Tuesday must be scan result day
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Tuesday must be scan result day

› Forums › General Melanoma Community › Tuesday must be scan result day

  • Post
    • July 22, 2015 at 4:47 am
    _Paul_
    Participant

    Because I got mine today as well. Pretty good results I think. This was a 6 month scan and the bottom line was that there was no progression. And in fact the new tumor I had growing in my shoulder is no longer visible.

    All the tumors in my liver and lungs are still there, but they are all 1cm diameter or smaller. And the one tumor that was zapped with SRS and expanded (consistent with inflammation from the radiation and scar tissue) has now begin to shrink (consistent with a decrease in inflammation).

    I would love to be NED, but I will take no progression!

    – Paul

Viewing 23 reply threads
  • Replies
      • July 22, 2015 at 9:46 am
      Mat
      Participant

      Paul, glad to hear.  We're at similar points in our Keytruda treatments (just had my 9th infusion on Monday) and we're having similar results, i.e., I also had more stability than shrinkage at my last scans (at around week 14) and my remaining tumors are primarily in my liver and are relatively small (less than 3cm).  NED would be insanely great, but like you, I've come to accept (and be grateful for) stability.

        • July 24, 2015 at 2:46 pm
        _Paul_
        Participant

        Amen Mat. No progression is much better than uncontrolled growth. Given that mean survival time (pre-immunotherapy statistics) is 7 months and I'm at 10 (and you are 2 years out!) I don't mind at all!

        • July 24, 2015 at 2:46 pm
        _Paul_
        Participant

        Amen Mat. No progression is much better than uncontrolled growth. Given that mean survival time (pre-immunotherapy statistics) is 7 months and I'm at 10 (and you are 2 years out!) I don't mind at all!

        • July 24, 2015 at 2:46 pm
        _Paul_
        Participant

        Amen Mat. No progression is much better than uncontrolled growth. Given that mean survival time (pre-immunotherapy statistics) is 7 months and I'm at 10 (and you are 2 years out!) I don't mind at all!

      • July 22, 2015 at 9:46 am
      Mat
      Participant

      Paul, glad to hear.  We're at similar points in our Keytruda treatments (just had my 9th infusion on Monday) and we're having similar results, i.e., I also had more stability than shrinkage at my last scans (at around week 14) and my remaining tumors are primarily in my liver and are relatively small (less than 3cm).  NED would be insanely great, but like you, I've come to accept (and be grateful for) stability.

      • July 22, 2015 at 9:46 am
      Mat
      Participant

      Paul, glad to hear.  We're at similar points in our Keytruda treatments (just had my 9th infusion on Monday) and we're having similar results, i.e., I also had more stability than shrinkage at my last scans (at around week 14) and my remaining tumors are primarily in my liver and are relatively small (less than 3cm).  NED would be insanely great, but like you, I've come to accept (and be grateful for) stability.

      • July 22, 2015 at 12:41 pm
      Bubbles
      Participant

      Congrats guys!

      Will keep fingers crossed that all tumors do the disappearing act next scan round! Celeste

        • July 24, 2015 at 2:48 pm
        _Paul_
        Participant

        Thanks Celeste! It would be fantastic if your wish comes true!

        • July 24, 2015 at 2:48 pm
        _Paul_
        Participant

        Thanks Celeste! It would be fantastic if your wish comes true!

        • July 24, 2015 at 2:48 pm
        _Paul_
        Participant

        Thanks Celeste! It would be fantastic if your wish comes true!

      • July 22, 2015 at 12:41 pm
      Bubbles
      Participant

      Congrats guys!

      Will keep fingers crossed that all tumors do the disappearing act next scan round! Celeste

      • July 22, 2015 at 12:41 pm
      Bubbles
      Participant

      Congrats guys!

      Will keep fingers crossed that all tumors do the disappearing act next scan round! Celeste

      • July 22, 2015 at 1:41 pm
      dentholla
      Participant

      Great news, thanks for sharing

        • July 24, 2015 at 2:49 pm
        _Paul_
        Participant

        Of course! Thank you.

        • July 24, 2015 at 2:49 pm
        _Paul_
        Participant

        Of course! Thank you.

        • July 24, 2015 at 2:49 pm
        _Paul_
        Participant

        Of course! Thank you.

      • July 22, 2015 at 1:41 pm
      dentholla
      Participant

      Great news, thanks for sharing

      • July 22, 2015 at 1:41 pm
      dentholla
      Participant

      Great news, thanks for sharing

      • July 22, 2015 at 11:50 pm
      arthurjedi007
      Participant

      Congrats Paul. Sounds like great results.

      Artie

        • July 24, 2015 at 2:50 pm
        _Paul_
        Participant

        Thanks Artie. I really hope you get into TIL or some other trial that once and for all kicks your cancer to the curb.

        • July 24, 2015 at 2:50 pm
        _Paul_
        Participant

        Thanks Artie. I really hope you get into TIL or some other trial that once and for all kicks your cancer to the curb.

        • July 24, 2015 at 2:50 pm
        _Paul_
        Participant

        Thanks Artie. I really hope you get into TIL or some other trial that once and for all kicks your cancer to the curb.

      • July 22, 2015 at 11:50 pm
      arthurjedi007
      Participant

      Congrats Paul. Sounds like great results.

      Artie

      • July 22, 2015 at 11:50 pm
      arthurjedi007
      Participant

      Congrats Paul. Sounds like great results.

      Artie

      • July 23, 2015 at 1:43 am
      Mom2Addy
      Participant

      That's wonderful! We will all take the little wins in this awful war!

        • July 24, 2015 at 2:51 pm
        _Paul_
        Participant

        I agree. Thank you!

        • July 24, 2015 at 2:51 pm
        _Paul_
        Participant

        I agree. Thank you!

        • July 24, 2015 at 2:51 pm
        _Paul_
        Participant

        I agree. Thank you!

      • July 23, 2015 at 1:43 am
      Mom2Addy
      Participant

      That's wonderful! We will all take the little wins in this awful war!

      • July 23, 2015 at 1:43 am
      Mom2Addy
      Participant

      That's wonderful! We will all take the little wins in this awful war!

      • July 23, 2015 at 8:07 am
      stars
      Participant

      Excellent news! Thanks for sharing your results. Not only is there no progression, but regression of one new tumor. Your body is responding!

        • July 24, 2015 at 2:53 pm
        _Paul_
        Participant

        That's true. That shoulder tumor was initially growing fast and now it's just gone. Woohoo!

        • July 24, 2015 at 2:53 pm
        _Paul_
        Participant

        That's true. That shoulder tumor was initially growing fast and now it's just gone. Woohoo!

        • July 24, 2015 at 2:53 pm
        _Paul_
        Participant

        That's true. That shoulder tumor was initially growing fast and now it's just gone. Woohoo!

      • July 23, 2015 at 8:07 am
      stars
      Participant

      Excellent news! Thanks for sharing your results. Not only is there no progression, but regression of one new tumor. Your body is responding!

      • July 23, 2015 at 8:07 am
      stars
      Participant

      Excellent news! Thanks for sharing your results. Not only is there no progression, but regression of one new tumor. Your body is responding!

      • July 23, 2015 at 3:10 pm
      dfeng
      Participant

      best wishes!

      • July 23, 2015 at 3:10 pm
      dfeng
      Participant

      best wishes!

        • July 24, 2015 at 2:54 pm
        _Paul_
        Participant

        Thank you and I hope you get yours under control too!

        • July 24, 2015 at 2:54 pm
        _Paul_
        Participant

        Thank you and I hope you get yours under control too!

        • July 24, 2015 at 2:54 pm
        _Paul_
        Participant

        Thank you and I hope you get yours under control too!

      • July 23, 2015 at 3:10 pm
      dfeng
      Participant

      best wishes!

      • July 25, 2015 at 12:06 pm
      BrianP
      Participant

      Congrats Paul.  When I started my trial nearly 2 years ago I had pretty good 3 month scans but then like you at 6 month I was "just" stable.  Remember kinda being a little bumed about it as I just so badly wanted to be NED and put cancer in the rear view mirror.  I remember reading a quote by TJ Sharpe in his blog which said something along the lines that a tie is a win in this game.  That stuck with me.  After nearly 18 months of being stable it probably doesn't feel quite as good as being NED but if feels pretty darn great. 

      Brian

        • July 25, 2015 at 12:46 pm
        ed williams
        Participant

        Brian, I think we need our own " acronym".  Let's throw out NED and replace it with "NTD"  for No Tumor Development". This is my first attempt at creating an acronym, so I am open to suggestion from other more creative minds. Glad to hear you are " NTD" Paul, keep up the good fight guys.  

        • July 25, 2015 at 12:46 pm
        ed williams
        Participant

        Brian, I think we need our own " acronym".  Let's throw out NED and replace it with "NTD"  for No Tumor Development". This is my first attempt at creating an acronym, so I am open to suggestion from other more creative minds. Glad to hear you are " NTD" Paul, keep up the good fight guys.  

        • July 25, 2015 at 12:46 pm
        ed williams
        Participant

        Brian, I think we need our own " acronym".  Let's throw out NED and replace it with "NTD"  for No Tumor Development". This is my first attempt at creating an acronym, so I am open to suggestion from other more creative minds. Glad to hear you are " NTD" Paul, keep up the good fight guys.  

        • July 26, 2015 at 3:26 am
        Squash
        Participant

        Stable is still good.

        Heck what if you were stable for 10 years i am sure you would take it.

        Even people who are pronounced NED proably have melanoma lurking somewhere. It is just that it doest show up on any conventional scans or tests.

         

        • July 26, 2015 at 3:26 am
        Squash
        Participant

        Stable is still good.

        Heck what if you were stable for 10 years i am sure you would take it.

        Even people who are pronounced NED proably have melanoma lurking somewhere. It is just that it doest show up on any conventional scans or tests.

         

        • July 26, 2015 at 3:26 am
        Squash
        Participant

        Stable is still good.

        Heck what if you were stable for 10 years i am sure you would take it.

        Even people who are pronounced NED proably have melanoma lurking somewhere. It is just that it doest show up on any conventional scans or tests.

         

      • July 25, 2015 at 12:06 pm
      BrianP
      Participant

      Congrats Paul.  When I started my trial nearly 2 years ago I had pretty good 3 month scans but then like you at 6 month I was "just" stable.  Remember kinda being a little bumed about it as I just so badly wanted to be NED and put cancer in the rear view mirror.  I remember reading a quote by TJ Sharpe in his blog which said something along the lines that a tie is a win in this game.  That stuck with me.  After nearly 18 months of being stable it probably doesn't feel quite as good as being NED but if feels pretty darn great. 

      Brian

      • July 25, 2015 at 12:06 pm
      BrianP
      Participant

      Congrats Paul.  When I started my trial nearly 2 years ago I had pretty good 3 month scans but then like you at 6 month I was "just" stable.  Remember kinda being a little bumed about it as I just so badly wanted to be NED and put cancer in the rear view mirror.  I remember reading a quote by TJ Sharpe in his blog which said something along the lines that a tie is a win in this game.  That stuck with me.  After nearly 18 months of being stable it probably doesn't feel quite as good as being NED but if feels pretty darn great. 

      Brian

Viewing 23 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics