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Tremadon on Brain turmor/lung mets/
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Tremadon on Brain turmor/lung mets/

› Forums › General Melanoma Community › Tremadon on Brain turmor/lung mets/

  • Post
    • April 5, 2012 at 3:33 am
    ElaineLinn
    Participant

      I just had surgery on a 2 1/2 cm brain tumor and done the muskadermas trial this was 3 weekago. Just found out today that while doing my ct cans for radiation that I now have more tumors. So I will be going under the Gama Knife radiation, and hopefull this takes care of these turmos. Then I will doing the Tremadol trial. I  wish I knew more about this study but right now I am running out of choices. I know that if its Gods will it will be done and I really believe that god will heal me, or he has other plans for me. I guess we will find out real soon

      I just had surgery on a 2 1/2 cm brain tumor and done the muskadermas trial this was 3 weekago. Just found out today that while doing my ct cans for radiation that I now have more tumors. So I will be going under the Gama Knife radiation, and hopefull this takes care of these turmos. Then I will doing the Tremadol trial. I  wish I knew more about this study but right now I am running out of choices. I know that if its Gods will it will be done and I really believe that god will heal me, or he has other plans for me. I guess we will find out real soon

    Viewing 8 reply threads
    • Replies
        • April 6, 2012 at 1:48 am
        kylez
        Participant

          Elaine,

          Which Temodar study are you doing? Is it the high-dose Temodar study for CNS mets at Tufts? Or another one?

          I was at a Brain Tumor support group meeting last night. Most of the attendees were there for primary brain cancers, I was the only one with metastatic disease (melanoma). 

          Hang in there, keep rested, keep moving forward, take it one day at a time.

          – Kyle

          • April 6, 2012 at 1:48 am
          kylez
          Participant

            Elaine,

            Which Temodar study are you doing? Is it the high-dose Temodar study for CNS mets at Tufts? Or another one?

            I was at a Brain Tumor support group meeting last night. Most of the attendees were there for primary brain cancers, I was the only one with metastatic disease (melanoma). 

            Hang in there, keep rested, keep moving forward, take it one day at a time.

            – Kyle

            • April 6, 2012 at 1:48 am
            kylez
            Participant

              Elaine,

              Which Temodar study are you doing? Is it the high-dose Temodar study for CNS mets at Tufts? Or another one?

              I was at a Brain Tumor support group meeting last night. Most of the attendees were there for primary brain cancers, I was the only one with metastatic disease (melanoma). 

              Hang in there, keep rested, keep moving forward, take it one day at a time.

              – Kyle

              • April 6, 2012 at 11:48 am
              FormerCaregiver
              Participant

                Elaine, I am not sure if you meant Temodar but here is some info about it:
                http://www.chemocare.com/bio/temodar.asp

                You remain in my prayers.

                Frank from Australia

                  • April 7, 2012 at 11:34 am
                  ElaineLinn
                  Participant

                    Thank you so much Frank, I can not see very good and my memeory is NOT good at all.  I have been trying to find more on this medicine but hadnt been able to because of the spelling. Thank you so much. And thank you for keeping me in your prayers. as I will keep all of you in my prayers. I wish cancer was a word we never had to hear!

                    • April 7, 2012 at 11:34 am
                    ElaineLinn
                    Participant

                      Thank you so much Frank, I can not see very good and my memeory is NOT good at all.  I have been trying to find more on this medicine but hadnt been able to because of the spelling. Thank you so much. And thank you for keeping me in your prayers. as I will keep all of you in my prayers. I wish cancer was a word we never had to hear!

                      • April 7, 2012 at 11:34 am
                      ElaineLinn
                      Participant

                        Thank you so much Frank, I can not see very good and my memeory is NOT good at all.  I have been trying to find more on this medicine but hadnt been able to because of the spelling. Thank you so much. And thank you for keeping me in your prayers. as I will keep all of you in my prayers. I wish cancer was a word we never had to hear!

                      • April 6, 2012 at 11:48 am
                      FormerCaregiver
                      Participant

                        Elaine, I am not sure if you meant Temodar but here is some info about it:
                        http://www.chemocare.com/bio/temodar.asp

                        You remain in my prayers.

                        Frank from Australia

                        • April 6, 2012 at 11:48 am
                        FormerCaregiver
                        Participant

                          Elaine, I am not sure if you meant Temodar but here is some info about it:
                          http://www.chemocare.com/bio/temodar.asp

                          You remain in my prayers.

                          Frank from Australia

                          • April 7, 2012 at 2:17 pm
                          love4life
                          Participant

                            Hi Elaine,

                            I have had brain and lung mets since 2009 and am also going for gamma knife (this week) for another tumour which was found in my brain.  I had a craniotomy in 2009 and gamma knife following and had no more tumours in the brain for the past two years. I asked my doctor about Temodor when I was in last week but he said it wasn't an option for me.  Not sure why not so I will be looking into that further.  Gamma Knife really is a powerful tool against brain mets and I figure that if I have to go for that every couple of years then so be it.  Keep your strong faith!

                            Good luck with everything and I will be thinking of you.

                            Take care,

                            Natalie

                              • April 9, 2012 at 5:35 pm
                              ElaineLinn
                              Participant

                                thank you so much because I am scared to death. It has only been 3 weeks since my surgery for the first tumor and now they found more. and they wont tell me how many till I get there for the gamma knife, I am afraid it is alot but I will continue to pray with all I have. And maybe I can beat this and move on for a few years anyways. I will also be meeting with Dr. Kendra the followin week to start the tramador  I dont know anymore I just do as they tell me and PRAY

                                • April 9, 2012 at 5:35 pm
                                ElaineLinn
                                Participant

                                  thank you so much because I am scared to death. It has only been 3 weeks since my surgery for the first tumor and now they found more. and they wont tell me how many till I get there for the gamma knife, I am afraid it is alot but I will continue to pray with all I have. And maybe I can beat this and move on for a few years anyways. I will also be meeting with Dr. Kendra the followin week to start the tramador  I dont know anymore I just do as they tell me and PRAY

                                  • April 9, 2012 at 5:35 pm
                                  ElaineLinn
                                  Participant

                                    thank you so much because I am scared to death. It has only been 3 weeks since my surgery for the first tumor and now they found more. and they wont tell me how many till I get there for the gamma knife, I am afraid it is alot but I will continue to pray with all I have. And maybe I can beat this and move on for a few years anyways. I will also be meeting with Dr. Kendra the followin week to start the tramador  I dont know anymore I just do as they tell me and PRAY

                                  • April 7, 2012 at 2:17 pm
                                  love4life
                                  Participant

                                    Hi Elaine,

                                    I have had brain and lung mets since 2009 and am also going for gamma knife (this week) for another tumour which was found in my brain.  I had a craniotomy in 2009 and gamma knife following and had no more tumours in the brain for the past two years. I asked my doctor about Temodor when I was in last week but he said it wasn't an option for me.  Not sure why not so I will be looking into that further.  Gamma Knife really is a powerful tool against brain mets and I figure that if I have to go for that every couple of years then so be it.  Keep your strong faith!

                                    Good luck with everything and I will be thinking of you.

                                    Take care,

                                    Natalie

                                    • April 7, 2012 at 2:17 pm
                                    love4life
                                    Participant

                                      Hi Elaine,

                                      I have had brain and lung mets since 2009 and am also going for gamma knife (this week) for another tumour which was found in my brain.  I had a craniotomy in 2009 and gamma knife following and had no more tumours in the brain for the past two years. I asked my doctor about Temodor when I was in last week but he said it wasn't an option for me.  Not sure why not so I will be looking into that further.  Gamma Knife really is a powerful tool against brain mets and I figure that if I have to go for that every couple of years then so be it.  Keep your strong faith!

                                      Good luck with everything and I will be thinking of you.

                                      Take care,

                                      Natalie

                                  Viewing 8 reply threads
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