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Update

  • Post
    Roxy1453
    Participant
      I haven’t posted for awhile so I thought I would fill you in. I had a pet scan 2 weeks ago. It did not show any new spots but the one I have showed brighter. It also showed that my colitis was not gone. So I didn’t have my third IPI treatment and I’m staying on the steroids. I went in again this past Fri. And will be staying on the steroids for 3 more weeks.

      He told me that the IPI has ramped up my immune system with just the 2 treatments and that if I got more it would just creat more problems. He stopped short of saying it was kicking the cancer. It’s too soon to know. It’s just good to know it has been ramped up.

      I pray for healing for all of us, stay strong!

      Nancy

    Viewing 5 reply threads
    • Replies
        Linny
        Participant

          Ramped up is good! May your immune system continue kicking butt!

          Linda

          Linny
          Participant

            Ramped up is good! May your immune system continue kicking butt!

            Linda

            Linny
            Participant

              Ramped up is good! May your immune system continue kicking butt!

              Linda

              kylez
              Participant

                Hi Nancy, no new spots is really good. 

                It does sound like you're in a position to potentially be responding, as your oncologist says, but IPI and your immune system need more time than they've had so far to show what they're up to, also as your onc says.

                I didn't know they could see colitis on PET scans, so I just learned something new.

                  Roxy1453
                  Participant
                    I did not know they could tell either. I guess it showed red on the scan.
                    Roxy1453
                    Participant
                      I did not know they could tell either. I guess it showed red on the scan.
                      Roxy1453
                      Participant
                        I did not know they could tell either. I guess it showed red on the scan.
                      kylez
                      Participant

                        Hi Nancy, no new spots is really good. 

                        It does sound like you're in a position to potentially be responding, as your oncologist says, but IPI and your immune system need more time than they've had so far to show what they're up to, also as your onc says.

                        I didn't know they could see colitis on PET scans, so I just learned something new.

                        kylez
                        Participant

                          Hi Nancy, no new spots is really good. 

                          It does sound like you're in a position to potentially be responding, as your oncologist says, but IPI and your immune system need more time than they've had so far to show what they're up to, also as your onc says.

                          I didn't know they could see colitis on PET scans, so I just learned something new.

                      Viewing 5 reply threads
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