mets

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      dian in spokane
      Participant

      Amazing, really.

      Thank you so much for writing when things must still be so unsettled for you.

      Keeping you in my thoughts.

      dian

       

       

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      dian in spokane
      Participant

      Amazing, really.

      Thank you so much for writing when things must still be so unsettled for you.

      Keeping you in my thoughts.

      dian

       

       

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      Hi Lauren, Glad to hear that Jenna is back on treatment that is working for her… sending you both positive thoughts all the way from OZ. Tina

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      Hi Lauren, Glad to hear that Jenna is back on treatment that is working for her… sending you both positive thoughts all the way from OZ. Tina

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      James from Sydney
      Participant

      Lauren

      we are thinking of you guys so much and its great to hear Jenna is responding, i hope Jenna continues her improvement. You are a great mum and you must be so so proud of her, 

      best wishes

      James

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      James from Sydney
      Participant

      Lauren

      we are thinking of you guys so much and its great to hear Jenna is responding, i hope Jenna continues her improvement. You are a great mum and you must be so so proud of her, 

      best wishes

      James

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      jag
      Participant

      Very glad to hear that Jenna is doing well.  Will keep up the prayers

      God Bless

      John

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      jag
      Participant

      Very glad to hear that Jenna is doing well.  Will keep up the prayers

      God Bless

      John

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      lhaley
      Participant

      Thank you for letting us know.  So glad that Jenna continues to feel better, hopefully this is a good sign.

      Sending prayers and good vibes,

      Linda

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      lhaley
      Participant

      Thank you for letting us know.  So glad that Jenna continues to feel better, hopefully this is a good sign.

      Sending prayers and good vibes,

      Linda

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      sharmon
      Participant

      It was wonderful to hear from you.  Brent and I are back home and normal never felt so good.  I know how you must feel about the progress.  Is this amazing news or what????  Blessings to you and Jenna and Dad to!  Keep up the good work and we are thinking of you daily.  Prayers and hugs all around. 

      Sharon and Brent

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      sharmon
      Participant

      It was wonderful to hear from you.  Brent and I are back home and normal never felt so good.  I know how you must feel about the progress.  Is this amazing news or what????  Blessings to you and Jenna and Dad to!  Keep up the good work and we are thinking of you daily.  Prayers and hugs all around. 

      Sharon and Brent

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      ValinMtl
      Participant

      Thank you Lauren for posting and keeping us informed.  We all are sending positive vibes and prayers for Jenna as you well know.  May the disease faded away forever and ever.  Val

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      ValinMtl
      Participant

      Thank you Lauren for posting and keeping us informed.  We all are sending positive vibes and prayers for Jenna as you well know.  May the disease faded away forever and ever.  Val

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      Sharyn
      Participant

      Lauren, what a rollercoaster ride indeed! But I am so happy to hear that Jenna has bounced back, and I wish her continued healing. Thank you for the update.

      Hugs

      Sharyn

      Stage IV

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      Sharyn
      Participant

      Lauren, what a rollercoaster ride indeed! But I am so happy to hear that Jenna has bounced back, and I wish her continued healing. Thank you for the update.

      Hugs

      Sharyn

      Stage IV

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      MaryD
      Participant

      What a challenging few weeks it has been but I am so happy you and Jenna will be coming home!   Prayers, of course, continue but how encouraging to see the response Jenna is having to the trial and thankfully she is feeling better too.

      You have a safe trip back home and I hope both of you can get some much needed rest!

      Love,

      Mary

       

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      MaryD
      Participant

      What a challenging few weeks it has been but I am so happy you and Jenna will be coming home!   Prayers, of course, continue but how encouraging to see the response Jenna is having to the trial and thankfully she is feeling better too.

      You have a safe trip back home and I hope both of you can get some much needed rest!

      Love,

      Mary

       

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      Donna
      Participant

      Terrific news that Jenna is responding to this treatment. My thoughts are with you and your family.

      Donna R (mom to Jaime, mel angel)

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        KellieSue
        Participant

        I'm so glad to hear the trial is working for Jenna. What a stressful few weeks that must have been!

         

        Kellie, Stage IV

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        KellieSue
        Participant

        I'm so glad to hear the trial is working for Jenna. What a stressful few weeks that must have been!

         

        Kellie, Stage IV

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      Donna
      Participant

      Terrific news that Jenna is responding to this treatment. My thoughts are with you and your family.

      Donna R (mom to Jaime, mel angel)

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