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thyroid keeps lighting up on pet
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thyroid keeps lighting up on pet

› Forums › General Melanoma Community › thyroid keeps lighting up on pet

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    • March 2, 2014 at 11:00 pm
    momof4boys
    Participant
      I just had my 3rd pet scan the other day which came back clear except the thyroid which has shown up every time. My Dr said on the others they were thinking it might be behind the thyroid but this time they thought it looked like it was on the thyroid. I went for an ultrasound which she thought she saw something at first but then she brought 2 drs in and they couldn’t find anything I guess. So this is strange. Whatever it is shows unchanged on the pet so if there isn’t any nodule they can see then what could it be? I know IPI messes with it but my labs have been good thus far. Any thoughts would be appreciated!
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        • March 3, 2014 at 7:52 pm
        evleye
        Participant

          I don't know if this is helpful but I have just been diagnosed with Stage IV melanoma and thyroid cancer that they caught from the PET.  I have two nodules, one that is papillary thyroid cancer and the other could not be diagnosed from the fine needle aspiration (FNA).  There is still a possibility that it could be melanoma.  My endocrinologist who is treating the thyroid cancer mentioned that there is a great difference in the skill level of people doing a neck ultrasound and recommended that I only get them done at his facility (a big regional research hospital) instead of my local radiologist.  I have not had any melanoma treatment other than surgery.  Hope this is helpful and doesn't cloud the issue.  

           

          • March 3, 2014 at 7:52 pm
          evleye
          Participant

            I don't know if this is helpful but I have just been diagnosed with Stage IV melanoma and thyroid cancer that they caught from the PET.  I have two nodules, one that is papillary thyroid cancer and the other could not be diagnosed from the fine needle aspiration (FNA).  There is still a possibility that it could be melanoma.  My endocrinologist who is treating the thyroid cancer mentioned that there is a great difference in the skill level of people doing a neck ultrasound and recommended that I only get them done at his facility (a big regional research hospital) instead of my local radiologist.  I have not had any melanoma treatment other than surgery.  Hope this is helpful and doesn't cloud the issue.  

             

            • March 3, 2014 at 7:52 pm
            evleye
            Participant

              I don't know if this is helpful but I have just been diagnosed with Stage IV melanoma and thyroid cancer that they caught from the PET.  I have two nodules, one that is papillary thyroid cancer and the other could not be diagnosed from the fine needle aspiration (FNA).  There is still a possibility that it could be melanoma.  My endocrinologist who is treating the thyroid cancer mentioned that there is a great difference in the skill level of people doing a neck ultrasound and recommended that I only get them done at his facility (a big regional research hospital) instead of my local radiologist.  I have not had any melanoma treatment other than surgery.  Hope this is helpful and doesn't cloud the issue.  

               

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