The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Update on Jenna…Finally!

Forums General Melanoma Community Update on Jenna…Finally!

  • Post
    Lauren mom to Jenna
    Participant

      I am feeling guilty for not posting sooner, but we have been in the heat of it.  Jenna started to get really sick on the ipi trial, and we were thinking that maybe it was a good thing, but her disease continued to grow and spead.  She had bumps coming up everywhere…neck, chest, back, abdomen, even in the muscles of her arms and legs.  We knew we were losing ground quickly.  We had been pursuing MD Anderson for a MEK combo trial (since she responded so well to the MEK) for several months, and finally they were able to get her a spot in the BRAF/MEK trial…and none too

      I am feeling guilty for not posting sooner, but we have been in the heat of it.  Jenna started to get really sick on the ipi trial, and we were thinking that maybe it was a good thing, but her disease continued to grow and spead.  She had bumps coming up everywhere…neck, chest, back, abdomen, even in the muscles of her arms and legs.  We knew we were losing ground quickly.  We had been pursuing MD Anderson for a MEK combo trial (since she responded so well to the MEK) for several months, and finally they were able to get her a spot in the BRAF/MEK trial…and none too soon.  It was difficult just traveling to get there.  We have been here for 2 weeks now and she started treatment one week ago today…Amazing!…her lumps are melting away, and she is feeling much better.  The CT scan that she had last week prior to starting was devastating.  Pretty much the only place she didn't have disease was her spleen.  She will not be scanned again for 2 months, but as we watch her visible disease fade, and she continues to feel better, we are encouraged to believe that internally she is responding well too. 

      Thank you to all of you who have been praying for, Jenna.  It has carried us through some real lows to a place where we have hope for healing again. 

      We are scheduled to go home tomorrw, and are looking forward to getting some "normalcy". 

      Happy in Houston!

      Lauren (mom to Jenna)

       

       

      Loading spinner
    Viewing 25 reply threads
    • Replies
        KatyWI
        Participant

          Amazing indeed!  Thanks for a joyous update.  I hope the news keeps getting better.

          Loading spinner
          KatyWI
          Participant

            Amazing indeed!  Thanks for a joyous update.  I hope the news keeps getting better.

            Loading spinner
            Becky
            Participant

              Lauren

              I have been thinking about you guys and so happy for the positive update. Hang in there!

              Becky

              Loading spinner
              Becky
              Participant

                Lauren

                I have been thinking about you guys and so happy for the positive update. Hang in there!

                Becky

                Loading spinner
                King
                Participant

                  Do not feel guilty for one minute for not posting sooner.  There are only 24 hours in a day!!!  I promise to keep you and Jenna in my prayers.  I'm thrilled that you are able to return home tomorrow.

                  Stay Strong
                  King

                  Stage IV 7/05 Liver mets

                  Loading spinner
                  King
                  Participant

                    Do not feel guilty for one minute for not posting sooner.  There are only 24 hours in a day!!!  I promise to keep you and Jenna in my prayers.  I'm thrilled that you are able to return home tomorrow.

                    Stay Strong
                    King

                    Stage IV 7/05 Liver mets

                    Loading spinner
                    dian in spokane
                    Participant

                      Amazing, really.

                      Thank you so much for writing when things must still be so unsettled for you.

                      Keeping you in my thoughts.

                      dian

                       

                       

                      Loading spinner
                      dian in spokane
                      Participant

                        Amazing, really.

                        Thank you so much for writing when things must still be so unsettled for you.

                        Keeping you in my thoughts.

                        dian

                         

                         

                        Loading spinner

                        Hi Lauren, Glad to hear that Jenna is back on treatment that is working for her… sending you both positive thoughts all the way from OZ. Tina

                        Loading spinner

                        Hi Lauren, Glad to hear that Jenna is back on treatment that is working for her… sending you both positive thoughts all the way from OZ. Tina

                        Loading spinner
                        James from Sydney
                        Participant

                          Lauren

                          we are thinking of you guys so much and its great to hear Jenna is responding, i hope Jenna continues her improvement. You are a great mum and you must be so so proud of her, 

                          best wishes

                          James

                          Loading spinner
                          James from Sydney
                          Participant

                            Lauren

                            we are thinking of you guys so much and its great to hear Jenna is responding, i hope Jenna continues her improvement. You are a great mum and you must be so so proud of her, 

                            best wishes

                            James

                            Loading spinner
                            jag
                            Participant

                              Very glad to hear that Jenna is doing well.  Will keep up the prayers

                              God Bless

                              John

                              Loading spinner
                              jag
                              Participant

                                Very glad to hear that Jenna is doing well.  Will keep up the prayers

                                God Bless

                                John

                                Loading spinner
                                lhaley
                                Participant

                                  Thank you for letting us know.  So glad that Jenna continues to feel better, hopefully this is a good sign.

                                  Sending prayers and good vibes,

                                  Linda

                                  Loading spinner
                                  lhaley
                                  Participant

                                    Thank you for letting us know.  So glad that Jenna continues to feel better, hopefully this is a good sign.

                                    Sending prayers and good vibes,

                                    Linda

                                    Loading spinner
                                    sharmon
                                    Participant

                                      It was wonderful to hear from you.  Brent and I are back home and normal never felt so good.  I know how you must feel about the progress.  Is this amazing news or what????  Blessings to you and Jenna and Dad to!  Keep up the good work and we are thinking of you daily.  Prayers and hugs all around. 

                                      Sharon and Brent

                                      Loading spinner
                                      sharmon
                                      Participant

                                        It was wonderful to hear from you.  Brent and I are back home and normal never felt so good.  I know how you must feel about the progress.  Is this amazing news or what????  Blessings to you and Jenna and Dad to!  Keep up the good work and we are thinking of you daily.  Prayers and hugs all around. 

                                        Sharon and Brent

                                        Loading spinner
                                        ValinMtl
                                        Participant

                                          Thank you Lauren for posting and keeping us informed.  We all are sending positive vibes and prayers for Jenna as you well know.  May the disease faded away forever and ever.  Val

                                          Loading spinner
                                          ValinMtl
                                          Participant

                                            Thank you Lauren for posting and keeping us informed.  We all are sending positive vibes and prayers for Jenna as you well know.  May the disease faded away forever and ever.  Val

                                            Loading spinner
                                            Sharyn
                                            Participant

                                              Lauren, what a rollercoaster ride indeed! But I am so happy to hear that Jenna has bounced back, and I wish her continued healing. Thank you for the update.

                                              Hugs

                                              Sharyn

                                              Stage IV

                                              Loading spinner
                                              Sharyn
                                              Participant

                                                Lauren, what a rollercoaster ride indeed! But I am so happy to hear that Jenna has bounced back, and I wish her continued healing. Thank you for the update.

                                                Hugs

                                                Sharyn

                                                Stage IV

                                                Loading spinner
                                                MaryD
                                                Participant

                                                  What a challenging few weeks it has been but I am so happy you and Jenna will be coming home!   Prayers, of course, continue but how encouraging to see the response Jenna is having to the trial and thankfully she is feeling better too.

                                                  You have a safe trip back home and I hope both of you can get some much needed rest!

                                                  Love,

                                                  Mary

                                                   

                                                  Loading spinner
                                                  MaryD
                                                  Participant

                                                    What a challenging few weeks it has been but I am so happy you and Jenna will be coming home!   Prayers, of course, continue but how encouraging to see the response Jenna is having to the trial and thankfully she is feeling better too.

                                                    You have a safe trip back home and I hope both of you can get some much needed rest!

                                                    Love,

                                                    Mary

                                                     

                                                    Loading spinner
                                                    Donna
                                                    Participant

                                                      Terrific news that Jenna is responding to this treatment. My thoughts are with you and your family.

                                                      Donna R (mom to Jaime, mel angel)

                                                      Loading spinner
                                                        KellieSue
                                                        Participant

                                                          I'm so glad to hear the trial is working for Jenna. What a stressful few weeks that must have been!

                                                           

                                                          Kellie, Stage IV

                                                          Loading spinner
                                                          KellieSue
                                                          Participant

                                                            I'm so glad to hear the trial is working for Jenna. What a stressful few weeks that must have been!

                                                             

                                                            Kellie, Stage IV

                                                            Loading spinner
                                                          Donna
                                                          Participant

                                                            Terrific news that Jenna is responding to this treatment. My thoughts are with you and your family.

                                                            Donna R (mom to Jaime, mel angel)

                                                            Loading spinner
                                                        Viewing 25 reply threads
                                                        • You must be logged in to reply to this topic.
                                                        About the MRF Patient Forum

                                                        The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

                                                        The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.