The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Tumor Pain

Forums General Melanoma Community Tumor Pain

  • This topic is empty.
  • Post
    Tracy Seattle
    Participant

      My tumor is in my clavicle lymph nodes.  I have just finished a 2 year trial of nivolumab followed by 4 courses of ipi.  At one point in the trial I was considered "complete response" due to tumor shrinkage.  Then the tumor grew bigger.  My last scan showed about the same size but necrosis in the center of the tumor.  My tumor is very easy to feel and see as it is just above my collar bone.  In the past couple of days it feels like it has swollen up a bit and is sensitive.  My shoulder and scalen muscles in my neck are also extremely tight and tend to push the tumor up when they get tight.  Wondering if anyone out there can actually feel their tumor and ever has these kinds of sensations.  I hope this thing isn't try to battle back again!!  

    • You must be logged in to reply to this topic.
    About the MRF Patient Forum

    The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

    The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

    Popular Topics