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Too Busy Celebrating!!

Forums General Melanoma Community Too Busy Celebrating!!

  • Post
    pbnjelley
    Participant

      I was going to post this two days ago when I got the news and I didn't because I was just too busy celebrating!  I have been on Zelboraf for 3 months because of several mets on my lungs and got all the crappy side effects like it seems everyone else has suffered.  I prepared myself for the idea that my life would be forever diminished because I moved around like a 90 year old instead of the 27 I just turned.  I was frustrated for 3 months wondering if it was even worth it to go through this when I had to reduce the medication to half the dosage and I figured it wouldn&#39

      I was going to post this two days ago when I got the news and I didn't because I was just too busy celebrating!  I have been on Zelboraf for 3 months because of several mets on my lungs and got all the crappy side effects like it seems everyone else has suffered.  I prepared myself for the idea that my life would be forever diminished because I moved around like a 90 year old instead of the 27 I just turned.  I was frustrated for 3 months wondering if it was even worth it to go through this when I had to reduce the medication to half the dosage and I figured it wouldn't even work.  And then came the day for my scan on Tuesday to see if there was any progress being made.  Miracle of Miracles – not ONE spot can be seen.  That's right folks, in only 3 months the Zelboraf has taken care of all visual spots!  My oncologist and I decided that I would continue taking Z for 3 more months and just try to make sure that no bad cells could remain and we even upped the dosage to see if I can handle it and really kick this thing in the butt.  I'm not gonna lie, I still am sore and moving slow today, but there is nothing hurting about this smile!  In three months I will get my scans and confirm NED and then a month later, I will marry the man of my dreams and start the beginning of a long life with him.  I never thought that I would see a "clear scan".  I was told that possibility only occurred in about 2% and I hung my heart on that number.  I have thanked God every spare minute I have had and pray that this nightmare never returns.  I pray for everyone who is going through this trial in life and I hope for positive outcomes and happy smiles.  So many people on here have influenced me with their positive attitudes and I thank you for your everlasting comfort.  Everyone on here is a hero and I wish you all the best!!!

    Viewing 20 reply threads
    • Replies
        WendyR3
        Participant

          Congratulations!  Always nice to hear good news!

          WendyR3
          Participant

            Congratulations!  Always nice to hear good news!

            WendyR3
            Participant

              Congratulations!  Always nice to hear good news!

              Roxy1453
              Participant
                Congrats!! Such wonderful news!!
                Roxy1453
                Participant
                  Congrats!! Such wonderful news!!
                  Roxy1453
                  Participant
                    Congrats!! Such wonderful news!!
                    aldakota22
                    Participant

                      Thank God.Life is good and will only get better for you.All the best ..  Aldakota22

                      aldakota22
                      Participant

                        Thank God.Life is good and will only get better for you.All the best ..  Aldakota22

                        aldakota22
                        Participant

                          Thank God.Life is good and will only get better for you.All the best ..  Aldakota22

                          lhaley
                          Participant

                            What a great post!!!   We expect to see wedding pictures.  Thank you for the positive post that will give so many of us hope.

                            Linda

                            lhaley
                            Participant

                              What a great post!!!   We expect to see wedding pictures.  Thank you for the positive post that will give so many of us hope.

                              Linda

                                deardad
                                Participant

                                  Great news, we really need some around this board lately.

                                  Take care

                                  Nahmi from Melbourne

                                  deardad
                                  Participant

                                    Great news, we really need some around this board lately.

                                    Take care

                                    Nahmi from Melbourne

                                    deardad
                                    Participant

                                      Great news, we really need some around this board lately.

                                      Take care

                                      Nahmi from Melbourne

                                    lhaley
                                    Participant

                                      What a great post!!!   We expect to see wedding pictures.  Thank you for the positive post that will give so many of us hope.

                                      Linda

                                      Linny
                                      Participant

                                        That's fantastic news! Congratulations!!!

                                        Linny
                                        Participant

                                          That's fantastic news! Congratulations!!!

                                          Linny
                                          Participant

                                            That's fantastic news! Congratulations!!!

                                            pbnjelley
                                            Participant

                                              Thank you for all the congratulatory responses!  It is my hope that a positive story will inspore some hope and I pray that more happy outcomes start appearing.  I also want those who are on Zelboraf to know that it can be effective and I think the more it's in use the better the numbers are going to get as more information becomes available on it. I know how frustrating all the side effects are, but have faith that it is doing its duty!  For all of you who cannot take the Zelboraf, I pray for you and the hope that your treatment is just as effective.  If anyone needs an extra prayer angel, let me know because I will gladly add you to my list.  Thank you again and God Bless!

                                              pbnjelley
                                              Participant

                                                Thank you for all the congratulatory responses!  It is my hope that a positive story will inspore some hope and I pray that more happy outcomes start appearing.  I also want those who are on Zelboraf to know that it can be effective and I think the more it's in use the better the numbers are going to get as more information becomes available on it. I know how frustrating all the side effects are, but have faith that it is doing its duty!  For all of you who cannot take the Zelboraf, I pray for you and the hope that your treatment is just as effective.  If anyone needs an extra prayer angel, let me know because I will gladly add you to my list.  Thank you again and God Bless!

                                                  Tina D
                                                  Participant

                                                    Wonderful, wonderful news!! Thank you for taking the time to share it! 

                                                    Tina D
                                                    Participant

                                                      Wonderful, wonderful news!! Thank you for taking the time to share it! 

                                                      Tina D
                                                      Participant

                                                        Wonderful, wonderful news!! Thank you for taking the time to share it! 

                                                        Retired41505
                                                        Participant

                                                          That's AWESOME. . .my son in law starts Zelboraf on Friday for nrain mets. . .14+ lesions. We are hoping for some good results.

                                                          Retired41505
                                                          Participant

                                                            That's AWESOME. . .my son in law starts Zelboraf on Friday for nrain mets. . .14+ lesions. We are hoping for some good results.

                                                            Retired41505
                                                            Participant

                                                              That's AWESOME. . .my son in law starts Zelboraf on Friday for nrain mets. . .14+ lesions. We are hoping for some good results.

                                                            pbnjelley
                                                            Participant

                                                              Thank you for all the congratulatory responses!  It is my hope that a positive story will inspore some hope and I pray that more happy outcomes start appearing.  I also want those who are on Zelboraf to know that it can be effective and I think the more it's in use the better the numbers are going to get as more information becomes available on it. I know how frustrating all the side effects are, but have faith that it is doing its duty!  For all of you who cannot take the Zelboraf, I pray for you and the hope that your treatment is just as effective.  If anyone needs an extra prayer angel, let me know because I will gladly add you to my list.  Thank you again and God Bless!

                                                              Swanee
                                                              Participant

                                                                YOU GO GIRL  …..  TODAY IS YOUR DAY!!  These are wonderful words to encourage us all……there is hope, there is a cure and I pray we all find it!  Best wishes to you and all the rest fighting this battle!  …….. Swanee

                                                                Swanee
                                                                Participant

                                                                  YOU GO GIRL  …..  TODAY IS YOUR DAY!!  These are wonderful words to encourage us all……there is hope, there is a cure and I pray we all find it!  Best wishes to you and all the rest fighting this battle!  …….. Swanee

                                                                  Swanee
                                                                  Participant

                                                                    YOU GO GIRL  …..  TODAY IS YOUR DAY!!  These are wonderful words to encourage us all……there is hope, there is a cure and I pray we all find it!  Best wishes to you and all the rest fighting this battle!  …….. Swanee

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