TIL Trial at NIH — I’M IN!!!
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TIL Trial at NIH — I’M IN!!!

› Forums › General Melanoma Community › TIL Trial at NIH — I’M IN!!!

  • Post
    • January 12, 2018 at 6:52 pm
    mrsaxde
    Participant

    I went to Johns Hopkins this morning for a follow up appointment, and Dr. Sharfman wanted to know what they told me at NIH. I related how Dr. Sherry said that he had to consult with their endocrine team about my thyroid issues. Dr. Sharfman said, "Those are minor issues. I don't think they'll prevent you from getting in."

    On my way home my clinical fellow, Dr. Shindorf, called to tell me they're taking me into the TIL trial. I go for surgery in early February.

    Thank you for all the thoughts, prayers, positive vibes, etc from everyone. Maybe this time I can beat this down and it will stay beaten!

    -Bill

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  • Replies
      • January 12, 2018 at 7:45 pm
      ed williams
      Participant

      Great news!!!

      • January 12, 2018 at 9:22 pm
      BillB
      Participant

      Congrats! Good luck!

      • January 12, 2018 at 10:21 pm
      SABKLYN
      Participant

      Awesome news!

      • January 13, 2018 at 12:28 am
      Bubbles
      Participant

      Awesome!  Good luck!

      celeste

      • January 13, 2018 at 12:53 am
      Mark_DC
      Participant

      Well done Bill, and good luck!!

      • January 13, 2018 at 6:01 am
      CancerSpouse
      Participant

      Super! Pls keep us posted. ~ Carol

      • January 13, 2018 at 6:59 am
      CPM0720
      Participant

      Good news- thanks for sharing! I will say a prayer for you for strength as you face this new trial.

      • January 14, 2018 at 2:07 am
      searching2
      Participant

      Great news!  it's the latest and greatest treatment out there.  My husband just went through the TIL trial at Moffitt Cancer Center in Tampa FL, finished just before Christmas. His strength is coming back slowly, looking forward to shrinking tumors on the upcoming scans. All the BEST to you Bill…..God Bless  

      • January 14, 2018 at 8:26 pm
      Mat
      Participant

      Great news Bill!

      • January 15, 2018 at 3:34 am
      BrianP
      Participant

      Great new Bill!  Very happy for you.

      Brian

      • January 16, 2018 at 3:59 am
      Mark_DC
      Participant

      Bill – I forgot to mention, will be happy to stop by and visit if you are stuck at NIH – i live in DC about four miles south of NIH. Also if you need anything I can bring for you.

      Good luck, Mark

        • January 16, 2018 at 5:46 pm
        Wife_WilliamR
        Participant

        Bill – we are so happy to hear your good news!  If you want to talk to William again on your family has any questions for me feel free to call us!  Wishing you the best!!  Stacy & William

        • January 19, 2018 at 6:09 pm
        mrsaxde
        Participant

        Thanks Stacy! You may not have seen my reply to you on one of my other posts. It seems we may have just missed each other on Friday 1/12. I was at Johns Hopkins for a follow up from the LAG-3 trial, so it sounds like you guys and I were both there somewhere at the same time.

        • January 19, 2018 at 6:07 pm
        mrsaxde
        Participant

        Thanks Mark! Feel free to stop in and visit any time while I'm there. Right now I'm scheduled to go in on Feb. 5 with surgery on the 7th. But I guess that's up in the air now depending on whether the government shuts down.

        • January 29, 2018 at 9:07 pm
        Rebecca and Bob
        Participant

        Hi,

        I haven't been on this board in forever but I saw your post. My husband Bob went to NIH for just IL-2 treatment back in 2008 for Lung mets and then surgery in 2009 with them for intestinal mets. He is still alive and well, I worry about him still. I just wanted to let you know, you are at a good agressive place. I do feel they saved my husbands life. I get sad coming on the site and pray they get better with the treatments.  Rebecca

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