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update

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    SStamps
    Participant

      The tumor on Mickey's spine showed leptomeningeal. Mickey had 7 rounds of radiation on tumor finished on 12-08-11 and ommaya was place on the same day.

      The tumor on Mickey's spine showed leptomeningeal. Mickey had 7 rounds of radiation on tumor finished on 12-08-11 and ommaya was place on the same day. On 12-14-11 treatment started with IL2 administered thru ommaya 5 days in a row one day off then another dose after this dose he became very confused so they didn't do anymore treatment that week.  He got better and they let us check out for Christmas then back the following Tuesday.  He was able to handle 2 treatments that week and again he was able to check out for New Years.  Checked back in and finished with 3 treatments that week.  Back to hotel and scans this week. Dr Papa said the radiologist e-mailed him about the brain MRI and spine MRI.  Tumor in brain is larger and tumor on spine is smaller from radiation but looks like leptomeningeal  has spread up the spine.  Dr Papa said that this could be inflammation from treatment also every time they tapped him the spinal fluid has been clear of cancer cells but will know more in 4 weeks.  So we made it home last night and next week starts the once a week for 4 weeks then scans and maybe 2 more once a weeks then goes to 2 weeks and so on up every 6 weeks possibly every 8 weeks.  Mickey is doing well other then tired and and not much of an appetite. I have read that AmyB had this same treatment? But I am unable to find any of her post.  I have read her sisters

      Hoping you all have a blessed new year

      Samantha

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        Theresa123
        Participant

          God Bless.  I have been on IL-2 twice, no picnic.  I hope it works for you.

          Theresa123
          Participant

            God Bless.  I have been on IL-2 twice, no picnic.  I hope it works for you.

            Theresa123
            Participant

              God Bless.  I have been on IL-2 twice, no picnic.  I hope it works for you.

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