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Update: Changing from Zelboraf to Tafinlar/MEK combo – if insurance approves
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Update: Changing from Zelboraf to Tafinlar/MEK combo – if insurance approves

› Forums › General Melanoma Community › Update: Changing from Zelboraf to Tafinlar/MEK combo – if insurance approves

  • Post
    • August 9, 2013 at 8:11 pm
    bkinman
    Participant

      Haven't updated in awhile, but we are back in TX and had my appointment with Dr. Papa this morning. Scans looked good. The spot on my liver is responding well. Smaller with less uptake on the PET.  I have been having issues with diarrhea for a few weeks now. Went to TX 6/13 and  he added Yervoy. I was already having some diarrhea then I assumed from the Zelboraf. Had Yervoy 7/3/13. Put in hospital 7/26/13 for increased diarrhea. turned out to be cdiff. Cleared all that up, but diarrhea still persists. Been on steriods since 8/1/13.

      Haven't updated in awhile, but we are back in TX and had my appointment with Dr. Papa this morning. Scans looked good. The spot on my liver is responding well. Smaller with less uptake on the PET.  I have been having issues with diarrhea for a few weeks now. Went to TX 6/13 and  he added Yervoy. I was already having some diarrhea then I assumed from the Zelboraf. Had Yervoy 7/3/13. Put in hospital 7/26/13 for increased diarrhea. turned out to be cdiff. Cleared all that up, but diarrhea still persists. Been on steriods since 8/1/13.  This trip he also decided not to continue Yervoy due to this.  Will have a colonoscopy to make sure it is not colitis. If not colitis, I can stop the steriods. Overall I feel blessed and optimistic that all is going well.

       

      Becky

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        • August 13, 2013 at 7:26 pm
        GAngel
        Participant

          Hi Becky, I am glad that your tumor in liver is responding well! I hope your insurance will approve the combo as my husband has been on the combo now for 3 weeks (he was on Zel and responding really good but suffering with a multitude of severe side effects) and he is doing much better as far as the side effects go on the combo.  

          I will be praying for you that all goes well with your treatment. Keep that optimistic outlook.  Remember that through it all the Lord is always with you, He is in control and will never forsake you! 

          Love and blessings to you and yours, 

          Gina 

          • August 13, 2013 at 7:26 pm
          GAngel
          Participant

            Hi Becky, I am glad that your tumor in liver is responding well! I hope your insurance will approve the combo as my husband has been on the combo now for 3 weeks (he was on Zel and responding really good but suffering with a multitude of severe side effects) and he is doing much better as far as the side effects go on the combo.  

            I will be praying for you that all goes well with your treatment. Keep that optimistic outlook.  Remember that through it all the Lord is always with you, He is in control and will never forsake you! 

            Love and blessings to you and yours, 

            Gina 

            • August 13, 2013 at 7:26 pm
            GAngel
            Participant

              Hi Becky, I am glad that your tumor in liver is responding well! I hope your insurance will approve the combo as my husband has been on the combo now for 3 weeks (he was on Zel and responding really good but suffering with a multitude of severe side effects) and he is doing much better as far as the side effects go on the combo.  

              I will be praying for you that all goes well with your treatment. Keep that optimistic outlook.  Remember that through it all the Lord is always with you, He is in control and will never forsake you! 

              Love and blessings to you and yours, 

              Gina 

              • August 31, 2013 at 9:41 pm
              Tina D
              Participant

                Glad things are going well & hopefully by now ( I JUST saw this post- doing some catching up) your bowel issues have stabilized.

                Tina

                • August 31, 2013 at 9:41 pm
                Tina D
                Participant

                  Glad things are going well & hopefully by now ( I JUST saw this post- doing some catching up) your bowel issues have stabilized.

                  Tina

                  • August 31, 2013 at 9:41 pm
                  Tina D
                  Participant

                    Glad things are going well & hopefully by now ( I JUST saw this post- doing some catching up) your bowel issues have stabilized.

                    Tina

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