› Forums › General Melanoma Community › Treating side effects of yervoy?
- This topic has 6 replies, 2 voices, and was last updated 13 years, 4 months ago by
Swanee.
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- December 21, 2012 at 6:15 pm
My father has lesions in his liver, omentum, possibly lungs and other areas of his body. He's been through cyber knife for a brain lesion, cyber and ablation for liver, and his now on yervoy. After 3 infusions, he is having terrible collitis and has lost a lot of weight. They are reluctant to take prednisone because of a terrible toe infection (maybe MRSA?), and one doc thinks that meslamine is contradindicated for someone with extensive melanoma in the liver. Any suggestions? I don't know how to help and he's so weak and everyone is so eaxhuasted.&
My father has lesions in his liver, omentum, possibly lungs and other areas of his body. He's been through cyber knife for a brain lesion, cyber and ablation for liver, and his now on yervoy. After 3 infusions, he is having terrible collitis and has lost a lot of weight. They are reluctant to take prednisone because of a terrible toe infection (maybe MRSA?), and one doc thinks that meslamine is contradindicated for someone with extensive melanoma in the liver. Any suggestions? I don't know how to help and he's so weak and everyone is so eaxhuasted. Thanks
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- December 21, 2012 at 6:56 pm
Remicade was the ONLY drug that cured my Ipi-induced severe colitis. Unless its contra-indicated for your gather specifically, it’s the recommended choice after steroids fail. It saved my life- took 2 infusions to do the trick.
My doc, Jedd Wolchok, is an Ipi expert-/he knows his stuff.
Let us know,
Karen
Ps. My story,s not complete in my profile, but u can do a search for Remicade. There’s also a steroid that only works in the gut, budesonine , but sounds like your dad’s case might be too advanced for that. -
- December 21, 2012 at 6:56 pm
Remicade was the ONLY drug that cured my Ipi-induced severe colitis. Unless its contra-indicated for your gather specifically, it’s the recommended choice after steroids fail. It saved my life- took 2 infusions to do the trick.
My doc, Jedd Wolchok, is an Ipi expert-/he knows his stuff.
Let us know,
Karen
Ps. My story,s not complete in my profile, but u can do a search for Remicade. There’s also a steroid that only works in the gut, budesonine , but sounds like your dad’s case might be too advanced for that. -
- December 21, 2012 at 6:56 pm
Remicade was the ONLY drug that cured my Ipi-induced severe colitis. Unless its contra-indicated for your gather specifically, it’s the recommended choice after steroids fail. It saved my life- took 2 infusions to do the trick.
My doc, Jedd Wolchok, is an Ipi expert-/he knows his stuff.
Let us know,
Karen
Ps. My story,s not complete in my profile, but u can do a search for Remicade. There’s also a steroid that only works in the gut, budesonine , but sounds like your dad’s case might be too advanced for that. -
- December 23, 2012 at 1:04 am
I too was treated with 2 treatments of infliximab or remicade for ulcerated colitis which was tolerated very well. But was also treated with steroids for 3 months, starting with a dosage of 120 mg and tapering off . The steroids and the side effects were the worst for me to tolerate as they destroy muscle tissue and caused me to become very weak, also a lot of weight loss too. I am a strong and physically active person and have never recovered what I lost, although I continue to workout to rebuild the muscle. I was never treated with meslamine. I know this information probably doesn't help you, but just letting you know what was used in a similar situation.
Sending positive thoughts and strength to you and your family and prayers of healing and recovery for your Dad. Hoping he is well soon!
Best wishes always,
Swanee
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- December 23, 2012 at 1:04 am
I too was treated with 2 treatments of infliximab or remicade for ulcerated colitis which was tolerated very well. But was also treated with steroids for 3 months, starting with a dosage of 120 mg and tapering off . The steroids and the side effects were the worst for me to tolerate as they destroy muscle tissue and caused me to become very weak, also a lot of weight loss too. I am a strong and physically active person and have never recovered what I lost, although I continue to workout to rebuild the muscle. I was never treated with meslamine. I know this information probably doesn't help you, but just letting you know what was used in a similar situation.
Sending positive thoughts and strength to you and your family and prayers of healing and recovery for your Dad. Hoping he is well soon!
Best wishes always,
Swanee
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- December 23, 2012 at 1:04 am
I too was treated with 2 treatments of infliximab or remicade for ulcerated colitis which was tolerated very well. But was also treated with steroids for 3 months, starting with a dosage of 120 mg and tapering off . The steroids and the side effects were the worst for me to tolerate as they destroy muscle tissue and caused me to become very weak, also a lot of weight loss too. I am a strong and physically active person and have never recovered what I lost, although I continue to workout to rebuild the muscle. I was never treated with meslamine. I know this information probably doesn't help you, but just letting you know what was used in a similar situation.
Sending positive thoughts and strength to you and your family and prayers of healing and recovery for your Dad. Hoping he is well soon!
Best wishes always,
Swanee
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